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Sick and Tired of being Sick and Tired
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MsGail2u2001 posted:
As yet, I haven't received an official DX, but am pretty sure that I have suffered from FM since my mid-20's. My motto for the last 20 years or so has been as shown in the discussion title.

My daughter was diagnosed with full-blown FM 9 years ago at the age of 19. I suspect that my mom also has it, but she doesn't trust Dr's anymore so she hasn't sought treatment in years. For about 30 years, she self-medicated, i.e. getting drunk DAILY ("I'm not an alcoholic, I only drink beer.") lol

My maternal grandma died when I was a pre-teen, so I don't know her history and my Mom won't discuss her (they never got along).

I have a consult with a new pain specialist on Fri, 6/21, and will question him about his knowledge and understanding of FM, along with Chronic Daily Headaches, Chronic Migraines, and other Chronic Pain issues.
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dollbug responded:
Hello MsGail and welcome....MiMi in NC and I just wanted to encourage you to be sure and speak to your doctor about getting your Vitamin D level checked....and you might also ask him about the Vitamin Bs as well.

Don't know just how long you have been reading here but Vitamin D can be important for a lot of people these days.

You are probably correct, since your DD has met up with the wrath of the dragon, aka FM. It tends to run in families....or so I have read. Sound like your mom was trying to *drown* hers instead of addressing it. I am sure that there are lots of people who do this. I can understand why people get to this stage in their life, especially IF they can not get any help in coping with the pain. FM is a very ugly and mean illness and it is a vicious cycle, always something to deal with. People needs *tools to use*....and they need a support group as well, with people who know and understand how they feel. Years ago I am sure this did not happen.

I do hope you will check out the info here under *tips* and *resources* and be sure and read the *member toolbox* as well. You will find some good info here that perhaps you have not thought of.

Let us know how things are going with you.

Ask questions and learn all you can about how to cope better.

Trust me, we all understand the pain you are dealing with.

Take care and good luck.


MiMi
IN GOD WE TRUST....MAY GOD BLESS AND GUIDE AMERICA....

 
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Bette_K responded:
Gail,

Did you know that there is actually a book: Sick and Tired of Feeling Sick and Tired. I read it at least 20 years ago and don't remember whether the author had FM or chronic fatigue.

I do remember that it was well written and informative. Perhaps the title is some sort of connection pointing you towards some helpful info.

Sorry I cannot help you more on this book.

Hope your pain clinic visit on Friday is a big step in the right direction.

Some of the "experts" say that there are familial links to fibro. Others don't. Obviously, you would feel better dealing with those who do.

About the alcohol. I have noticed that people use drugs of all kinds to alleviate pain. Booze has been around for a long time. It does ease pain for a while, but as we all know, all drugs wear off. Then it takes more of the drug to give the same level of relief.

Unfortunately, no drug can eliminate FM pain. Well managed, most of us can achieve 50% reduction, though. Hey, most of us would take that and say "Thank you!"

Hope you get your 50% starting on Friday.

Bette


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