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Fibromyalgia treatment techniques?
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shugie posted:
To my fellow fibromyalgia sufferers: Has anyone ever been forced to endure a series of epidurals by their pain management doctor?
If so, did anyone find them more harmful rather than helpful?
Today I was faced with an ultimatum by my doctor; start the epidurals or be discharged as a patient of the practice.
I honestly felt as if I was in some 3rd world country rather than America.
My choices: epidurals or refusal of treatment!
To add to the misery my epidural was done in office without the aid of x-ray...my doctor was basically guessing whether or not he hit the correct spots!!!
I would appreciate any feedback.
Thank you.
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missist responded:
that's quite something isn't it? I'm having a lot of 'thought' about the issue of one's relation to one's doctor.

I have a dr who seems to call pretty good shots when it comes to RX meds, I've had better pain relief than usual. I'm not happy with his manner of handling me though--he marked down on my chart that my diagnosis is stress! He has yet to have a 'conversation' with me--only tells me what he is doing after he asks a few questions.

I'd like to be part of my treatment plan, I'd like to even know if there is a treatment plan.. I mean is this just it? etc.

I am appalled by MOST of the docs I've met over the years. I've had just a couple in my 54 years that actually 'LISTEN" which doesn't mean they got it all right--but at least I felt like they had some sort of respect for me as owner of my body.

Apparently you have one of those drs who feels uncomfortable with the idea that there are patients that aren't instantly cured--but have chronic issues that change over time.

It is not easy to find a doctor that is exceptional when it comes to chronic pain issues. Exceptional means--someone who doesn't get miffed at the patient who is not feeling better and dares to still have problems--and even--GASP! isn't willing to say 'yessir' to every idea, after having been through a variety of treatments that may or may not have helped.

People with Chronic pain issues know more than anyone that the Doctor is NOT always right.

so--that's my little 2 cents. I wish you luck.

Looks like he only has one trick up his sleeve.

Mary
 
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dollbug responded:
Hello shugie and welcome.....*forced to do something*....you should remember that you are paying for the doctor's services....(I am assuming what the doctor does is NOT free)....so you should indeed have a say in what you may or may NOT want done. Over the years I have figured out that doctors DO NOT HAVE ALL OF THE ANSWERS....(not even close)

I have to tell you that when I first got sick, my doctor was treating me for *depression*....funny thing is that it seems to be a common thing that doctors think women have depression a lot....so I guess most of us are never really sick to begin with. Anyway....I went along for a while and took whatever the doctor prescribed....until I figured out that what he was doing was NOT helping me. So I finally decided to do my own research....(afterall, computers these days can provide all sorts of answers)....anyway I decided that I had parathyroid problems....and discussed this with my doctor, who disagreed....anyway....I was get sicker by the day and decided that I had enough taking pills which were doing no good. I decided that I wanted a scan that would decide whether or not my problem was indeed parathyroid. I then had to actually *demand* that this test be ordered for me. The doctor still did NOT think I should have it.

Long story short....I ended up having surgery within a month of my visit. The surgeon later told me that my blood calcium was 88 on the day of my operation....(almost 10 times what it should have been) and that I could have had a heart attack or a stroke.

OK....I still go to this doctor and we do NOT talk about not getting things done that I ask about anymore. I think the doctor decided that I really do know more about my own body than he thought I did. (I think we all do)

If you are not satisfied with the treatment you are getting, then I would start looking to find someone else. Good doctors are hard to find though. When you find someone really good....it will make a BIG difference in how you feel.

Take care and good luck.


MiMi
IN GOD WE TRUST....MAY GOD BLESS AND GUIDE AMERICA....

 
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BetteK responded:
Shugie,

Do you really need THAT doctor? Would your family practicioner be willing to write your pain scripts? That's what my hubby wound up doing.

Speaking of our FP, you weren't on here when I told about a talk I had with him. I came right out and told him it seemed as if he wanted nothing to do with my aches and pains. He said he just felt bad because there was no real help he could give. It made HIM feel like a failure. Talk about your aha moment! I still go to the pain clinic for my nerve blocks (done in the O.R. with flouroscope guidance, thank you), but trust the FP for a lot more of my care.

BetteK
 
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newgrandma1953 responded:
Dear Shugie, I have had a epidural. To be done correctly it requires a x-ray machine to locate the exact location the MD is aiming for. I did not find it helpful. I strongly suggest you search for a another Pain management Specialist. YOUR WORTH IT! God bless you. Carol
 
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booch007 replied to newgrandma1953's response:
I am going with Bette. TALK to your Internist and TELL him what is going on in that office. No one can say...do this or you are out.

He frightens me. Doctors create a plan of care and then approach you. Epidurals in the office probably yeild big $$ so that is why, as an out patient under flouroscopy the hospital makes the money and he get the procedure side income for the actual shot...probably 200.00.

This is dangerous to you as he can be in the wrong place and it can get sketchy.....RED FLAG from me.

Call your MD and see what his take is. My doctors have always said lets try....and if I say I am not ready it was put to the back burner and we went a different road. When I failed Cymbalta so badly...my Neurologist said, OK no others in that class.....then I met my new MD and she said Savella is a different med in that class and we looked it up...discussed and I went for it. LOVE IT for me.

So you have to work with the doc, not be BOSSED BY the Doc.....sounds like he has no other tricks in his bag, or it is the income driving him for doing these procedures....

Good luck and I am sorry you are in this predicament.

Nancy B


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