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An_253932 posted:
At present I am experiencing a lot of pain in my ankles. I have also had pain in my knees, hips and other parts of my feet. In addition I hate loud noises and bright lights. My doctor won't do anything about my ankle and the physios are baffled. I think I might have fibromyalgia. However I think my brain tumor tends to overshadow that and specialists attribute my problems to the tumor. How can you get a test for fibromyalgia?
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missist responded:
Hi, there actually is a blood test now--but I don't think it is very widely available. Usually what is used is a tender point exam by a rheumatologist--although any dr who can read could find out easily how to do it and do it.

It also includes however ruling out other issues.

If you have a brain tumor--there are a lot of symptoms that might be caused by that. Also depending on what kind of battle you are engaged in with the tumor-- doctors may feel that this is not the time to worry about a potential chronic pain disorder-- if you have fibromyalgia-- you will still have it after your tumor is dealt with.

What have they said about the tumor?

Will add you to my prayer list.
Mary
 
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missist replied to missist's response:
Adding a little info--
I've had pain in all those areas too at different times.

#1 help-- get some good shoes with an arch support and that tie. I use asic sport shoes, find a good shoe store that has athletic shoes and can properly fit you & give you an arch support to insert into the shoe.

#2 stretch leg muscles several times a day.

#3-- if your ankles are swollen make sure your drs know as it could be water retention or even RA.

#4 don't take any over the counter stuff w/o telling all your doctors in case it may not work well with other drugs they are prescribing.

Good luck!
Mary
 
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RoselynK replied to missist's response:
Hi Mary. Thank you for your good advice. One of my friends mentioned that he liked asic shoes just the other day which helped with his flat feet. Tumorwise, it looks like the tumor has to stay there but it looks like it probably won't grow and trouble me anymore. However, I must remain on steroids, HRT, Thyroxine and desmopressan for the rest of my life. The odd thing is, is that my ankle gets more painful when I feel stressed. So I am going to look at alternative therapies to reduce inflamation of my nerves, i.e., reduce the effect of whatever frequencies in my environment which are not liked by my nervous system. If they can use gamma knives and radiation in surgery then I feel that mayby frequencies in our environment can affect our physical and mental being too. I am just being speculative. And yes I do need to stretch my leg muscles.

Keep well.
Roselyn
 
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missist replied to RoselynK's response:
Hi Roselyn,

Glad your tumor is not worse. My dad died from a brain tumor--so always leary of them. His was different though.

If your ankle problems do turn out to be fibro or nerve related-- there are a lot of options for helping with it.

Nice to meet you,
Mary


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