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seeit2 posted:
I'm praying for you guys.
Deb (40) DD (4) Funny, spirited, curious, has a severe milk allergy, DS (1) fearless and bottomless, peanut allergy
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mrswhitecastle responded:
Thanks for thinking of us!

How are your sister and brother in law doing? Well, I hope.....

How is your son doing? Did his breathing issues improve?

Emily saw the pedi yesterday. He didn't have any results, so I will call the allergy/asthma doc today.

Emily's lungs sound great, and if you didn't know her history, you would think she was a regular, healthy kid. And really, overall, she is! We did some of her well-checkup stuff, and she is at 25th percentile for height and 60th percentile for weight. So, even if it is some immune disease, she is still doing well.

I can't remember if I posted about it or not, but I went out and bought a stethoscope. I'm SO glad I did. It was just around $20, and it's so nice to be able to listen for wheezing and crackling. I went online, and watched some YouTube videos to see what different sounds the lungs make. Now, if Emily starts complaining, I can take a listen and decide if I need to call the pedi or not. I would highly recommend getting the stethoscope.
Emily (9 - allergic to tree nuts) Elizabeth (7)
 
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seeit2 replied to mrswhitecastle's response:
Wow that 's a good idea! I love Youtube. I have learned SO MUCh from Youtube lol. I'm glad Em is holding her own. She is growing normally so that is always positive news.

My BIL got a MRSA infection and it took a long time to beat that back (he will always have it, but it might not kill him now...that's the best they can do) and today he is moving form the neuro ICU to a rehab unit where he will receive three hours of therapy per day. PT, OT, and speech. He has some cognitive deficiencies (his short-ten memory is shot) and they are trying to decide if that is going to be permanent or not. On the positive side, he is still breathing and recognizes his wife and can move and function somewhat independently, but he may never again be the man he was . All we can do right now is watch and wait. My mom is with my sister now, which is good - she can stay indefinitely.


As for DS, he is done with all the nebulizer treatments as of yesterday and is on singular and allergra. Hopefully he can just maintain right now. If it gets bad again we go back to the lung treatments and back to the allergist. We also got him a blood test for all 8 food allergies and a few of the major environmental ones, so I should get those results sometime next week. More watching and waiting.
Deb (40) DD (4) Funny, spirited, curious, has a severe milk allergy, DS (1) fearless and bottomless, peanut allergy
 
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mrswhitecastle replied to seeit2's response:
Good news!!!! Her immunoglobulin (I have no idea how to spell that) levels are good. PHEW!!!!

Interestingly, her antibodies for several of the vaccines she has already received are low. So, we are going to re-vax for a couple of things, and then re-test in 4-6 weeks to make sure they are where they should be. The pedi may send us to another specialist to get the "super" version of one of vaccines.

We see the pulmonologist on Monday, and I know he will want to do more testing. A sweat test for cystic fibrosis is in her future, I'm sure.

But for now -- good news!

Have you heard back from the allergist about your blood test results?
Emily (9 - allergic to tree nuts) Elizabeth (7)
 
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seeit2 replied to mrswhitecastle's response:
Good news! That is interesting about the vaccinations.

Things here are nuts. We had to put our beloved dog to sleep over a month ago, and last weekend went to the pound and got a puppy and an older lab and brought them home. Like a total dummy, I did not wait for any allergy results before getting the dogs, because we had lived with one for so long it seemed like it would not matter. But DS' numbers were really high for dog and cat allergies. And since he has had such nasty breathing problems, and we have only owned the dogs for three days, we are getting rid of both of them. Obviously DD is crushed, she told all her friends at school about her new puppy and she dotes on that one like a child. DH is crushed too. DS doesn't really care and, to be honest, neither do I. This means much less work and expense (especially less work for me!) and if DS can get healthy and stay that way for even a few months then I am all for it.

He came up negative for all the foods we tested (it was a children's panel - some were a little weird) which is also a huge relief. And no mold, fungus, or dust mite allergies. No oak allergies. But the peanut numbers have shot way up, from a 5 to about 65. So we have to be even more diligent with DS about that. But hopefully without the constant onslaught of dog and cat allergens we can give his little body some time to get right otherwise. He is really kind of a sickly kid. I hope this helps make that better.
Deb (40) DD (4) Funny, spirited, curious, has a severe milk allergy, DS (1) fearless and bottomless, peanut allergy
 
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mrswhitecastle replied to seeit2's response:
I'm so sorry about the dog situation.

While I was sad when our last dog died, it was a big relief to not have the dirt, dander, and expense. Although, I do have to vacuum the kitchen floor a lot more often now!

Wow -- that is a big spike in peanut numbers. How long had it been since he had been tested?

I'm hoping we only have about a month left for spring allergies. I don't think I have ever looked so forward to spring being over! Hopefully a nice summer will give all the kiddos enough time to get better and start feeling good again!
Emily (9 - allergic to tree nuts) Elizabeth (7)


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