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UGH! HELP!
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msoveranalyzer posted:
So I was diagnosed a few years back with fibro. I've seen specialists and I've seen my regular family doctor, I've had no help. I recently got a new job with worse insurance than I'm used to and the meds that I was put on is no longer affordable. I've gone 3 weeks now without any kind of help, I've done all the at home remedies to help feel better etc...with no help. I sit here now, barely able to see my head hurts so bad and barely able to walk anymore since my pain everywhere else is tremendous. Any helpers out there that can give me some ideas on how to treat this since I'm financially unable to pay for any kind of medication?? I'm open to most things, I don't have alot of money as I have 5 kids to support and my new job was a HUGE pay cut for me, so seeing a doctor and getting my meds takes half of one of my checks which I need to support my kids. I need some kind of help, I'm barely on function mode lately which is throwing me into a very depressive state and the little energy I do have, takes everything I have to work and get through the night with my kids till it's bedtime. I've not too sure what else to ask or what other information I might need. There really isn't an option for me to see any other doctors as my insurance forces me to pay out of pocket for everything, and I just don't have it now. I'm in urgent need of help and I fear if something doesn't happen soon I'll not be able to work or support my kids the way I need to. Thanks everyone!
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ajnsmom responded:
Hi, I'm sorry to hear of your pain! I'm sure you will get lots of advice on this site. The people here are friendly, helpful, and kind! Mimi mentioned Stop Pain Spray and I think she said you can get it at Walmart. Also you may want to check out Walmart's prescription drug list and see if your meds are on the list. If you tell them that your insurance won't cover your meds, they may be able to let you buy the meds there, which is a lot cheaper than other pharmacies. In the meantime, I'm praying for you!


Linda S. (Jax, FL)
 
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dollbug responded:
Hello and welcome. MiMi in NC. So sorry that you are dealing with so much right now. I do hope you will check out the info under *tips* and *resources* and be sure and read the *member toolbox* as well. I am sure you will find some good *tools* that will perhaps allow you to cope better.


You do not say what medications you are on or have tried...but I do want to ask you if you have tried taking vitamins and supplements? I know that I have learned how to *control my FM pain* by doing this.....along with other things as well.


I take Magnesium Malate and Fibro Response which I get at a vitamin store. I also take P5P which is a processed form of Vitamin B 6 which helps me with my back pain. Taking a hot shower at night using lavender bath salts might help you to sleep better. If you are too tired to shower then at least soak your feet in it....which also helps.


Drinking plenty of water each day is also important for me. Doing gentle stretches and/or exercises is also good....GENTLE being the important word here.


Stopain Spray is good to use when you have places which just will not ease. You can get this at walmart for under $10.


Vitamin D. Have you had your Vitamin D level checked? I know that low Vitamin D can cause some people to have additional pain and it can also affect other illnesses too.


Regardless of what you decide to do...it will take at least 6-8 weeks for your body to get the full potential of what you are trying....so anything takes time and effort.


Do you have any family members who can help you with the things you must do? Are any of your children old enough to help you? It is really important that you try to get the rest that you need so that your body can repair itself. Sleep is so very important for us.


I hope things will get better soon for you. Try to stay positive and know that this too will pass. Things will get better for you.
IN GOD WE TRUST....MAY GOD BLESS AND GUIDE AMERICA....

 
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bette_kaffitz responded:
Hi,

It sounds like you are in a major flare brought on by your new job--and any new job can do this, even the great ones--and the changes to your meds. It's a dirty rotten shame, but now you have to deal with the way things are.

We all have our favorite things to cut down a flare. One of my favorites is heat. I swear by my 2 X a day bath/shower. Remember the Roman baths? Way back then, people knew how much warm water helps. Those fancy spas of the 19th century were just nature's hot springs (usually sulphurous, smelly ones) where the super rich of the time got their warm water treatment. Some of us add special aromas (lavender, etc,), but we almost all get a benefit from the warm water. In our modern world, most of us take a morning shower and do our hair then. If you add an evening tub bath right before bed, you may be amazed at how much better you sleep--and we all know how much sleep contributes to the good and bad days of fibro.

If you have one of those microwaveable gel heat packs, try applying one (under bra straps, in the waistband of pants, etc.) and letting it soothe you while you fix supper.

And if you haven't figured out yet that your house does not have to be perfect, it's time you do. Do what you absolutely MUST do for your own sanity, and leave the rest. Nobody ever died from a few cobwebs in the corners (where you can't get them without major shoulder pain). Get your kids to help, too. It's their house, too. Responsibility is good for children. (Ask any farm family. Teachers can tell the farm children in their classes by the sense of purpose these kids have.) And, if you have sons, who do you think will clean their apartments when they are single and working? Who will fix their suppers? They need these skills as much as girls do.

Now, let's talk about attitude. You are in a bad place. It will stay bad if you continue to let it. Accept that things have changed. The sky is still blue. Birds still sing. You still have your children. Do whatever it takes to MAKE yourself a happier camper. Watch the Golden Girls reruns. Listen to your favorite music. Play a board game with the kids. Go for a walk. Whatever makes your life better. Do it for your kids. Do it for yourself. You deserve it. You need it. Everyone deserves a little joy in her life. Those of us with fibromyalgia need it--every day.

Bette
 
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missist replied to ajnsmom's response:
Hi msoveranalyzer,

First off-- what RX (RX's) were you taking that you can't afford? Did they help at all?

That info can help with trying to figure out what else you might try.

This is a really frustrating disorder- I've had it about 30 years and there are some here that have had it longer. It changes, it has co-morbidities--so there's just about always something new to deal with unfortunately.

Many of us do find some combination that at least makes life more bearable. Some get really lucky after a lot of work to find the right thing and feel pretty good, are able to carry on almost a normal life. Others are in bad shape and end up disabled. There's not much right now that will even predict that.

Dr's are often really inept with this--some don't even want to deal with it, others have pet theories that simply don't fit everyone.

Drugs-- some are reccommended but so far those that have been approved for fibro are very spendy as they aren't in generic yet-and simply don't work for everyone.

These are just the facts--so we all have to start at that point and then educate ourselves by talking to each other and researching on our own and doing some experimenting. It is not at all uncommon to go through a long list of meds and treatments before we find a combo that works for us. Sometimes after we do that--something new happens. LOL---you will learn to be patient with this--cuz by golly as time goes on, there's just never going to be a perfect solution.

On the bright side there is more and more research happening-but even that is sometimes tainted and not done as well as it should be.

I hate to bear bad news--but the sooner we all face those facts the better--cuz then we can start really figuring out what we do need to do to have the best life possible for us as individuals.

This community is a great starting point for getting your life with a chronic illness to start improving.

Hints how to get the help you need here-- ask specific questions about specific issues--like what have others done for headaches--those aren't one of my particular bad/awfuls--so I'll let others chime in on that.

Other things--what makes walking hardest? hips? knees? feet? there are solutions others have used that might help you too-- and everyone who comes here seems really willing to share info--so just hang in there and don't give up, check back, clarify your problems and people will do what they can to help you.
Mary
 
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kittymommy responded:
You must be so overwhelmed! I'm so sorry you find yourself in a very difficult situation. Regardless, you CAN find ways to help yourself.

I understand you cannot afford expensive medicine with 5 kids to feed, you are one of the "working poor" who might find Obamacare to be advantageous. I don't qualify, so I don't know what it does or does not cover. Maybe your State doesn't participate? Find out!

It have heard in the past that Walmart will dispense generic medications for only $4. CVS or Walgreens had $5 Rx's for generic.

You need to get your doctor to send prescriptions to one of these places. If you have a doc who has prescribed for you before, you should not have to go in to see him/her, you should be able to get a message to him/her. You should not have to visit very often if your condition has gone on for a long time, unless something happens that the doc needs to address.

You should never stop medications cold turkey, that really worries me, especially anything you might take for depression.

Have you checked your local area for food disbursements from the Food Bank? That is an important and it sounds like a necessary resource for you, with 5 kids. You may qualify for Food Stamps, and the kids may qualify for insurance from your State. Wish I know more specifics, but maybe someone else on this site will have helpful info about that.

Swallow your pride, we all need help sometimes. There ARE programs out there to help, and there's no shame in that. Your local churches may give out donated clothing.

You will feel like closing up inward because of depression, so I urge you to take action NOW. Once you start to find resources, you will feel more encouraged and supported, and will feel comfortable seeking out other resources.

If you have children, is any of them old enough to babysit, do laundry, yardwork, or other things nearby to ease your economic situation some? At 15, a teen can get a work permit & work up to something like 18-20 hours per week, I believe.

Just some thoughts off the top of my head.

There is help, remember that. It won't be easy, but with the internet, it should be easier to find than ever.

Best wishes.
 
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penski responded:
Find out from the manufacter of the drug you need if they offer any assistance sometimes if you can't afford it they may help. I did this for my mom's heart medicine when she was alive and she got assistance on the cost.


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