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miserable, overwhelwhelming, profuse sweat
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cathiepc posted:
My days are structured as much as possible around sweating. I try to do gardening first thing in the morning before showering (even tho I look like a witch from sweating during the night and my hair looks like Phyllis Diller) and hope no one driving by can see me. Then I try to do yard work in the evening so that I can take my next shower after that and not have to do my hair and everything all over again. The only true relief for me is standing with my head under a cold shower and leaving my hair wet. Cathie
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Mariposa92 responded:
I too profusively sweat. I am only 29 years old and everyone looks at me as if there is something so wrong with me. I truly understand what you go through. It can ruin a great mood for mood in an instant. I have always been someone who can have a good sweat, but this is something in its' own category. I have had fm for almost three years now as a result of two major car accidents. At first I thought it was the medicines I was on, but now I seem to think it correlates with my pain and fm. I was recently on Savella for a little over two months and that medicine made the sweating even worse! I tried to bare with it to see if my body would build a tolerance to it and then it would taper off, it didn't. I have now been off the Savella for three weeks now and the sweating has decreased a bit but it is still bothersome!

hugs to you!
 
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dovergirl7 replied to Mariposa92's response:
I too have these hot flashes, that's why I couldn't stay on
Savella either. Did you try any other medicine that agreed
with you? I'am new to having this miserable fibro too.

Hope you are feeling better.

God bless,
dovergirl7
 
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Caprice_WebMD_Staff responded:
Hi Cathie,

Click here for a discussion on sweating, which includes a response from our Dr. Pellegrino. :-)

You're definitely not alone.
Treat people as if they were what they ought to be, and you'll help them to become what they are capable of becoming. ~Goethe
 
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mecheller25 replied to Mariposa92's response:
I too sweat like there is no tomarrow. I use clinical strength deodorant 2 times a day. Never have taken Savella was on gabapentin for a year and a half or so and now on Lyrica. So I dont think it is med related.
 
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Brooksi45 responded:
Thank you so much for bringing this up; I thought I really was losing it; I mind the heat sooooo bad and I am sweating sometimes so bad that I think I could wring the water out of my hair. Now I know; I really appreciate you sharing this. Hugs Brooksi
 
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Brooksi45 responded:
I also suffer with the sweats; not as bad as some of you; but I hate it. I feel like my hair is so wet I could wring out the water. And I mind the heat so bad; before I had fibro; I could go outside in the flower garden in 90 degree weather; those days are over now.
Gentle hugs to everyone. Brooksi

 
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stacey_30 replied to Mariposa92's response:
I was able to cut down on the hot flashes & night sweating by taking 2 Nature's Bounty oderlesss garlic w/parsley softgel capsules every morning. They seem to help.I have never been able to take the heat but I have Raynauds so cold is a problem too. I also find wearing cotton wicking night clothes also helps. I tried Lyrica but it caused breathing problems, Cymbalt caused liver problems. The doctor suggests Savella but since I had problems with the first 2 I decided not to try it.
 
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joolsie responded:
I was recently diagnosed, but have been dealing with this confusing condition for over a year. I used to wonder why the heck I was sweating profusely and had absolutely zero tolerance for heat (especially humid heat). Now I know!

I'm so glad to know I'm not alone. FMS affects you to the core, every cell of your body. I sure wish someone would find out what causes it so that it could be better treated.
 
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8gkids replied to joolsie's response:
thanks, joolsie and everyone else, i've been diagnosed for a little while, but this site has made me much more aware. i'm starting to understand the extreme sweating now. does this continue in winter weather too?
 
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lzbthnn replied to 8gkids's response:
I can sweat at the drop of a hat, melting my makeup off in seconds. I've had fibro since 1993, but the sweats didn't hit until the same time menopause hit. Fun !! I take Effexor and clonazepam, soma and morphine. I had a horrible reaction to Lyrica a couple years ago, landing me in the ER twice in one week. Counseling helps me alot.
 
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mosmom13 responded:
I thought my sweating was a result of Menopause! Didn't know it was from the fm. I sweat terribly at work and my hair is often soaking wet. Also at night. What to do?
 
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BevGaines responded:
I have been having these sweats for months now - am well beyond menopause - and normally I do not sweat unless it is over 90 degrees. I couldn't understand why I would be waking up from a nap, or a nights sleep and my chest and neck would be soaking wet, and my hair! Well lets just say every morning I too looked like Phyllis Diller. It didn't matter what time of day or the temperature, but it only happens when I sleep.
 
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fibromannw replied to dovergirl7's response:
I've had fm for over 15 years. I've tried many many meds and Savella is the only thing that has been successful in reducing the pain significantly. I know sweating isn't pleasant, but I'll change my shirt, shower 3 times a day and bare the embarrasment of profuse sweating to get rid of the pain.
 
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terramac59 responded:
I started the terrible sweating in 2003. Thought it was hormonal. I saw a Gyn, who did a total hysterectomy. I was 42 at the time. What a mistake. This just sent my body over the edge. I have Hep C also, and my body cant metabolize the replacement hormones because of my bad liver. I have seen just about every doctor imaginable to try to stop this horrid sweating. Finally, it was recommended I try gabapentin in 2008. This gave me some relief. If I was late taking my meds by even an hour, I would be soaked again. Gabapentin has quit working, even at the max. dose. I just started Lyrica a little over a month ago but had to go up to 200mg/ 2 times a day for it to work. My doc says that is about the max. dose for FM. Is this true? If so, what is left if I become immuned to this dose and the Lyrica quits working? Between the sweating and PAIN, I dont even feel like myself anymore.


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