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what now?
sirrefluxalot posted:
My wife has informed by here gi doctor that he can do nothing further for her condition. After reviewing the results from her mamometry test he told her that neither he or anyone else could help her. All he said was that her esophagus did not work properly. No follow up, no advice. All he said was for her to keep taking dexilant. She also has a hernia that he would not perform surgery on. We are going to pursue other opinions, but we were wondering if this is the end of the road for her condition or if anyone else has had this experience.
calgal37 responded:
What has she been diagnosed with? Was it achalasia? Are you dealing with a 'regular' GI doc or a motility specialist?
sirrefluxalot replied to calgal37's response:
She hasn't been diagnosed with achalasia. She has GERD with a hiatal hernia. The hernia prevents her LES from closing properly. The doc is a GI specialist refered by pcp. He explained to her that hernia surgery could cause her esophagus to fail completely and he wouldn't risk it. He then told her there was nothing that could be done other than continuing medication. She is on dexilant, which doesn't help and the doc mentioned Regalin but side effects were brutal. No follow up visits or tests were scheduled and he told her it didn't matter who else she went to that the result would be the same. If that is true shouldn't he at least given her some ideas on how to cope with her condition?
calgal37 replied to sirrefluxalot's response:
Something about that manometry exam is telling him that there may be more than just GERD and a hiatal hernia issue. You either need to sit down with him and get further answers, or take all of your records to someone else and talk about it. You want to find out the 'why' of what could cause her esophagus to fail completely.

Also discuss the possible use of the magnetic bead ring that some seem to find a decent alternative to a fundoplication. It has drawbacks just like the fundoplication, so do a lot of research if it's suggested.

Reglan side effects can be difficult for some, but in many cases it's worth a try.

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