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Fibro - Fatigue - weight loss - no energy
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chicaspixie posted:
Hi all,

I am 42 and have been diagnosed since 2008. I have seen numerous doctors, but it wasn't until my GYN check up that I mentioned the tiredness and ask to have my hormones checked. I was already on some pain meds (don't remember what) but no one could figure out what was wrong with me. When I asked my GYN that question, she then asked me do you feel achy. Well yes I do, it feels like the flu. She tested my blood and everything was fine, thyroid was fine, all hormones were fine, I wasn't even close to pre-menapausal yet. YAY ME!! But she suggested I tell my current pain specialist about my concerns, so that very week I did. Once I got through the explanation of what my GYN had said, he immediatly performed the pressure point test on me, my results 16 out of 18, I had fibro, but hey, it only took two years to figure it out.

Now, we began the journey of finding what works, body stretching, ultra sound therapy (i liked that, it was relaxing), the tinge unit, physical therapy, all of which only caused more pain.
Next we started experimenting with various drugs, many of which had of affect what so ever. So now what, not only are the pain therapies not working, neither are the meds. I try to discuss other options and they absolutely do not want to put me on narcotics. I really don't care what I'm put on as long as I can get out of bed and take care of my children.

So, with the help of my PC, because I was sick and tired of the pain clinic treating us more like drug addicts rather than patients which always flared my severe anxiety disorder and I would be freaking out and/or crying by the time I left. So my PC agreed to help and took me off some of the crazy meds they had me on that didn't work and started a new cocktail.

Skipping forward, I had an amazing job that I loved and made descent money, I developed a severe vitamin D deficiency that was so low (17) that the Dr. really didn't know how I walked in there. Now mind you this is the second Dr I saw for the vitamin D, since the first DR told me I was just tired because of the fibro. The wonderful second Dr drew my labs and discovered the vitamin D deficiency and a couple other manageable issues. I take vitamin D religiously because when that happens to you, all you can do is sleep (all the time) That's all I did for months and lost the best job I ever had. About a year later I lost another job to fibro. I was so busy working, taking care of the kids, the house, shopping, and running the kids to every sport and functions they needed to be at. I also have a severely disabled step son who I take care of on a semi regular basis. So with a life such as mine, how do find the time to have a flare, and then you are so exhausted from your life and everyone elses demands and everyone else schedules for where they have to be and when.

It has caused problems in my relationship, though he tries to understand, he really don't but will do what hes told but not on his own. That's an issue inside itself...HA

So my med cocktail is this: Lyrica 150 mg 2x, Cymbalty 60 mg 1x, Gabapentin 600 mg 3x, Lortab 10/500 4x, and Ambien 10 mg at bedtime. I think this is a really good cocktail for me, it seems to work most of the time, however, Lyrica and Cymbalta causes weight gain..
I want to know your thoughts on Phentermine. This is a weight loss drug that has some sort of fibro treatment in it. I went to get some and was told I couldn't mix it with Cymbalta as it would cause serotonin syndrome. I haven't had a reaction to any drug other than it not working. I have tried it, a nurse friend who takes it gave me some and I felt 50 - 60% better. I think I could take this med without the mentioned side effects since I have been taking it for about 3 weeks.

Any thoughts. Could my Dr prescribe it so I don't have to go to a weight loss clinic.

Sorry for the long post...much help needed.
Gently huggs to all!!!
Reply
 
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Anon_10089 responded:
Hello-

I don't know anything about phentermine so no thoughts on that! I mostly wanted to bump your discussion up so you get more comments from others.

Please also read through other discussions regarding weight gain/loss. That has been a frequently discussed topic here.

This is a great place for information and support!
 
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dollbug responded:
Hello chicaspixie and welcome....MiMi in NC...I am sure that soon you will find something that will help you cope better. It does take a trial and error process to find the right combination of tools and tips that might work for you. I did want to comment about the Vitamin D issue. I know that when I first got sick I had multiple health issues but the doctor was treating me for depression and I was not getting any better. My Vitamin D level was either 12 or 14....can't ever remember which. I was not able to sleep any. I also had parathyroid issues as well, along with cervical problems too. Only when most of the problems were addressed did I begin to feel better. It took a very long time though for this to happen.

I did want to say though that you MUST find time for yourself to rest and recoup. You should also learn how to pace, pace and pace even more. It sounds like you have a lot on your plate. I can understand why you are indeed so exhausted. I also have chronic fatigue.

You should indeed be very careful of mixing any kinds of medicines. You might be able to check with the pharmacy about this, if you are unable to speak to your doctor about it. I know that a lot of times these people know what can and can not be taken.

I have done a lot of research on FM....and from what I have read doctors do not normally give pain pills to people who have long term illnesses....perhaps this is why. I am sure that you can find other things which will help you cope better.

I hope you will check out the info under *tips* and *resources* and be sure to review the *member toolbox*.

Take care and good luck.


MiMi
IN GOD WE TRUST....MAY GOD BLESS AND GUIDE AMERICA....

My personal exchanges are Vitamin D and Pain and Wrath of the Dragon....if you care to visit..
 
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missist responded:
I know they say that fibro is not helped with nsaids but I honestly have always found they do help. I take celebrex 2 times a day.

Pain is no longer a big issue for me, still have plenty of other insane symptoms to deal with and fatigue. But for pain-- the celebrex is excellant--also I take amitryptilene, gabapentin, & celexa.

If I had to choose only one RX to keep it would be the celebrex, just wish it was cheaper.
 
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missist responded:
Oh.. also I will stick you on my morning prayer list.
~Mary
 
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An_251620 responded:
Hi I was just wondering if you have heard of savella I have all you have and plus I have asthma and ir bowl des and others things I take savella I used to take cymbalta but it did not work then I tryed savella and it was better nothing every helps exepted for the Lord Jesus he is the only way. Michelle N Mclain
 
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Anon_2912 responded:
I know Lyrica can cause weight gain, so I am not sure how it would work with the diet pill.

Please contact your doctor or nurse and ask if you can take the diet pill or see what they recommend.

Do not do it without the guidanence of your doctor or a health professional.
 
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BetteK responded:
Hi,

Some of us gain weight with age, pregnancy, just having to cook for others whether we're hungry or not. Some of us gain from fibro making it hurt to move and being tired all the time. And some of us gain because of our meds.

It's tempting to ask for another med to counteract the side effects of the ones we are already on. Sometimes that works. Sometimes it doesn't.

You are already taking a lot of medications. Every time you add another to the mix you double the risk of drug-drug interactions. Talk to your doctor about this and listen very carefully.

The other person who can really help you with this decision is your pharmacist. She is a true expert on what each medication can add to the mix. Be sure to check with her each time you add any new med--even over the counter or vitamins. Your life could depend on it.

BetteK (Who also gained weight with fibro.)


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