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What's the next step??
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ljmarshall1231 posted:
I'm seeing both a family Dr. (Who diagnosed me with FM about 2 years ago. We've gone back and forth, trying to get the medications right. Right now, and for the last year, the pain specialist and my family Dr. (working together) have me on 90mg of Cymbalta and 3600mg of Gabapentin a day and it's STILL not working for me. Not to mention the prescription medication my family Dr. gave me for these "God awful" headaches.

I'm maxed out on both medications and still not getting much relief...now what?? A new medication that may set me back and put me back in bed until it starts working?
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BetteK responded:
lj,

There are no easy fixes. FM is a difficult illness for us and for our docs. There is no one right medication that works for everyone. Then, of course, there's the fact that a lot of us have reactions/side effects from every med we try.

Try to be patient. It is trial and error. Most of us wind up with a bunch of different medications for slightly different symptoms. Hopefully, between medication adjustments and the cyclical nature of fibro's symptoms, you will be feeling better soon.

In the meantime, check out some pain management technique books from the library. (Our local library can get just about anything through interlibrary loans; bet yours can too.) There are ways for you to manage the way your pain effects and affects you. The pain is still there. The suffering doesn't have to be.

Bette
 
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dollbug responded:
Hello and welcome.....sorry that you are dealing with so much right now.....MiMi in NC....I think all of us FMers know exactly what you are going through right now. It does take a trial and error process to find the *right combination of tools* that will work for you.....and this does take time and effort.

I do hope you will continue to do your own research on the wrath of the dragon, aka FM.....as you already know it is a mean and ugly illness.

I am one of the oldie goldies here who tried different kinds of medicines in the beginning and like you.....I was still in so much pain. I was not able to find any medicines which really worked without causing additional side effects and I did not need any thing else to deal with. So I continued to do my own research and trial and error process and am now taking only vitamins and supplements and using other tools as well. No....I am not pain free nor do I expect to be....but I am so much better than I was when I first got sick.....now only if I could find something to help with the chronic fatigue that I have.....I would/could be so much better still.

So I have to wonder if by chance your doctor has checked your Vitamin D level.....if NOT, then the first chance you get you might want to talk to your doctor about doing this....low Vitamin D can cause additional pain for a lot of people these days and it can also affect other illnesses as well. A lot of us FMers have found that we did indeed have low Vitamin D and when we finally get the numbers back within the *normal range*....that this does make a difference in our pain level. The good thing about this is that it is really a *cheap fix*.....but it can take time to get it and keep it within the normal range.

I also hope you will check out the info here under *tips* and *resources*.....and also be sure and review the *member toolbox*....which I am sure you will find some good *tools* that perhaps you have not thought of trying before....such as using a heating pad as needed, Stopain Spray as needed, taking a hot shower right before bedtime using lavender bath salts in a stopped up drain....(this helps the body to relax so that you can sleep better)....Good Sleep is so important to us FMers....

Drinking plenty of water every day and watching what you eat is also important....keep yourself on a schedule of sorts might also improve the way you feel....doing gentle stretches or exercises is a good thing also....(GENTLE being the important key word here)...using a foam mattress pad might also help you sleep better.

One of my best things (besides the vitamin D tip) is to learn how to pace, pace and pace even more.....we, FMers, are no longer to push ourselves to the limit or cross our line...we have to do things in small amounts....space them over a period of time.

Staying in bed is NOT a good thing to do.....as this only causes more pain when our muscles get stiff.

Hang in here with us for a while and I am sure you will find what will work for you. We are all different and you should remember that what works for one person may or may not work for you.

Take care and good luck.


MiMi
IN GOD WE TRUST....MAY GOD BLESS AND GUIDE AMERICA....



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