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dotpan61 posted:
Diagnosed with FM a few months ago...but in retrospect, realize I have had it at least for 5-6 years (doctors ignoring pain when blood work showed no 'reason' for pain). This condition can be very debilitating. I had to retire early due to the body pain, and stress of my previous job. I have discovered that narcotic pain medication does NOTHING to help this pain. What does?? soaking in hottest bath you can stand...and smoking pot. Peace.
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FiOSLarry responded:
Or, a very hot shower, with the sparay directed to your neck and shoulders. Also, try a vibro massager. It takes me about 20 minutes of vibrating massage, directed to all the painful areas, to bring some relief. These should be done at the onset of pain, because if you wait too long, there may be no effect at all.
For minor aching, you might want to try some OTC products like Banalg or Arnicare. I find that the heavily mentholated products help the most.
nofish1100 responded:
Have not tried the pot but the hottest bath in town I do very often.
Like massages and other therapies it is temporary but that kind of bath just before bed does help me sleep.
nofish1100 replied to FiOSLarry's response:
Aspercreme works for me but the down side is you can't put any clothing over the medicated site or it will really burn.
marezydoats replied to nofish1100's response:
My pain mgmt doctor prescribed me Klonopin for sleep, to take 1-3 at bedtime (the amount being at my discretion).It has proven to be a wonder drug for me, as far as sleep is concerned. I get a peaceful and restful sleep, and do not wake up til time to wake up. Of course, I am stiff and can hardly move, and that in itself is probably not curable, but the Klonopin has been my saving grace. If medicinal marijuana was allowed in my state, I would more than likely try that, too!
An_198660 replied to nofish1100's response:
If you like aspercreme, you will love Mineral Blue Ice! Hope it helps you.
4trax replied to An_198660's response:
I've suffered from Fibromyalgia, or so the drs' say, for 12 yrs. In all the books I've read on it, they all say you MUST have pressure points to have Fibro, but I don't have any. My body does feel like I went one too many rounds with Tyson though. Everything hurts all the time. I'm on tons of benzos because of my anxiety and get no relief with those, just a slight calmness. So far I've seen 4 rhumetologists(SP), and 3 out of the four say I have it, the fourth didn't come to any conclusions. Feels more like arthritis because I can feel it in my body when a storm front is coming. Does that sound fimilar? I've taken every SSRI,SNRI, and MAOI out there with no help, plus all the narcotic pain killers that do nothing but mask the problem. The best thing I found to get rid of the pain, and not just mask it, is Celebrex, 200mg's twice a day. It takes away 80-90% of the pain. Problem is, most dr's don't want to prescribe a dose that high. The'd rather send you to a pain clinic and get you hooked on opiates, which is exactly what happened to me. I'm a recovering addict who can't touch pain meds anymore. It seems to have started with a car accident, when my head went through the windshield. Does everyone who suffers from Fibro have pressure points? Lastly, does anyone know if Lyme Disease mimics Fibromyalgia, or vice-versa? I feel more confident self-diagnosing myself instead of leaving it up to the doctors. They're too quick to get you in and out.
ksmirf replied to 4trax's response:
Hi,I was told in 1998 that I had fibromyalgia I was also seen by a specialist as well. I had checked on line after the blood work aswell as the 664 question book was turned in to the doc. I was being tested for lupus however, after reading the symptom for fibro my sister thought it was fibro. I remember something about the lyme disease.They did describe it about the same symptoms .I sat down and listed every symptom that i had then started looking at each disease 1 at a time trying to be as honest as I could .My sister helped me with this . We printed each one with a highlighter we marked each symptom when we finished we were left with fibro. The doctor confirmed on my next apointment that is was fibro.
I stretch out every day . I learned about isometric stretches they have helped me out the most .It took along time to get the routine that fits me down . About 10years it has helped to keep me up on my feet. I take a musle relaxer at night as well as ansaid .
As far as pressure points I have them however; not everyone is the same .Good Blessing I hope you find the right answer
constantpain523 replied to 4trax's response:
You probably do have it. But narcotics are not the way to go. I can tell a huge difference when I take a Mucinex. However, I cannot sleep for 48 hrs. Yes for mucus. But it help drastically. If you have been exposed to Lyme disease you need to have that checked out.
Pressure points that I feel are behind my knee, all down my back, under your arms, inside your elbow. My reflexes in my legs are unbelievable. I have also had a chiropractor look at my back and found that I had other issues including pinched nerves and curving spine. We are all different it seems but we all know what it means to be in pain. I would love not to be in pain for an hour a day. Fibro also has a chronic fatigue symptom that is always fun to deal with. I wish everyone the best and may our pain be lighter each day.
r_elise42 responded:
You are so correct. Marijuana is the best relief I have found for the pain, insomnia and migraines from fibromyalgia. Medical marijuana is now legal in 15 states and D.C. and fibromyalgia patients are recognized in each one of the state's laws. There is a reason why. IT WORKS! There is WAY too much research out there supporting it . And the evidence has been around a long time. Not until the Freedom of Information Act was passed did we know this. Our government has kept research away from the public and continued to tell us it was harmful. It does not kill brain cells, but actually may kill brain cancer cells. The Heath/Tulane study of 1974 resulted in the theory that marijuana kills brain cells. After 6 attempts to get copies of the study from the govt. when finally released it showed; "What many people don't know is how poorly the experiment was conducted. The original plan was to pump 30 joints a day into monkeys for a year. Apparently after three months of this, the monkeys died and dead brain cells were found. Years after the experiment was conducted and everyone was convinced marijuana kills brain cells, it was released that the experiment was done much differently. Instead of 30 joints a day, Dr. Heath suffocated the monkeys for five minutes. He put gas masks onto the monkeys and gave them 63 joints worth of colombian marijuana smoke. Without any oxygen the monkeys slowly suffocated. With lack of oxygen any organisms' brain cells will die. So we see that marijuana didn't kill the brain cells or monkeys, and that it was actually a result of a cruel, poorly conducted experiment. In fact, some recent ideas from scientists are that marijuana may promote brain development and growth. Of course, this research recieves far less attention..." Read more: And it does not cause side effects common in pharmaceuticals like kidney or liver damage, heart attacks, stroke, muscle pain, constipation, hair loss, etc. and the one that floors me; in certain cases may cause death. WTH??? May cause death??? There are two types of marijuana used for medical purposes. Indica and sativa. Indica strains are used for pain, insomnia and migraines. Sativa is good for stress, depression and more. Besides fibromyalgia, medical marijuana is used for those with asthma, PTSD, in chemo, MS, arthritis, AIDS and more.
For more information go to and check out the health/medical section. Or Google fibromyalgia and marijuana.
r_elise42 replied to 4trax's response:
Most enlightened/informed doctors no longer rely on the "pressure point" method to diagnose. They go by symptoms. Find a Dr. who treats fibro patients or ask for referrals from local patient support groups.
dearnicole replied to r_elise42's response:
Hi r_elise42 . . .

Out of curiosity, what are the best/most identifiable symptoms a Doctor is looking for other the traditional "trigger" or "pressure" points?
marlagiltner replied to ksmirf's response:
hi. could you tell me where you found your list of diseases you went through to pin point fibro? i would like to know for sure whats wrong with me. the doctors here can't tell me anything. basicaly just to deal with it. thank you for any and all help. marla
38senior responded:
sounds good to me i have had fibro for 18 yrs now have had some major flair ups during the yrs, but in the last 3yrs have had worstning constant pain cant take the drugs that is recomended as i have glacoma so i am taking only advil. .to cold to do water exserises as this was recomended your stance on pot i will inquire on thanks
carissaf replied to r_elise42's response:
Thank you for posting this! I have smoked for years to help with migraines, fibro pain, cramps, you name it, it helps. It is not legal where I live but hopefully someday it will be. I do not use anything else that is illegal. If my family knew they would greatly look down on me. My mother even called me a dope smokin loser; even though at the time I ran a multi million dollar pet store and am nothing like the persona that they put off of people who smoke. I bet if you asked 100 people less then 20% would even guess that I smoked. I do not just smoke for the heck of it, I do it because nothing else helps. I am prescibed numerous medications and nothing comes close to helping with all the symptoms like marijuana. I hope there are more people out there that think like you out there to help change this false stigma of marijuana.
Fill your life with simple joys :)

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