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Mayo Clinic
goredbirdsgo posted:
Mayo Clinic has really helped me a lot. There is a fibromyalgia clinic here that is really one of a kind. All the staff is up to date on the latest research. The clinic has a 3 day outpatient program for fibro patients. They determined that my condition is bad enough that I wouldn't bennifit from the program at this time. Mayo is trully a place of help and hope. The doctors here spend hours with you (instead of say 10 min) to really get to the root of the problem, and all your doctors work together to help you.
Anyway here is the schedule for the fibro clinic outpatient program: Day 1-Meet w/ an RN nurse, and a doctor who is an expert in fibro.
Day 2- 8 hr. class on learning how to live w/fibro. The focusing is learning strategies that don't involve medication. You recieve books while you're there.
Day 3- Personnalized physical therapy session.
*More appointments/tests will be scheduled for you if the doctor determines that you need them.
The hotels in Rochester are understanding about schedule changes.
Address: 200 First Street SW Rochester, Minnesota 55905
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An_244127 responded:
I don't understand what you mean when you say that your fibro is so bad that they won't accept you into their outpatient program? You should be the perfect candiate in my mind. It sounds like a great program.
MarFran responded:
The Mayo Clinic also has a branch in Scottsdale, AZ where I used to live (only 5 min. away) and I was re-diagosed there and treated for fibromyalgia in 1997. (They even have a branch somewhere in Florida that they opened awhile later, but I'm not sure where.) I've had fibromyalgia/CFS for approx. 20 years and they were the first ones to take my problems seriously. I attended the class held by an RN nurse and it was very helpful. I don't remember they giving me any books, but they recommended a good one I could buy through their pharmacy which was extremely helpful. Their physical therapy was wonderful also. I moved to the Seattle, WA area about 10 years ago and I miss being close to Mayo with all their many specialists located under one roof. Their doctors were the ones who diagnosed my hyperparathroid condition and did surgery one me after I lingered on for a long time not knowing what was wrong with me under a previous doctor's care. I highly recommend the Mayo Clinic for anyone who can get there.
booch007 responded:
Gee, I wonder if I would benefit from a go through with them? There is one in Jacksonville, Florida.

I pretty much have my tool box down and agree with my position here, but I would always love to learn more.............

Physical therapy never did anything for me......and I would want them to see me before shots when I have my tight bands and trigger maybe a different label can be on my head. BUT....I am so functional in the mess we are in.

Thanks for the post and I will copy and paste the info.

Nancy B
lb707 replied to MarFran's response:

Just wanted to give this info.....somewhere in Seattle and it is either Harborview or UW there is a CFS & FM clinic.

I have never been there as I hate Seattle traffic and the trip takes a friend of mine the whole day. She gets a lot of help there and they work with her Dr. in town.

Might be worth looking into.


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