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Fibro Levels
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An_198668 posted:
YES, there are different levels of fibro.

Level 1 - is the person who feels fine most of the time. Then gets a flare-up that feels like the flu, with pain and fatigue of the flu except no fever. This clears and all returns to normal.

Level 2 - is the same as above, but on a predictible schedule. Like flare-ups every 5-10 days or after every time you mow the lawn or other labor extensive event, as example.

Level 3 - is the person who has the body aches and fatigue full time, and can find releif in over-the-counter meds. This person also has the above flare-ups.

Level 4 - is the person who has the above, but the body aches are now full-time pain and need perscriptions to endure. This person also need additional scripts for flare-ups.

Level 5 - is the above person, but the perscriptions are not enough and a flare-up can happen from an every day activity, like showering, running to the bathroom, trip to the grocery store. This is the Level that is clearly disabled.
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Grandmaof03 responded:
This was VERY....VERY Helpful...

Thank you so much...

Colleen
 
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lmprice1950 responded:
This was very helpful. I see myself at a level 4 almost 5. Leaning over to sort clothes, trying to work in my flower bed, doing dishes, anything like that makes it worse but I am already on Lyrica and Cymbalta, not sure what else can be done.
 
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TCL38 responded:
Just fyi folks....as far as I can tell this is only one persons opinion of the levels of FM. I have been unable to find any research or literature identifying levels or stages of FM. If this information is from a reliable source/article, I hope the person returns to post where he/she found it.
 
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teddybear200 responded:
This post is odd to me - only because it is the same one that was posted as a reply to questions I had asked. My post was "Okay I have a few ?'s for you all" responder was: FrancesMary52

Since I am new to Fibro - how do I know what is true or not?
 
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MagPrincess replied to teddybear200's response:
In all the research I have done I have never ever come across this information.

I would not put any faith in this until a valid post is put with the source of the information
 
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Dairyl replied to MagPrincess's response:
It's believable to me, because this is exactly how the course of my illness has taken me, and I am at level 4. Without a doubt.
 
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MagPrincess replied to Dairyl's response:
I think my point is that this is someones guess.

I would say that some days I am a level one and other days I am a level five. It varies.

I think its a good guide but I wouldn't put alot of faith in it and i would almost guarantee that a doctor would have no idea where this information came from or have heard of it.
 
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An_198669 replied to TCL38's response:
Yes, this is only my opinion of what fibro levels (not stages)should be. The medical/research community has not yet found a biological test to use to measure fibro or pain. Beyond their lack of ability to measure pain, each person may experience it differently.
I did it to ease communication, provide further understanding and give this group a measure to guide their loving support to one another.
Sugestions for pain management can be more helpful if you can understand what level of pain a person is experencing. I person at Level 5 needs different advice then a person at Level 1-3.
It may also be very helpfull for people to see that we are not all experencing the exact same fibro.
I did see in medical research the term "severe fibro", but it did not explain it's difference from regular fibro. I can wait for the day when they can test my P level and adminster the exact amount of pain medication I need for the moment.

Maybe someone, besides me should identify levels a post the in a medical research paper. ..... hmm Dr. P?
 
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dollbug replied to An_198669's response:
Hello.....MiMi in NC....I think that you should have put that this was your opinion.....and an opinion is not the same for everyone....

I have learned how to "control" my pain by taking vitamins and supplements....and since we are all different....my opinion would certainly be different from someone else's opinion....

I do not think anyone can truly say....that pain for them is the same as anyone else's pain.....we all have different body chemicals and I think this plays an important in how healthy we may or may not be.....everyone does not get cancer....although...we are exposed to it everytime....so says the cancer researchers.....

Anyway...this is just my opinion....

Take care..


MiMi
 
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TCL38 replied to An_198669's response:
There are universal pain scales already in place and the medical community uses them all the time. While they are not a biological test it is a universally accepted representation of a person's pain.

My pain mgmt. doc. has me assess my pain using the 1-10 scale to answer a series of questions before each visit. And then he reviews the answers with me and we discuss next steps.

However, the universal pain scales nowhere near coordinates with the levels you posted. And that is because fibro is more complex than just assessing pain. Besides most of us here have a cache of co-conditions we each experience individually so I think it would be impossible to pigeon-hole people into levels of fibro. It's simply impossible.

You said it may be helpful for people to see that we all experience fibro differently and I agree.

Just as science has learned that heat/pain receptors in the tongue are genetic as well as individual so will I believe science will discover a similar mechanism with fibro patients.

If you are having difficulty communicating your pain to your caregivers I strongly suggest you learn to speak their language. Below is a link for the universally accepted pain scales. They all assess pain from least to worst but each use a slightly different method.

http://www.painedu.org/Downloads/NIPC/Pain%20Assessment%20Scales.pdf

I hope that helps.

Tanya
 
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debw216 replied to An_198669's response:
Well Anon8393, I agree with everyone else.... I think you should've stated that this was "your" opinion and only your opinion. I am not new to having a chronic disease/pain (Lupus and now Fibro) but there are people who are posting, that are new. And I think that maybe you may have, complicated a very sensitive issue and maybe even confused them.

Pain levels are determined by the person who has the pain. Period, end of story. And I think that, people are very capable of expressing to a Dr "where" they have pain. What the pain "feels" like, ie burning aching, and throbbing etc.... What activity they can or cannot do...etc.

In a nut shell, we are all different. And it really doesn't matter if a person has Fibro, Lupus or even a woman in labor. One person's pain level will be different from anothers. And that is why there is a scale (pain level from 1 thru 10) in use today, to determine exactly that.

So, you said,"This is only my opinion of what fibro levels (not stages) "should" be.

No...no...no, there is no "should be" about it. Offer advice, offer support but please do not offer what you think a medical opinion "should be."

You also said, "The medical/research community has not yet found a biological test to use to measure fibro or pain."

Yes, they have. And it is the scale, that I mentioned above.


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