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    Peeved about doctor's appointment?
    rowan73 posted:
    Has anyone else been peeved about an appointment?
    I had one yesterday. I was referred to a cardiologist from a neurologist because I'd had a holter monitor test that had some abnormalities. Tachycardia, brachycardia, and some extra beats to boot. The test was run because I have been having so bad of dizzy spells and weakness after exercise that I'm falling down and bouncing off walls to stay upright.
    Now, this cardiologist appointment. The nurse asks her questions. When I told her about diagnosis of GERD, she said we all had it, with IBS-just eating wrong. Cardiologist said it's. Just vertigo. It will
    Smile you're never alone, and laughter is the best medicine. As Bobby McFerrin said Don't worry, be anthem for me...remember stress makes it worse ;)
    rowan73 responded:
    Oops. It will go awAy (vertigo) or it won't. She took a call from her daughter during the appointment! Told me if I was out of breath, outta shape. When we told her it was getting worse she said that with my pills that I'm taking she wouldn't add to it. That I. Can respect, but she ended up just telling us (my mom went with me) to go to Mayo Clinic. That no referral was necessary. I guess ya just walk right in, huh?
    To boot, I live in Michigan. It's about 6 degrees with a 20 below wind chill. And it was a blowin'. Big Oww! Sorry but had to vent for a sec, and ask...have any of you had an appointment like this?
    Smile you're never alone, and laughter is the best medicine. As Bobby McFerrin said Don't worry, be anthem for me...remember stress makes it worse ;)
    missist replied to rowan73's response:
    Hi Rowan 73,
    Very odd appointment. What do you need Mayo clinic for? Didn't she say? Kind of a far drive don't you think? Hope you are ok today. Gerd actually--my mom had that and very occassionally I have had some acid reflux so I do feel for you that's kind of nasty. I do think you may not 'cure it' with diet but you can avoid some of the attacks with diet. I had some trigger foods I realized were a problem. No ice cream or chocolate after 6 pm.

    Anyhow that was just for me-- don't know what your triggers are. But I do know that just eating one fresh apple can kill heart burn on the spot. I used to do that when I would take my celebrex.

    i hope things go ok for you, Dr appointments can be a 'mixed bag' i left one years ago in tears cuz she was just horrible. Told me Fibro was not a real disorder, would not give me the referral to the rheumy I needed and suggested a psychiatrist. Neato. I did not see another dr after that for 10 years-- which sometimes I wonder if that was a better way to go.. but no seriously.
    dollbug responded:
    Hello Rowan and welcome. MiMi in NC. You need to find you a doctor who treats FM. As you probably already know there are some doctors who do not even know what FM is, much less understand how to treat it. You must take control of your health issues. I think vertigo just might be part of dealing with FM. I know that in the beginning I had it as well. (I fell twice outside and broke each of my wrist - at different times, thank goodness).

    It seems like the doctors are trying to send you somewhere else to get treatment. I can NOT even imagine doctors telling patients to go to the Mayo Clinic, without a referral first. Could your medicine be causing you problems?

    I hope you will try to follow up with someone though about your tests.....someone who will explain things to you.

    I would also encourage you to be sure and ask the doctor to check your Vitamin D level too which is important to a lot of people these days. Low Vitamin D can cause additional pain and it can also affect other illnesses as well.

    I hope you will get some answers soon. Just remember that if you are not satisfied with the doctor, then find you another one and get a second opinion. It certainly pays to do this.

    I think we have all had doctor's appts which did not go like we expected them to. I know that I have. I also know that I ended up taking *control of the situation too*.

    Hang in there and I hope things improve soon.


    franr responded:
    Hi Rowan

    our letter caught my attention. About a year ago something similar happened to me. I was very sick my BP was elevated and I has having a cardiac arrhythmias.My labs were all off and the fibro was full blown. I could not swallow and I was chocking all the time. I was in and out of the ER every few weeks with low potassium. I lost 20 pds.This in turn set off the arrythmais. I was admitted to the hospital that I had formally worked. They did every test and came up with nothing saying I needed a psyh consult.Well my neighbor who is a surgeon who had me transfer all my records to Lahey Clinic Medical Center. With in one week they found the problem. I was having largeal spasms of the throat which caused an erosion.They put me on a diet and a med and in 6weeks I was better. I then saw a pain specialists who was very sympathetic and put me on a long acting neurotin to treat the fibro. My previous med stopped working after 20 years..I am 85=90 % in remission with the fibro. So advocate for your self. Find a new MD who can work for you.Drop the cardiologist and have your primary find you a new one.It maynot be cardiac but don't delay it could be anything . Medication, vertigo etc. Keep us posted. Good luck Fran
    Anon_10089 responded:
    Hello and sorry for your experience. As the others have said, don't let that one bad appointment stop you from getting help. But if possible, have you thought of submitting a complaint about this doctor to her hospital/medical group? It is outrageous that she took a personal phone call during the appointment, not even to mention not seriously addressing your concerns!

    Also, the nurse is absolutely wrong about GERD. I had it when I was a teenager and of course received the same kind of run around. Then a doctor actually thought to run some tests. The tests revealed that my esophagus did not function correctly. I ended up having surgery for the issue. This is why I would have reflux after drinking water (which I knew the first few doctors did not believe)! Of course diet can have an effect, but she shouldn't be making such blanket statements.

    I hope you can find a better doctor to address your issues. Nobody deserves to be treated like that!
    booch007 responded:
    Good morning,

    First thing I want to say "she most likely is NOT a nurse" MOST MD's have MA's (medical assistants) Trained by them off the street or that they took a small course in a community college to get certified. Not saying that a nurse can't mis speak, but I really know the pay scale for an RN is uncommon in an office.

    You should call and ask....are there RN's working in this office?

    OK then I find it unusual that the cardiologist gave you the vertigo diagnosis as it is the neuro we send people to for the "real label of vertigo"....LOL. And yours was the other way around.

    I think here I should tell you my background. I was the charge nurse of a Cardiac ICU in a large Medical center here in NY and when I got sick with this, I went to so many physicians to get a diagnosis. With all my connections and knowledge I can't tell you, there are so many stupid things people can say.

    One told me I lost the fat pads to my elbows and that is why I had numbness to my hands, and by the way need to lose more weight! I cried in the parking lot after that visit!

    I had many advocates but no answers. I finally was asked to see a new partner in the neurology practice from Boston. SHE WAS MY CHAMPION PHYSICIAN. As I spoke of swallowing problems and choking in bed when I lay down , she knew right away! She knew why the fingers were numb to my hands. It is now over 15 years that I have learned more and more about me and my issues. I bought the medical book she was using and READ IT....and Dr Devin Starlanyl's books

    So, yes.....I think we have all had a bad appointment or found crazy staff that work in an office. The MD should know what any staff says that is judgemental or diagnostic by them. B I G.

    My wish for you would be to get some education as well, it empowers you and I lean on this one book so much.
    FM and Chronic Myofascial Pain by Dr Devin Starlanyl.
    It was on Priceless for me. I have 3 of her books.

    It helps you to filter when the doctor is needed and how to explain yourself. It teaches you meds and assistance with self help ideas. (Thinking that she used us as a resource for writing as some of our tricks are in the books....interesting).

    But, I wish you well and now know that most likely nurses are not with you in these offices. My Internist had a woman who was his MA and called in the prescriptions and renewed fthem for patients and she never graduated from high school. Running an office is a business and less is more for them. So a lower salary helps the business. Truth...sad but truth.

    Be proactive and ask people, what is your title....are you a nurse. If yes, where did you go to school? Nice to know who is your care.

    I am now the Supervisor of Clinical Issues in our large Cardiology paractice. I oversee the MA's and can see the education is varied and some are real sharp staff and others need overseeing. I cringe when I hear the front desk page for a nurse...and they are looking for an MA. It has changed now.
    Credentials are ON the staff. Our patients know who they are talking to.

    Good luck, I hope your next go around is better.

    Nancy B
    rowan73 replied to dollbug's response:
    Hello MIMI,
    I appreciate you responding. I know how busy you must be. I was seeing a rheumatologist back in '06 but had to discontinue when my divorce completed. FM struck again. The doctor was treating me for vitamin D and B-12 deficiencies. But now I'm on medicaid. I also live almost 2 hours from any decent healthcare. My primary care is ok. But likes to flirt (he's 67). I need a new one, seriously. My last primary care passed away unexpectedly and my prior physicians all retired.
    The area we live in is pretty ignorant. I have shown the results of tests and brought up questions, while having research in my hands, and have been told that the annual physical showed no need to follow up. I have had a lot of problem with the treatment of my two disabled and ill sons. I need help. But more so, patience. Diligence. Persistence.
    I think that the suggestion of Mayo may have been because of this all encompassing ignorance. I just need to find the right primary care.

    PS: I have been slowly reducing the dosage of Cymbalta and my bp and pulse have lowered. I hope it didn't do any lasting damage.

    YOU STAY WARM! zen hug/air hug

    Smile you're never alone, and laughter is the best medicine. As Bobby McFerrin said Don't worry, be anthem for me...remember stress makes it worse ;)
    rowan73 replied to Anon_10089's response:
    HI! Unfortunately, this attitude is very common to the medical practices in my area. This is considered to be good "bed-side manner". This was my first appointment. And my mother was my escort. Maybe that was why they thought it was ok to be so patronizing.
    I'm also using a cane at the moment because of the snow/ice and problems I'm having since a fall on the ice last week. Maybe they figured I'm a hypochondriac. I think that many medical professionals see "Fibromyalgia" on a page, and automatically associate this with hypochondria. Unfortunate for them, I have to believe that if they knew how difficult FM is to live with, they wouldn't be so flippant. And would feel terrible. PEACE and Love to them.

    And Thanks and Great Days to you, Anon_10089!
    Smile you're never alone, and laughter is the best medicine. As Bobby McFerrin said Don't worry, be anthem for me...remember stress makes it worse ;)
    rowan73 replied to booch007's response:
    Nancy, You are Wonderful!
    I have the book you're talking about. Second Ed. I have taken it with me to several appointments.

    A few things about me. I'm 40. I have a B.S. in Conservation Biology, and was only a few classes out from a bachelor's in Anthropology. I was on the Dean's List at my university. So, I'm not lacking education. (I say this because the doctors must believe me to be otherwise).
    I have two son's. Both pregnancies were very difficult. Hyperemesis Gravitadum. My first son was diagnosed with hypotonic cerebral palsy before he was one. He had 7 specialists at one point (had a very thorough pediatrician). Unfortunately the same (almost negligent) patronizing lack of attention (I say it this way because the only attention I received was given in a patronizing manner) would continue.

    As a lot of us with FM have found, there are a lot of idiots out there. I found more with our local school system. It took almost 3 years for the school to acknowledge that my son was autistic. I knew at once he was special, but the flapping and pacing by 18 months sorta clinched it. LOL"026
    I was told that all their results told them otherwise. When I pushed them for a more detailed answer, they told me he was too intelligent. OMG!! It was their belief that he would have to have mental retardation (I prefer cognitive impairment), in order for him to qualify. Thereby getting him the services he so desperately needed. PT, OT, Speech therapies. SUCH IGNORANCE AND PREJUDICE!!

    My experiences with FM prior to my sons births helped give me the empathy for what they would need. But the ignorance and prejudice continue. I have FM and am being treated for Depression, so by their eyes I must be a hypochondriac. I can't even think to tell you of some of the treatment we have received and continue to receive. I have learned to be an advocate. But"026where to go next"026.hmm"026SHOPPING! for proper treatment, respect, and a team-like attitude.

    PS: If I remember correctly she was an RN. (scary, huh?)
    I also did as I have learned to always do, I taped it. digital recorder"026and they knew I was doing it. Go figure"026.

    You have a wonderful week and many pain-free days!
    Smile you're never alone, and laughter is the best medicine. As Bobby McFerrin said Don't worry, be anthem for me...remember stress makes it worse ;)
    rowan73 replied to franr's response:
    Hi! Thank You for writing. I'm not going to ignore the abnormalities. I am only 40. The women in my family live past 90. I won't forget it. But I have been on Cymbalta. I have decreased the dosage (talked to prescribing physician first), and have found my bp return to close to normal. Still dizzy and tipping. And everything else.

    The kicker of the appointment" a way of trying to show good beside manner, the doctor told us a personal anecdote about how a person she knew had closed-head injuries and was in a wheel chair. And how fatigue would effect the person's symptoms, and perceptions. Kinda twisted, huh? The doctor not only patronized me in front of the person I had drive me, but used emotional manipulation of what I felt was a bigoted manner. Needless to say, I will tell the tale of my appointment to any who consider going to her. Her skills may very well be excellent, but the bedside manner needs a little work.

    I hope I can find what you have, and have some intelligent medical connections soon. This flare up has been going for nearly 2 years.

    Have a great week!
    Smile you're never alone, and laughter is the best medicine. As Bobby McFerrin said Don't worry, be anthem for me...remember stress makes it worse ;)
    rowan73 replied to missist's response:
    Hi! I love Celebrex. But have not been able to get anyone to prescribe it in almost 10 years. I have gone to "doctor-free" route. But things are escalating.

    I do need to get into a pain management clinic or doctor's office. I have 3 herniated discs. One in my neck. Two in the lower spine. The spinal canal is being impinged in 2 locations. Plus the FM.

    I have the FM combo of IBS, Gerd, migraines"026.So, oral pain meds will have to be able to be held down. With my digestion system, eating before or while taking some meds is compulsory. But doesn't always help.

    I hope that things are good for you. and stay that way.
    Stay warm in this cold season. Have a good weekend!
    Smile you're never alone, and laughter is the best medicine. As Bobby McFerrin said Don't worry, be anthem for me...remember stress makes it worse ;)

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