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Mucinex
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cinndot posted:
My doctor told me that a lot of people use this for fibro. Has anyone heard of it.
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MarcieJae responded:
Hi cinndot,

My pain management nurse practioner recommended I try Mucinex too for FM. I really don't know what it does other than help my breathing.. Are you a cigarette smoker?

I was hoping that someone would let me know if they've been using Mucinex and would give me some info on it too.

Marcie Jae
 
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annette030 responded:
It contains guaifenesin. A Dr. St. Amand, MD feels that this can fix FMS. He wrote a book years ago about this. OHSU Medical Center in Portland, OR has a FMS Treatment Center. They do a lot of research there under Dr. Robert Bennett, MD mostly. He is a rheumatologist. They did a year long study on this medicine, and found it did not work any better than a placebo. Dr. St. Amand was consulted in setting up the study, but after the results came in he said it didn't work because he had since discovered that one must avoid contact with salicylates or the guaifenesin would not work.

My problem with that is that he claimed the guai worked fine before that study was done, when he was not having his patients avoid salicylates.

Anyhow, the article witten about this study can be found at the site http://www.myalgia.com and you can read it for yourself.

If and when Dr. St. Amand, MD does his own study that proves his theory that this stuff works, I will read it and maybe even try this stuff. I have not found people who have been on this protocol for years and have been able to stop all their FMS meds and are doing well, back to work, etc.

There are few and uncommon side effects, so I don't think there is much harm in trying this if you want to.

Take care, Annette
 
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MagPrincess replied to annette030's response:
When I take it for my allergic asthma and chest congestion i do notice i tend to feel better the first day or two but that is about it.

I think its probably more due to being able to breath better than the guaifen stuff.

I also found that when i was taking it daily it like many other Medications became less effective.
 
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annette030 replied to MagPrincess's response:
I agree, it is an expectorant to help get rid of mucus in the lungs.

According to Dr. St. Amand's book it takes quite awhile for it to work for FMS. I haven't read about it in several years.

Take care, Annette
 
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hopela responded:
Yes, my doctor has me taking it for FM as well. I did question the reasoning. Basically it is to help with your lymphatic system and to help boost your owm natural immunities. Since FM is an auto immune disorder, then I guess the idea is to help boost your own immunites. I think the Mucinex is to clean out your lymphatic system She also has me taking a detox pill which is supposed to help in that area as well. I do think that anything that makes my body healthier is worth taking.

I hope this helps but why didn't you just ask your doctor???? I never hesitate to ask any question and i sure would not try any treatment unless I understood the reasoning behind it!
 
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Linet1027 replied to hopela's response:
Well, I too am taking it but, not for the FM. I keep getting sinus infections, ear infections, bronchitis, and UTI, Bladder Infections. I am always with infection. I know it's because my immune system is low but, this sucks. I have even changed my diet and avoid triggers but nothing is working. Anyone else having this problem? I think I am immune to the antibiotics and never fully get over anything. Anyways... I'm sick again and on Cipro this time. Day 4 and I don't really feel much better.

Linet
 
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Cgilliland responded:
I have heard of high doses of Guafenesin helping ease the symptoms of fm. However, I don't know what kind of doses it means. It is one of the ingredients in Mucinex. I take Mucinex D for my allergies every morning, and I have noticed that I have more energy for awhile after it takes affect. I think this is because of the Pseudoephedrine that it contains. It is one of the chemicals that is used to make illegal drugs and you usually have to get it from behind the counter at the drug store. If you are like I am, and you have a LOT of fatigue, you may want to try this.
 
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LadyLovesBlue replied to Linet1027's response:
Linet, I just found this site while looking for updates for fibro. I have been diagnosed with many autoimmune and other conditions including fibro and cfs. I still find it hard to believe that I would have any, let alone the many conditions/illnesses. One thing that struck me was that you mentioned continued infections. Have you ever taken anti-fungal, or enzyme, or yogurt based substances to help, after taking repeated antibiotics? I was a smoker and got repeated infections of my sinuses, enought that I quit smoking at the same time I had three teeth pulled, and two were abcessed. At any rate, I am now overweight due to other issues like thyroid and pre-diabetes, but am finding my allergies, sinuses, and overall fatigue issues returning. I wonder how much is sugar, diet, lack of excercise, and of course allergies for which I am still on shots for. I took guaifenisen syrup on many occasions long before being diagnosed with anything, but can tell you i've had allergies most of my life. I remember my butt itching from grass, my nose running while playing badmitton, and other things like craving sugar at a young age (late night cookies and milk and cereal with sugar sprinkled). I'm not sure where this is going except to say it sounds like your immune system is being flooded with toxins, and you might definitely need some yogurt at the least. I drink DanActive, and also eat Activia, and any other yogurt I feel I can afford or need at any given time. I also have diverticulosis that flares up, and I just finished an antibiotic and now have a fungal/yeast infection in the groin area in the creases of my legs. Just yeast i'm sure. But i hope this helps somehow. I also saw Dr. OZ on Oprah recently and he mentioned drinking/eating vinegar to help with sugar, especially and in particular, Apple Cider Vinegar to counteract it's effects. Good luck and I hope this helps.
 
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ExhaustedSue replied to Linet1027's response:
Hi Linet,
I too had many sinus infections and bronchitis until I used colloidal silver and olive leaf which can be found at most health food stores. Make sure to get the purest colloidal silver you can find-not something cheap. There is also oil of oregano which is antibacterial, antiviral and antifungal as well. Now this is going to sound gross but it does work-I learn it from a health kinesiologist. Combine equal parts of the silver and purified water-about 2-3 tablespoons of each in a measuring cup with a pouring spout, lay down where your head can be level(like over the edge of a bed or couch), pour the mixture into one nostril and hold it there for a while(it will burn a little) then repeat in the other nostril. I did this 3 years ago and haven't had a sinus infection since. It totally cleared out my sinus which had been half full of gunk. Also, when I feel like I am coming down with a cold or lung issues, I take a teaspoon of the silver mixed in purified water and 2 olive leaf capsules a couple of times the first day and I don't get sick-it's amazing. Hope that helps!
 
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annette030 replied to ExhaustedSue's response:
Keep in mind that taking colloidal silver can turn your skin a bluish color, forever. Once your skin turns blue, there is no way to fix it.

I would avoid this supplement.

Washing out your sinuses with a Neti pot and a saline solution often works well to clear out sinus indections from what they say on TV. Dr. Oz demonstrated this on Oprah.

Take care, Annette
 
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lag7662 replied to Linet1027's response:
I have been on the same sinus infection cycle. I took many different antibiotics and it went away after a YEAR of that cycle. I have unfortunately come to the conclusion that it must be part of the fibro monster (I picked that up yesterday--I think it is very appropriate!!). I could very well be wrong. I went to an ENT for that year of antibiotics and ended up with a turbinectomy, which removes the filters in my nose. Let's just say that didn't go well. I never had a stuffy nose after that. It all runs down my throat. I quit going to him shortly after the surgeriy. Then I went to an allergist who then sent me to a new ENT who told me the surgery they did caused more harm than good 'cos it removed the filters of allergens in my nose.
Anyhow, the allergist is now pointing at the ent and vice versa and everybody is pointing at the cpap that really freaks me out. Almost enough to lose weight.
Anyway, the allergist is also an immunologist and he checked my immune system which after the sinus fiasco and gall bladder surgery and infected staples. I was sure it was shot. But all the blood work that he ordered, and it was a lot, came back that my immune system was fine.
This all makes me look back at all the times I thought I had a flu bug it was actually a fibro flare. Because it feels the same in your arms and legs and back and shoulders, that muscle pain and fatigue. I don't know if this helps you, but this is the only reason I can come up.
 
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Abbott6pack replied to Linet1027's response:
Hi Linet1027,
I used to get tons of UTI's, get bronchitis and sinus infections on a regular basis, and I felt like crap on a regular basis. I did some research and insisted that my primary send me to get allergy testing and come to find out I am allergic to everything under the sun. This treatment was recommended , along with a few other meds, and I am starting to feel a little more bounce in my step....not 100% better but every little bit helps.

Hope this helps


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