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An_257297 posted:
HI everyone my name for now is sicac. ive only just been diagnosed fibro and would love to hear from anyone tips on coping accepting and trying to understand this. for many years following an accident at work hurting my back, I was diagnosed with sciatica. which I accepted as true as professionals told me. whenever I went to the doctor with any other pain he just put it down to the fact I was a carpenter which is heavy manual work

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missist responded:
Hi Sicac-- your story is very common. I had an injury at work too-- at the time I felt pain in my shoulder but I know now it was really my neck that was hurt. Took 3 years before I found out I had fibro in that time my pain migrated and spread til I was just all over in pain.

Its a tough thing and everyone here is always sad to see another person stuck with it. There's a lot more tools now though than there were for some of us years ago. Hang in there! I'm sure you will get some responses to this by the end of the day today and plenty of tips. I'm just going to welcome you for now. There are tips on a sidebar to the left of your screen and there is a LOT of info that can be found here daily.
Welcome!
Mary
 
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katmandulou responded:
Hi sicac and Welcome!

Many of us have a similar story, one thing that went awry and was our 'trigger' for FM. For me it was a car crash, a 20-smoething screwing around with his pals. 18 months, and numerous blood tests and PT sessions later, the doc said "fibromyalgia".

Many of us here see pain specialists, neurologists or rheumatologists. Unfortunately, FM is an illness of elimination - they have to check for what it's not before they decide what it is. Make sure your doc checks your trigger points, and tells you as he/she does it. I had sciatica for a few years myself, but it was well before the FM, and my doc says they're not related. I have a good doc, and if you have one, don't let go of him/her!


There are some good resources in the right-hand column. Also check out http://www.butyoudontlooksick.com/ . It has good tips for us, and you have to check out The Spoon Theory - it will help you explain to people what it's like to be in your body.


Have your doc check you for Vitamin D deficiency. Sounds simple, but we who live in the northern hemisphere are usually lacking in D. After I got tested I was on prescription supplements for a month; now I take 1,000IU daily.


Again, welcome, and stop by and say hi regularly. Have the best day you can possibly have,
Lou
 
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polaferriere responded:
Cold therapy will help reduce the swelling and inflammation, resulting in a reduction of pain. After this is under control, it would be recommended that you stimulate the blood flow (BFST) to the area to amplify the body's natural healing process. This will draw nutrient rich blood to the area promoting healing at a faster rate.
 
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lena614 responded:
I have been fighting Fibro for almost 8 years. In Jan 2014 it flared up to a point where I couldn't work. I went to a Primary Care Dr who sent me to a neurologist. He ignored the Fibro and diagnosed me with Multiple Sclerosis and optical neuropathy. Yeah, I don't know where that came from. No vision or dizziness issues. The pain meds made me loopy. Anyway. I found Turmeric. It is a root. It is also a natural anti-inflammatory. I take 250 mg of Magnesium before bedtime. It helps relieve the spasms so I can actually sleep. I hope to ease my pain enough to be able to exercise soon. Strengthening the Muscles will also help.


I have come to the conclusion that most DRs aren't out here to help Fibro patients. Those that have the answers want to pimp you for all the money they can because they know you are desperate. Insurance doesn't cover/won't cover or the facility doesn't accept it.


Good luck and God bless all Fibro patients. This pain is no joke.
 
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katmandulou replied to lena614's response:
Hi lena614, and welcome! (Sorry to redirect your post, sicac!)

If you're not happy with your doc, you should find a new one you're comfortable with. It does sound like the neuro is a dip. Was this the doc who diagnosed the FM? If not, why didn't you go back to the same doc?

MS is diagnosed with a blood test, and you can't argue with the results. As for the optical neuropathy, did you see an ophthalmologist? If not, make an appt to get a diagnosis from a doc who's in the know!


I dispute your claim that docs aren't here to help us. I see a rheumatologist, and my treatment is great. If I have problem, I can call and get an appt within a day. I know what's being done, whether it's tests or meds, and why. I also ask about everything, so I'm sure to know, and keep notes because heaven knows I forget stuff.


I wish you the best day you can possibly have,
Lou
 
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lena614 replied to katmandulou's response:
Hi katmandulou, I relocated to Florida from the Bowie, MD area and had to start over. Blood work all came back with great numbers accept low B12. Ophthalmologist finds nothing significant to diagnose optical neuropathy. MRI shows white matter patches, but I have been told this is inconclusive.
 
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hissy339 responded:
Like all of us out there who suffer from Fibro, we are constantly looking for a successful treatment plan. After four years of suffering the severe pain that comes with it and not one to go on mind numbing medications again I went in search of a more natural way. I tried acupuncture and herbal treatments and massage therapy and I am happy to say I have my life back. What a change!
 
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lbeachgirl4 replied to hissy339's response:
Hi Hissy What herbal treatments did you do with your acupuncture?

Thanks Jeanne


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