barney12I don't know how I missed you... Please come back and give us another chance to be here for you... It must have been around the weekend that you posted and we are slow then.. I myself was ill... I was here to read a little and don't remember seeing your post... I would have tried to comment...
When I first got here I was a mess... I have multiple illnesses and didn't need nor appreciate another one... especially one that gives me no hope of a cure... like so many others... I was not helped with the pain... Given neurontin which didn't touch it... I was in tears when I reached out and explained my desire to not be in this pain any longer... I was so suicidal... I didn't think anyone could talk me out of it...
This wonderful group reached out to me... One by one they shared their hearts and I suddenly wasn't lost and alone in my world of 24/7 pain... They shared the strengths that only a group can find together.. They helped me find the toolbox to the right of this box under "Helpful Tips"... Please read there it is a great place to start to find hope and tools to fight this "dragon" we call "FM"...
I am still in pain 24/7... depending on the day and now the emphasis of the other diseases anywhere from a 4-5 to a 8-10
I try to tay as positive a possible... I try to come here daily if only to read and not to be alone... I am grateful to find people like you I can help for sharing and helping makes me stronger and more accepting of my illnesses and pain... And I do so appreciate that... I am human I am not perfect... I do get down and depressed and even angry sometimes... I get tired of the pain... But I am very spiritual... And I try to fill my soul and spirit with strength and hope everyday...
For me it takes daily and sometimes... USUALLY... moment to moment acceptance of my illness and life as I have it... I motly have to pace myself... even if that means I have to stay in bed... And allow others to care for me... I am lucky enough to live with my 2 sons who do so... They live with pain and FM themselves... One diagnosed... one an ifey says his Dr... Just because he isn't a true believer...
Sometimes with assistance I can cook a small meal... do a load of laundry... sit long enough in my wheelchair to stay out of bed a few hours... with lots of breaks... and spend actual quality time with my grandchildren and sons...
Lately that doesn't happen often... Not even one at a time... but I still find hope for I haven't fell in over a week... And I only had one day where I had a bad day walking where I was at risk during that time... And tho my pain i bad... My FM flare seems to be backing off a bit today... Praise God....
Please look closely to your life and search to find your hope even if it is just this message... I do hope this helps... And I hope others will see it and message too...
Take care and come back soon... vent... ask questions... read... don't be alone... be with us for we understand...
Love you new friend... Jan/Dakota