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New FM blood test
schrode posted:
I heard on the news about a new blood test that shows the markers for FM. I looked up the article

They did a study with over 300 people and state that they can show FM with 99% accuracy. Of course more studies need to be done, but it would be nice to have proof for those that think it is all in our heads!!

Soft hugs,

We must let go of the life we have planned, so as to accept the one that is waiting for us. ~Joseph Campbell
dollbug responded:
Hello Deb. MiMi in NC. I wanted you to know that the test is really expensive....I think I read it is over $700 and insurance companies are NOT on board to pay for it. I was in a clinical study and the man told me that the companies will not even pay for this test to be done.

It will probably be a long time for the insurance companies to decide that the test should be provided.

I am not sure that 300 people is enough to say this was a good study. I do know though that some studies are done with even less people.

This will be something interesting though to follow.


booch007 replied to dollbug's response:
I put a LIKE on Mimi's note.

This is probably like getting Substance P found in our spinal fluid......need to go to a research facility and get it done.

Alot of money, but if I wasn't diagnosed yet....I think I would have gone to where ever and paid it to get the answer.......

Those years of looking waiting and seeing so many doctors. It is priceless.

I hope they open this up for more research and trials and it can become the marker for FM diagnosis in the future. It will save so much leg work and money. In reality Mimi 700.00 is LESS than the MRI's and EMG's and labs in total that were sent on me over the years.

Also peace of mind for the answer we seek.

IT ALSO MAKES US REAL....a test that says yes or no....
P R I C E L E S S...........

See the research continues in trying to help us. Nancy B
missist replied to booch007's response:
think, in time, if insurance companies continually are paying out for trips to specialists and trials of drugs that don't work- they will reconsider a test. (once its proven reliable) 300 people is a lot better than was it 42? or 24 with that nerves in the wrist thing?

I mean there needs to be definite acceptance of a test first--then I think it would go down in price pretty quick.
Anon_57995 responded:
Let the buyer beware (Caveat emptor).

Professor Fred Wolfe has used the terms Junk Science and Junk Ethics in relation to the research behind the "01CThe FM Test"01D that is being so energetically marketed by EpicGenetics at $740 a pop.

You can read all about it on his blog-site "01CFibromyalgia Perplex"01D.

I guess we'll know more if and when the paper is published

With such a small sampling, and no control group, well... just NOT good research. Garbage study, garbage results= Junk Science.
schrode replied to Anon_57995's response:
Thank you all for your input. This will be a wait and see situation as far the new blood test goes.

I am just happy that there is ongoing research. I hope they do develop a true, reliable blodd test for FM somewhere down the line. Especially since my 12 year old son has been showing symptons for the last 18 months.

Soft hugs,

Be who you are and say what you feel, because those who mind don't matter, and those who matter don't mind.--Dr. Suess
arc7795 responded:
It would be great if a test could find fibro, however my concern is that maybe there is not one simple cause to fibro. It took me years to get someone to recognize I just wasn't having diabetes symptoms. Some symptoms are similar like fatigue but didn't explain why it felt like Freddie Kruger shredded my back, arms, and legs up after doing somewhat physical activities. It didnt explain total exhaustion, or miagrains, etc. After being treated like I was a nutcase or looking for pain meds by some drs over a decade the thought of a possible unreliable rest denying a persons suffering is heartbreaking. Way more research is needed before locking a test in. I am pleased that its no longer treated like a mental illness. I am horrified still of the comments I have endured by Dr's. My saving grace was when I was in PT for the third time the worker suggested I see a rheumatology Dr. First time ever heard that after years of suffering and 15 min into first appointment she said u definitely have fibro. I broke down and cried not of sadness over diagnosis but because I finally had someone believe in me. Because of this I say test one way to check maybe but shouldn't be used as guarantee.
missist replied to arc7795's response:
Hi arc7795-- such a sad tale. not a strange one tough unfortunately. I hope you are/were able to get some useful solutions.

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