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Thanks to everyone who replied..alien abduction post.
An_249675 posted:
Thanks to everyone for your replies. I am very grateful. I am a member here and have been for some time. I have been struggling for about 3-4 yrs., although I have had fibro for at least 20. This is a new go-round for me. The frustration of not being able to find the right help is making me crazy. My biggest problem I think, is that I have lost hope. I have seen 3 different rheum. drs and several pain specialists. They don't get it that I can't take the drugs. They don't reduce the pain and the side effects are too severe. I have taken morphine and it didn't stop the pain.
Sometimes I get so discouraged when I read about everyone's situation here that I just stop coming on the site because it's just too much to deal with. I have no support from my husband or my family. I am dismissed because I can't and would prefer not, to take drugs. I have no extra money for alternative treatments because I can no longer work.
What I do is - walk for 30-40 each day. Take hot showers twice a day. Use a heating pad at night. I have cut so much from my diet that I feel malnourished. Watermelon I found, sends me into spasms of pain. Who would have thought? I do take 2000 IU of Vit. D and 1000 of B12. I had to search for a long time to find these supplements that didn't make me sick. Take a look at what's in some of the supplements. Wheat, soy, gluten, dairy, colouring, palm oil, gelatin etc. Vit. D drops that are supposedly recommended for children made me so ill I thought there was something seriously wrong with me. I got better when I stopped the drops and found one with only olive oil. I read a lot and try to be positive but I guess not having support is the hardest thing of all because I am expected to do thing I cannot do any more. I am at home after all, doing nothing.
Why anyone would make this up or want to be like this is beyond my belief. It happens to all types of people and has nothing to do with laziness. There is a connection between depression/anxiety and fibro. but it's a "which comes first", situation almost. I am an educated person and I have researched and do all I have done on my own initiative. My problem is not so much with fatigue as it is with ongoing, relentless pain, day after day the same thing. If I could take a med. to find a bit of relief from the pain, I would.
I have so much sympathy for everyone struggling here. If you are able to continue working, I applaud you. If you are basically alone with no support, no money, no treatment alternatives, no pain relief - then where do you turn?

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