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Fibromyalgia and MS
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Fibropooh posted:
Does anyone have Fibromyalgia that also has been diagnosed with MS? I have had Fibro for over 15 years and now and beginning to have signs of MS.
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xperky responded:
Double whammy, ha? Have you been to a neurologist?

I had optic neuritis and some numbness and tingling. After lots of MRI's, etc they still call mine "possible" MS. Thank goodness I have a mild, slow case, if so.

Sometimes fibro can cause numbness and tingling. Also, RA and other diseases can. It's a long road of specialists and tests to figure out some symptoms.

I hope you are doing OK and getting good medical advice.
With Compassion,
Margaret
 
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missist replied to xperky's response:
My mother in law keeps asking me if I have MS, because my fibro and spinal arthritis do cause a lot of symptoms that overlap with MS symptoms, and seem to come and go.

I think when all the studies are in they will find more that these things all have some common ground. I mean the same meds seem to help for much of it too.

The brain, spine and central nervous system seem to be able to go quirky in a variety of ways, so I think it is difficult to know if you have one or the other or both. Sometimes people do have both.

I am not always sure that I don't have MS as well..but so far my doctors have not thought so.

I have days when I wobble and drop things and I have 'jerks' when sleeping, and bizarre numbness in my sleep as well as other things happening, once effecting my eyes. My dr says it is all from my nervous system. Of course also pain and fatigue ala fibro & arthritis.

I did not have the odd stuff earlier in life--the wobblyness and numbness etc.. for me has begun in the past few years. I had fibro since my 20s and am now in my 50s--so I feel it has gone into a different phase maybe?
 
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BetteK replied to missist's response:
Hi to you all!

On the first day of 9th grade a girl smiled at me, sat next to me on that scary schoolbus and said, "Hi, my name is Julia."
We are still best friends at 69.

Julia got MS when we were in high school, but it never seemed to affect her much until her first pregnancy. My fibro began with my second pregnancy. She now uses a walker and--on bad days--a scooter. I only needed my walker for a few weeks after hip surgery.

We are now over 300 miles apart, but we compare notes often and are both struck by the similarities of our symptoms. Julia is appalled by the way she is treated as someone with a real illness and I am often not, Back in the 50s and 60s, many doctors thought MS was not real. MRIs changed all that. I believe that fMRIs will to the same for us.

Interestingly, our local hospital has a Saturday morning help
group that is for "Patients with Fibromyalgia or Multiple Sclerosis or Both." I was amazed at how many members were in the "both" category. Is it any wonder that some doctors consider fibro a different form of attack by whatever causes MS?

Food for thought,

BetteK
 
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dawncostella replied to BetteK's response:
When I was first showing signs of FM they thought I had MS. They did all the tests and everything came back negative. But I still wonder. The symptoms are so similar. I have a girlfriend who has MS and we to are amazing and the similarities.
 
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Fibropooh replied to xperky's response:
xperky,

Thank you for your great reply. Yes I regularly go to rheumatologist and need to go back to the neurologist. When I was first diagnosed with Fibro they suspected MS but ruled it out because my fibro was do bad they went with those symptoms.

My husband is a psychotherapist who when I was first diagnosed hadn't heard of Fibro and it took a long time for him to believe the illness but now has a large part of his practice dedicated to Fibro pts.

Will keep you posted on the the results as I go down the next search way path.

Tricia
 
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Fibropooh replied to missist's response:
Thank you for your reply as it helped knowing that some of the things I am experiencing others have too. The body jerks were freaky at first as well as the electrical shocks I was getting inside my body. I also work a very strenuous job with lots of travel and lately my fatigue is making me sleep almost 12 hours a day. I recently weaned off of ambien due to the side affects I was getting and luckily I am sleeping thru the night but have gone to the extreme of not bring able to get out of bed until 11-12.

The other new symptoms I am having is similar to what others are also reporting so it is interesting to see how many symptoms are intertwined.

I agree that my symptoms change as I have grown older now 54, my symptoms are slowing me down and when the pain is really bad I feel 90.

Will keep on truckin!

Tricia
 
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missist replied to Fibropooh's response:
Tricia..
I too find body jerks and elec. shock feelings really strange. I never had this when I first got fibro--it is a whole new ballgame. I also had a partial remission for several years, but then it came back but in a very different way. - during the remission I did still have some symptoms just not the overall constant pain combined with parrallel 'super painful' areas.. as in both hips or both knees, or both elbows.. etc.

now it is different and it began with clumsy hands and pain in my hands-- from there all manner of weird things.

Anyhow apparently this too is part of fibromyalgia. Go figure!
mary


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