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    TGIF****Roll Call **** 7/25/2014 *****
    dollbug posted:
    TGIF*****MiMi in NC. Well, it has indeed been an experiment for me. Yesterday was NOT a good day for me....I had a bad night and did not feel as good as I have felt. I let the doctor know this right away, just in case this made a difference. I was shocked when the *test* was performed on me. They say *if it seems to be too good to be true, then it probably is* it for real ? Seeing is believing, right ? Or is it ? Feeling is believing, right ? Or is it ? Was this a mind over matter ? Or is it really something to try ? So I have learned that yes, there just might be *something that will make a difference for all of us FMers*. So I went in and filled out paperwork. I learned several *things*. Adrenal glands. I have wondered for years now about this. I had my blood pressure checked lying down and then I had to stand up and it was checked again. Why ? Well, I was told that if should increase at least by 10 when you stand up IF they are working right. Mine went down 11. (Not a good sign).

    I learned something. Did anyone know this ? I didn't either. So we move on. I am given the *test*. Pressure points are checked and then I drink a small cup of the *solution*. Pressure points are checked again. I did this 3 times and at the pain had been *reduced by 80 plus %. I *felt* like a different person. I still had hip and knee very touchy pain pressure points....but even this was less than when I started. After the first dose I did feel a *tingly sensation* throughout my body...and the *solution* was very bitter. The 2nd dose tasted *lighter* but had more *solution* in it. The 3rd one tasted even lighter but again had more. No, I did not and do not understand. The woman told me I should stand up and walk around. I did and could NOT believe how I felt.

    I asked questions and it seems it is a *wait and see* to know what kind of results I might see/feel. I wondered just what this might do to my I think we all know that we, FMers, have lots of *issues* to deal with. I came home and had lunch.

    So the waiting began. As I had stated the morning was not a good one for me. I ended up trying to relax some. I ended up taking a nap. Normally when I take a nap during the day I wake up feeling worse than I did before I took it. I had a short nap and woke up feeling better. I was surprised. Still did not know what might be in store for me.

    So it seems that this *solution* works differently on each person. I think we all know just how this is. What works for one may or may not work for another. So....I had no idea what was in store for me. I waited.

    DH came in and I told him about my experience and just how interesting it had been. Could this be the *fix* for me and perhaps millions of FMers ?

    I was so excited about my *results*. I learned from this doctor though that this is only in SC, NC and GA. 3 states. And if you pass the test, then it will work for you. How long ? Anything else is just a guess. It is a wait and see. Don't quite understand why this *works* or what it does exactly. The doctor does NOT either. It must be what is in it. One thing I do remember though was the Magnesium Malate. OK....I ended up
    sending Dr. P a message. Now whether or not he will get it and act upon it....I don't know or might not ever know. He would be a *prime* person though to *take the test*. I hope he gets my message and tries to find out about this.

    Is this a break through for FM ? I don't really know. But I do know that I passed the *test. The *solution* is quite expensive. It consists of having to purchase 12 bottles of it. It is indeed an *investment*. But what if I get it and I take a couple of bottles of this and it no longer works or I no longer need it ? I do wish that I could *try a bottle of it* and then decide whether or not to proceed. Side effects ? So much to find out about this.

    I am sure I will decide what I need to do.

    It was indeed worth doing.


    missist responded:
    Hi Mimi and all to follow-- Mimi--I don't know what 'test' you just referred to, I guess I missed it since I wasn't reading here much this week. Can you fill me in?

    I've been seeing massage therapists and a chiro the past couple weeks. It is helping-I still have some pain but I feel much more flexible which is great.

    I've also started to attend weight watchers meetings instead of just doing it online--that is better.

    I've also started to attend church regularly--which before I was just always wanting to sleep in and be lazy on Sunday but I decided it would be better for me if I did not do that.

    I told my daughter I need to stop the full time daycare so the kids will go to daycare starting Aug. 1 although I don't know yet if they will go full time or just 3 days a week--so I may have them 2x a week as I used to before it got to be too much.

    I'm hoping the daycare is flexible and maybe sometimes I can send them there, sometimes here--for those 2 days.

    I'm also hoping one of the 2 days is wednesday so we can continue our weekly library story time date. we go to a small rural library and the ladies there know the kids and would really miss them I think.

    I shipped what I think is my last cake topper order yesterday--at least until after I have carpal tunnel surgery.

    I will see if massage can help that too--but have my doubts.

    I want to continue to do art but not sure I will work with wood unless my hands are much better.

    I don't carve-but I they get sore just sanding little pieces and doing wood burning and running my saw.

    I also want to learn more about herbal medicine and make my own meds and grow them--this is something I"ve always been interested in --but I never really have believed alternative meds could fix my body-- as much as I'm inclined to think now. We shall see how this goes I guess--but I feel pretty encouraged by how much more flexible I feel right now rather than so stiff and sore.

    I'm down to only one med for pain now--and I also take the same one for seizures so its a 'two-fer'. Its gabapentin.

    Its cheap and considered pretty safe. I do have apt with pain clinic to see about stronger meds but I am thinking I only want something I can use for bad flares.

    perhaps this is a waste of time/money this appointment? I am not sure. It is hard to make a decision about anything with fibro at a time you feel good cuz you may get knocked back down hard with a flare--and then you are stuck starting all over. Getting in line for an appointment.

    My regular doctor is an osteopath who functions completely as an allopath -regular medical dr. She does not have the equipment in her office to do anything else. She prescribes meds and thats about it. But she doesn't want to prescribe serious pain killers so gave me a referral.

    I wish you could have a serious pain killer 'on the shelf' to use as needed. That's not how it works I guess. So if I happen not to be flaring when I see this pain specialist-- I'm not sure how I go about getting the help I will likely need later.

    Crazy things that happen with chronic pain.
    katmandulou responded:
    TGIF - Working for the Weekend!

    Sunny, warm and not humid here, but it'll be back Sunday with t-storms. You've gotta love summer, and I'm glad we have 4 seasons in New England.

    I goofed, and the final measure for the kitchen is NEXT Friday. That's ok, it's progress and I'm giddy. I just have to find the floor I like; they quoted Pergo, but I don't like what they have. Hmmm"026.

    Tomorrow we're going to an engagement party BBQ for one of my cousins; she lives in Japan, too. She and her 'boyfriend' have been together for years, we've gotten together with her, but never met him. My aunt is very happy for her youngest daughter!

    Mimi, it sounds like an interesting study. You could be on the front lines of a 'cure' for all of us!

    Mary, it sounds like you have a plan. when is your carpal-tunnel surgery? I'd like to use more natural and herbal meds, but there's so much available it's overwhelming for me. I love my yoga, and will do stretching poses throughout the day so I feel better. I have a sit-down job, so it's not easy; at least I'm home!

    I wish you all the best day - and the best weekend - you can possibly have!
    missist replied to katmandulou's response:
    Lou--I dont have surgery scheduled yet. There's been a sort of disagreement between drs over what is wrong with hands--the source--is it my neck or my wrists. I still think it is both.

    anyhow I"m having a 3rd round of nerve tests aug. 3rd and then we'll go from there. 1st time it did not show carpal tunnel. 2nd time it did. The 1st time the dr said he believed my pain was caused by arthritis in my neck.

    Since then--I think the arthritis in my neck makes it worse for sure--but it has its own issue-which I believe is carpal tunnel but my neurologist is going to double check it before I do surgery.

    msmary15 replied to katmandulou's response:
    You sound so up beat. Thanks for starting my day off on a good note.
    fibroinsd responded:
    Got back from my trip yesterday..and I am spending today trying to get things cleaned up...looks like I have missed a few things while I have been gone..

    Mimi..I want to hear more about this test...I am so achy today..having trouble just getting moving..

    Then came the call from mom and dad...and seems like there was a bit of things went on while I was of the caregivers had dad write a check for her hours..without my checking it..I think she gave herself a few extra hours..not sure..seems like a lot ...and dad got panicky and called to try and get some money..and seemed confused about things..thank goodness for the one caregiver I had that told him not too..but now what do I do about his confusion and his problems...and the caregiver said mom is having more trouble with her backache..but doctors said there isn't anything now what???ugh..I came home and just want to run away again...I don't want to deal with all this..

    Let's put the fun back in dysfunctional !- Mary Englebright
    dollbug responded:
    Hello FMily.....thought I would check back in to let you know that today was NOT a good day for me. I had a bad headache for the majority of the day. I haven't had one like this in years. Could it have been the *solution* ? I do not know. But it did cause me to think about this. Perhaps there is a reason for this. As I said today....I would have to purchase 12 bottles of this in order to get it. This is how the doctor who discovered it has set it up. 12 bottles. I was told it should probably last a year. BUT.....what if I can NOT use it ? And who would want to have 12 bottles of anything anyway ? Would it still be good this long ? Well, maybe.....but still....who would want to swallow something that is this old ? Of course I also know that we don't really know what we consume anyway, if it is like this. Anything in a bottle or a can or even frozen....we really do not know how old or new it really is.

    I am assuming that I can NOT purchase just a single bottle of it. No matter if I wanted just to try it for a while.

    I think that IF it is really so good, then it should be purchased as I want or need it....not otherwise.

    So maybe there was a reason I had this headache. I have no idea.

    I think I will check into getting something for my adrenals though and perhaps I will get something to help my acidity in my body as well.

    Going to provide info for anyone who might want to check it out though: Dr. Comanor's Solution .

    Again I was told that it is only available right now in SC, NC and GA.

    I hope everyone had a good Friday and I hope tomorrow will be a better day for us all.

    Till later..


    rudyandirmouse replied to dollbug's response:
    MiMi, I hope what you took as part of your test yesterday didn't cause you to have a headache. I'd hate to think that a headache when not taken can be a side effect.

    It all sounds interesting and I really do hope this doctor's solution has merit and that it is approved for use, maybe in a few months, a year, OTC for those who suffer with fibro. Wouldn't it be wonderful to be able to take a safe product each day that would keep the aches, pain and discomfort of SFN/ fibro away. Thanks for testing it out.

    Feel better quickly..
    Gentle hugs, Linda R
    fibroinsd replied to rudyandirmouse's response:
    Mimi...I would talk to Nancy B. about adrenals...I did once and she kind of said she wouldn't want to start down the road to getting on meds for it..if I remember what she said correctly..anyway...check with her.

    Let's put the fun back in dysfunctional !- Mary Englebright
    fibroinsd replied to fibroinsd's response: I see Mimi...that you have talked to Nancy B...good..
    Let's put the fun back in dysfunctional !- Mary Englebright

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