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My neurologist (after MRI's, etc.) doesn't think it's MS so it's probably this darn old fibro I've had since '99 or 2000.
I am having some symptoms I've never had before with "my" fibro, which I know we can all be different so I was hoping someone might have "my" kind, lol.
I've done very well the past 8 or 9 years, with just treating myself with over-the counter medications and occasional massages and sometimes i've had to get some anti-inflammatories from the doctor but otherwise if i woke up in pain or stiff I just knew it was this and I managed as best I could.
BUT, I am starting to have pain in my hands . . like the underside/palm area and around where it meets your wrist . . . I also feel some pain in my feet. . . . the pain is almost like a burning pain but it's pain. My hands are always freezing too and today I swear the undersides were even red and not their usual cold selves, lol. I work in an office and thatt are the parts of my hand that rest on the keyboard that I have there but I really don't think is work related. . . . I had nerve testing done in August and if it was carpal tunnel or anything I am sure that would have showed up.
Does anyone else get this? Getting good and warm used to help but now for some reason heat if I get overheated makes my muscles have spasms and my face twitch. (part of the reason i thought it was turning into MS).
Any help/suggestions or advice is greatly appreciated.
Thank you.
Missy 38, mom of 2
Welcome!
I do have hand / wrist pain frequently. MY foot / heel pain comes and goes. I've had every test under the sun and the drs I have seen disagree on whther I have fibro...I haven't had any face twitches, but sometimes I get that "electric shock" feeling in my jaw. One of my doctors recently mentioned carpel tunnel...WHo knows at this point?
The only thing that helps me are meds and heat. Would your dr. give you muscle relaxers? Are you having spasms in other areas of your body?
I hope you feel better!
Muscle spasms were the start of this big "flare" . . . . I got them in July the day after we returned from vacation, throughout my body upper and lower every day. . . .I 've had nerve testing done, muscle testing done, mri's, to rule out lou gehrig's, ms, lyme disease, about everything . . . I already had this diagnosis hanging over my head.
My family doctor didn't think the spasms were related to the fibro. That sort of panicked me. Just my symptoms have changed so I was afraid my diagnosis had to.
I get electrical shocks around my knees a lot, my hands and feet are bothering me today. A lot of muscle spasms around my knees but I have my upper arms jump from them too so it's an all over body issue.
Family doc put me on klonopin, neuro added lyrica (which i only took a few days because my spasms increased because he lowered the klonopin) . .. . now klonopin (weaning myself off of it) and they have added generic celexa (anti-depressant) obviously i'm nuts if they can't find something wrong. (Sorry not a fan of doctor's who can't figure things out and pull out the prescription pad).
I do have muscle relaxers in my "chest" from some back issues this past winter, but I never think those help they just knock me out but I suppose I could try them again.
Missy
Klipp
I have hand and feet pain also. My hand and wrist pain is from carpal tunnel but it is not so bad that I need surgery. If my hands get too warm, they swell, turn red and are very painful. Then again I do have OA and it will flare just like FM. I wear a brace on my right hand and wrist at night to help ease the pain. Do you have a keyboard that doesn't put pressure on your wrists?
My feet ,on the other hand,
come from tarsal tunnel syndrome, Mortons neuropathy, and a bulging disk in my lower back that sets off my sciatica. Such fun isn't it???
If they get too warm, they too will swell and turn red. I then take off my shoes and cool them off. I have had muscle spasms, but from overdoing something usually.
As far as how to treat this, if I had the answer I think I would get rich quick
Trial and error is all I can figure out. I stretch, and do mild exercises, even my feet and hands. The only "pain" med I am on is Celebrex from my OA. Not helping you much, but you are not alone.
Jan
I then made an appointment with my regular doctor, and she ordered an MRI. When it came back, it showed that I had lesions on my brain and spinal cord.... MS!!!
I am now 37, and going on my third year of this disease. Two years ago, however, I too was diagnosed with Fibromyalgia. But the pain that I was and STILL am feeling is from my MS.
I completely relate to the hand and foot pain. I have excruciating pain in my hands every day and struggle through work (lots of typing) and preparing meals for my family every night. My feet hurt so bad that I walk around the office in my socks all day because I cannot handle the pressure of shoes on my feet. In a professional office setting, I stick out like a sore thumb!

I was tested for MS and I told the neurologist about the muscle spasms. He gave me a dumbfounded look, so I said I thought it might be something he should know about. His response was that yes, he probably should know about it but had no clue what it meant. Oh the joy of "specialists" that I have had the joy of seeing!
Suggestions - well, I find that heat helps me the most and wrapping my hands/wrists in tensor bandages helps a lot, too. The pressure seems to keep the pain in check for me.
Hope you find answers and I will be watching responses here for me, too.
Take care and wishing you good days...
KDee
I've been through many MRI's looking for MS lesions and only have 3 on my brain which don't look like typical MS types. So they don't think I have MS yet. I thought my symptoms were due to undiagnosed MS too, but the diagnosis of FMS really fits me. Maybe someday they'll find more lesions but I hope not.
I also get muscle twitches sometimes. I associate them with either added stress or too much activity. Relaxation helps. A muscle relaxer or Ativan (a benzodiazepine) helps me with twitching.
I know what you mean about heat adding problems but for me heat causes something called "intention tremor." That's like when I want to use my thumb to text, it twitches and won't do what I tell it to do. Lots of typos, lol. This happens to me after a hot bath. The bath is wonderful for the stiff/painful muscles in my legs and feet but hard on the thumb!
My hands are always freezing too. People comment whenever I shake hands. If your hands turn blue it could be Reynaud's disease. (At least that's how my fibro fog brain remembers it called.)
Take care everyone, and pamper your aches and pains.
Margaret
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