Skip to content
My WebMD Sign In, Sign Up
Hand / Foot Pain Anyone?
avatar
ups_wife posted:
Hi, my name is Missy and I've never posted on this group before, as I have been posting on the MS group thinking that a lot of my symptoms were turning into MS symptoms.

My neurologist (after MRI's, etc.) doesn't think it's MS so it's probably this darn old fibro I've had since '99 or 2000.

I am having some symptoms I've never had before with "my" fibro, which I know we can all be different so I was hoping someone might have "my" kind, lol.

I've done very well the past 8 or 9 years, with just treating myself with over-the counter medications and occasional massages and sometimes i've had to get some anti-inflammatories from the doctor but otherwise if i woke up in pain or stiff I just knew it was this and I managed as best I could.

BUT, I am starting to have pain in my hands . . like the underside/palm area and around where it meets your wrist . . . I also feel some pain in my feet. . . . the pain is almost like a burning pain but it's pain. My hands are always freezing too and today I swear the undersides were even red and not their usual cold selves, lol. I work in an office and thatt are the parts of my hand that rest on the keyboard that I have there but I really don't think is work related. . . . I had nerve testing done in August and if it was carpal tunnel or anything I am sure that would have showed up.

Does anyone else get this? Getting good and warm used to help but now for some reason heat if I get overheated makes my muscles have spasms and my face twitch. (part of the reason i thought it was turning into MS).

Any help/suggestions or advice is greatly appreciated.

Thank you.

Missy 38, mom of 2
Reply
FirstPrevious12NextLast
 
avatar
jad2u responded:
Hi Missy,

Welcome!

I do have hand / wrist pain frequently. MY foot / heel pain comes and goes. I've had every test under the sun and the drs I have seen disagree on whther I have fibro...I haven't had any face twitches, but sometimes I get that "electric shock" feeling in my jaw. One of my doctors recently mentioned carpel tunnel...WHo knows at this point?

The only thing that helps me are meds and heat. Would your dr. give you muscle relaxers? Are you having spasms in other areas of your body?

I hope you feel better!
 
avatar
ups_wife responded:
Hi Julz,

Muscle spasms were the start of this big "flare" . . . . I got them in July the day after we returned from vacation, throughout my body upper and lower every day. . . .I 've had nerve testing done, muscle testing done, mri's, to rule out lou gehrig's, ms, lyme disease, about everything . . . I already had this diagnosis hanging over my head.

My family doctor didn't think the spasms were related to the fibro. That sort of panicked me. Just my symptoms have changed so I was afraid my diagnosis had to.

I get electrical shocks around my knees a lot, my hands and feet are bothering me today. A lot of muscle spasms around my knees but I have my upper arms jump from them too so it's an all over body issue.

Family doc put me on klonopin, neuro added lyrica (which i only took a few days because my spasms increased because he lowered the klonopin) . .. . now klonopin (weaning myself off of it) and they have added generic celexa (anti-depressant) obviously i'm nuts if they can't find something wrong. (Sorry not a fan of doctor's who can't figure things out and pull out the prescription pad).

I do have muscle relaxers in my "chest" from some back issues this past winter, but I never think those help they just knock me out but I suppose I could try them again.

Missy
 
avatar
ozma193 responded:
I also have horrible hand pain. They're sore, but I also get sudden extremely painful sensations. My hands are always cold and now washing my hands in less than warm water hurts really bad. This is weird for me because I have always loved the water and I used to scuba dive in 45 degree water. My finger tips even turn blue some times. I also have needle feelings in my wrists. I also have a burning pain in my feet. I haven't found any answers yet and just keeps getting worse. Sorry I don't have any suggestions because I'm still looking for some myself. Hope you feel better.
 
avatar
klippman0126 responded:
Hi, This is my 1st also. My feet hurt almost all the time. All the tendons in each joint. The bottom of my feet is always pulling. The joints in my hands. As winter is coming on it is getting worse. I'm going to the doctors tomorrow, for test results. We will see.

Klipp
 
avatar
NYBOOKIE responded:
HI THIS IS MY FIRST TIME HERE TOO, I WAS JUST DIAGNOSED THREE WEEKS AGO BUT HAVE HAD FIBRO FOR PROBABLY 8 OR 9 YEARS. BUT SPEAKING OF THE HANDS AND FEET MINE HURT ALL THE TIME MY FEET ESPECIALLY AFTER I'VE HAD THEM UP FOR EXTENDED PERIODS OF TIME. LIKE WHEN I GET UP IN THE MORNING AND AFTER I'VE BEEN SITTING IN MY CHAIR WITH MY FEET UP FOR A WHILE. WELL WHEN I PUT MY FEET DOWN AND TRY TO STEP ON THEM I FEEL LIKE I'M GOING TO FALL DOWN THEY ARE SO PAINFUL. IT IS SO BAD I GRAB FOR WHATEVER I CAN FIND TO GRAB TO KEEP MYSELF FROM FALLING DOWN. MY HANDS AND FEET NUMB UP PERIODICALLY YOU NEVER KNOW IF THEY ARE GOING TO WORK OR NOT. BUT I ALSO GET PAINS IN THE HANDS AND LOWER ARMS TOO. THEY ARE SHARP LIKE SOMEONE IS TAKING A KNIFE AND JABBING IT IN ME. BUT SINCE I WAS DIAGNOSED MY DOCTORS HAVE PUT ME ON BOTH CYMBALTA AND LYRICA AND I'M NOT SURE WHICH ONE OF THEM HAS WORKED OR BOTH OF THEM? BUT I HAVE BEEN FEELING A BIT BETTER, I HAVEN'T BEEN TAKING AS MANY PEROCET AS I WAS TAKING BEFORE. I WAS TAKING 3 A DAY AND WANTING TO TAKE MORE BECAUSE I WAS STILL HAVING A LOT OF PAIN. BUT THANK GOD I'M DOING BETTER NOW. THANKS FOR LISTENING. VICKY
 
avatar
1Duffy1957 responded:
Hi Missy and welcome,

I have hand and feet pain also. My hand and wrist pain is from carpal tunnel but it is not so bad that I need surgery. If my hands get too warm, they swell, turn red and are very painful. Then again I do have OA and it will flare just like FM. I wear a brace on my right hand and wrist at night to help ease the pain. Do you have a keyboard that doesn't put pressure on your wrists?

My feet ,on the other hand, come from tarsal tunnel syndrome, Mortons neuropathy, and a bulging disk in my lower back that sets off my sciatica. Such fun isn't it??? If they get too warm, they too will swell and turn red. I then take off my shoes and cool them off.

I have had muscle spasms, but from overdoing something usually.

As far as how to treat this, if I had the answer I think I would get rich quick

Trial and error is all I can figure out. I stretch, and do mild exercises, even my feet and hands. The only "pain" med I am on is Celebrex from my OA. Not helping you much, but you are not alone.

Jan
 
avatar
pollylynn responded:
Three years ago, I had very bad pain in my feet. It was a burning kind of pain. It started in the summer. I am a teacher's aide and have the summers off. I thought my feet were just hurting because I had worn flip flops all summer long and it was hurting my feet. When I started back to work in the fall, my hands had just about the same aching, burning pain as the bottom of my feet. I thought that was very strange. I thought then, that maybe was coming down with the flu or something.

I then made an appointment with my regular doctor, and she ordered an MRI. When it came back, it showed that I had lesions on my brain and spinal cord.... MS!!!

I am now 37, and going on my third year of this disease. Two years ago, however, I too was diagnosed with Fibromyalgia. But the pain that I was and STILL am feeling is from my MS.
 
avatar
Leisa17 responded:
I have constant foot pain and find myself having my husband pound on the bottom of my feet. I also have pain in the palms of my hands. These are all recent symptoms. I have twitching in my face and severe muscle spasms in my neck and face. Muscle relaxers do seem to help. I take Requip for RLS which may be helping also.
 
avatar
KDee77 responded:
Hi Missy,

I completely relate to the hand and foot pain. I have excruciating pain in my hands every day and struggle through work (lots of typing) and preparing meals for my family every night. My feet hurt so bad that I walk around the office in my socks all day because I cannot handle the pressure of shoes on my feet. In a professional office setting, I stick out like a sore thumb!

I was tested for MS and I told the neurologist about the muscle spasms. He gave me a dumbfounded look, so I said I thought it might be something he should know about. His response was that yes, he probably should know about it but had no clue what it meant. Oh the joy of "specialists" that I have had the joy of seeing!

Suggestions - well, I find that heat helps me the most and wrapping my hands/wrists in tensor bandages helps a lot, too. The pressure seems to keep the pain in check for me.

Hope you find answers and I will be watching responses here for me, too.

Take care and wishing you good days...

KDee
 
avatar
xperky responded:
Foot pain is a constant problem for me. My right foot gets sharply painful and sometimes numb at the same time. Stretching it helps.

I've been through many MRI's looking for MS lesions and only have 3 on my brain which don't look like typical MS types. So they don't think I have MS yet. I thought my symptoms were due to undiagnosed MS too, but the diagnosis of FMS really fits me. Maybe someday they'll find more lesions but I hope not.

I also get muscle twitches sometimes. I associate them with either added stress or too much activity. Relaxation helps. A muscle relaxer or Ativan (a benzodiazepine) helps me with twitching.

I know what you mean about heat adding problems but for me heat causes something called "intention tremor." That's like when I want to use my thumb to text, it twitches and won't do what I tell it to do. Lots of typos, lol. This happens to me after a hot bath. The bath is wonderful for the stiff/painful muscles in my legs and feet but hard on the thumb!

My hands are always freezing too. People comment whenever I shake hands. If your hands turn blue it could be Reynaud's disease. (At least that's how my fibro fog brain remembers it called.)

Take care everyone, and pamper your aches and pains.
Margaret
 
avatar
Leighann4234 responded:
my feet hurt. all the time. like deep heel pain best way I can desribe it. My hands hurt after using them
 
avatar
caroldenhamclark replied to Leighann4234's response:
My feet and my hands burn.. I always end up washing my hands in cold water, then they get so dry and flaky, even with lotion.
 
avatar
cmeidinger replied to caroldenhamclark's response:
I just received the results of nerve conduction study and my pain in the hands and feet is not the result of neuropathy so I am wondering if it is part of the fibromyalgia. My doctors think I have plantars fasciatis in the feet but that doesn't explain the overall pain and burning in my hands also. I've been negatively tested for RA and I can recognize the joints that have osteoarthritis, but the pain I have in my hands overall is far beyond osteoarthritis joint pain and I don't have carpel tunnel. I have a band of pain around my wrist, and burning and pain in my whole hand. I can't open bottles and jars, not even my medicine bottles. My fingers are sore to the touch, and my hands are often really cold. I can't take cymbalta, lyrica, elavil, or gabapentin because they all interact with meds I am on for mood disorder. But I would be happy just knowing that the pain is fibromyalgia then I would at least have a name to put on it.


Helpful Tips

~FM TIPS - LIVING W/ FM - TOOLBOX ~WELCOME NEWCOMMERS~
Welcome to Our FMily! My name is MeMe, I'm an FM suffer of 19 years, along with autoimmune diseases & other conditions. ... More
Was this Helpful?
461 of 536 found this helpful

Related News

There was an error with this newsfeed

Related Drug Reviews

  • Drug Name User Reviews

Report Problems With Your Medications to the FDA

FDAYou are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.