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    fibro keeps me going
    iamlinda13 posted:
    I know that sound wrong but when I set down to relax from the day the pain starts to over take me. so I force myself to get up snd do something. Not much just putt around, dead head flowers, water some, smell them and listen to the birds.The pain is still there but my mind is focused on other things for that time. I do hate fibromyalgia have had it for many years. I have taken lots of different meds,taken shot in the trigerpoints, meds for depression at one point I was taking 12 pills aday I finnaly stopped taking all of them. Right now I take antacid pills, blood pressure,
    and a sleeping pill. I have tramadol on hand for the days that get to bad. anyone else know what I'm saying?
    missist responded:
    I hear you.

    I wonder sometimes if I have chronic fatigue too-cuz I really get too tired to keep going--pain or not.

    so weird.
    iamlinda13 replied to missist's response:
    I think it is all part of beast. As most of us fibroees you can wake up dead tired. Many mornings I set up ready to get out of bed and crawl back in. It has been much easier sence we retirered 2 yrs ago. Stress from work demands of family all factor in. In my case I always put everyone and everything ahead of my need (not smart with fibro) so I made it harder on myself. At age 62 now I can and do slow down (wish I had figured that out yrs ago)
    Anon_2912 responded:
    I totally understand the "quit taking the pills" ..I stopped all of mine as well one day...Too me they made things worse for me mentally then they did help with the pain.

    Too me too many side effects....were NOT worth the little relief I got.

    I push myself all the time. But I don't mind...I take ambien for sleep, but only because I developed hyper/graves 20 yrs ago that left me with severe insomnia.

    For pain I take about 12-16 200mcg advil a day, NOT at one time usually 3-4 apart for my muscle pains, but I think those are due to the thyroid medication.
    slovene54 responded:
    I know exactly what you are talking about!! Mine comes like clockwork every Friday night after a week of work the second I sit down the head pain kicks in. Usually really sick over the weekend and wake up fine(fine as fibro lets me) Monday morning. Blessed because the worst happens on the weekend so I can still work full time. I use essential oils and lifewave patches a lot to help. Much better than pills!! Tried tramodol horribly allergic. Had worst headache of my life!!
    iamlinda13 replied to Anon_2912's response:
    I have been using a unit that sends pluses where ever I stick the pads. It has different setting. I control how hard or soft I want it. I do like it , it can be relaxing. Husband got it for his back pain , and I saw it was for fibromyalgia so we both use it . I think it was a good $235.00 spent.
    booch007 responded:
    I am so right with you!

    That med distractionis strong and more powerful then a pill with NO side effects!! Moving is our best defense and I do better each time I push a bit more. I am defenitely doing more now then 10 years ago. SO I PUSH ON.

    We are the strongest people I know.

    I never thought this would be my path of challenge in all that could have happened to me. I knew the B/P was coming, the vein issues...but not this. Mom had I am almost positive after hearing her statements. Now she has been gone a long time and all I have is memory of things but I share this with her.

    Good for you to get off your meds. It is not possible now with me. I work and push too much during the day to ask my body to follow. So I need to stay the way I am for a bit.

    Thanks for posting this, it gives people hope. Nancy B
    dollbug replied to iamlinda13's response:
    Hello and you have the *tens unit*? I have also used it as well....especially on places which just will not quite hurting, no matter what we do.

    I also wanted to comment to you about your DH and back pain.....does he still have it? I had it for a very long time....and the doctors could not find anything wrong, except that I had kidney stones in both, but they were not causing the lower back pain, according to the specialist that I went to. Anyway I wanted to share with you what I found to work. P5P....which is a vitamin B 6 processed form that our bodies can use. You get these at the vitamin store (around $10) less than 2 weeks my back pain issue was fixed....I do have to continue taking them every 24 hours though OR my pain returns. I still do not quite understand the complete connection but I know it works for me.

    I also want to add....have you had your Vitamin D level checked? This is important to a lot of people these days....low Vitamin D can cause additional pain and it can also affect other illnesses as well....Do your own research as you might find it quite interesting...I know I did.

    Take care and good luck.


    iamlinda13 replied to dollbug's response:
    Thank You I will look in to the p5p. Yes it is a tens unit. we both love it. I have had my vitD checked it is ok but at the lower end of the scale.

    Stay well.

    Helpful Tips

    Vitamin D level checked ***
    I encourage everyone who is having pain problems to ask your doctor to check your Vitamin D level......a simple blood test...and so very ... More
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