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My name is Michele, 38 yoa. I just had my EA and D&C on 7/18/2012. This procedure was supposed to be the end all be all of all my pain from my terrible periods, yeah right.
I went to in for my yearly pap and was scheduled for an ultrasould 2 days later by my doctor. He said he was concerned because of my heavy, cloting periods lasting more than 14 days per month. I went for my ultrasound and that same day he scheduled me for a biopsy. He said that my endometrium was way to thick for just getting over a 14 day period as heavy as mine was. That procedure was so painful. After the biopsy he said that he wanted to speak to me about a procedure that he felt would be best suited for my condition.
I have not been able to take any form of birth control since August of 2010. They found 4 blood clots in my upper right lung and came to the conclusion that they formed from birth control. I was on birth control since I was 14 yoa to help control my periods back then. I have always had really bad periods with severe cramps and clots. When I was 19 yoa I was diagnosed with endometriosis and ended up having 5 different surgeries to try and help this problem. I was also diagnosed with Polycystic Ovarian Syndrom (PCOS). I have been through hell with these female problems. They have caused me so many problems at such an early age in life.
When I had to come off of birth control all my problems intensified. My Gyn felt he had the best solution for me the EA. He said that for me to have a partial hystorectomy was not needed now a days. He further said that it was best to keep the uterus in place so that all my female organs wouldn't drop and cause more problems for me. So in my head this was the best solution. I knew there was still a possibility that I might have a slight period, but that didn't bother me.
I was really feeling positive about this surgery, because that was how he made me feel. I remember them giving a shot of Toradol before the surgery to help with the pain when I came out of the surgery. But when I came out of the surgery I was in so much pain I was crying hysterically. The nurse got my doctor immediately and they gave me another does of Toradol. It still didn't really help me, but it took the edge off a little. He also gave he a prescription of percocets. I just remember feeling all this pressure in my vagina and cramping in my lower abdomen. I never had back cramps like a lot of you have said. All of my cramps were in the front.
The next morning I started experiencing pain in my hips and upper thighs. I remember telling my mother and she thought it was possibly from the way I was sleeping. She said I had slept with my legs curled up. But the next day I was hurting so bad in my legs I could sit, or stand still. I didn't know what was going on. I felt like I had a bad case of growing pains. So, I called my doctor and he sent me to the ER. They checked me for blood clots. I went through ultrasounds and an MRI, blood tests. They had no answers for me as to why I was in so much pain, so they sent me home. They gave me a muscle relaxor and Toradol to help with the pain.
Then last night I had so much pains shooting up into my vagina and pains ripping through my lower abdomin. I was walking like I was a 90 yoa woman. I was hysterical. I called my doctor in the morning and took me in today. He did an exam on me and he couldn't figure out what was wrong. He gave me a shot of Toradol and a prescription of this medication. He told me he wanted me bedridden for the next 3 days and wanted to see me again on Thursday for an ultrasound. He also put me on an antibiotic ciparo. I do not think he knows whats wrong and I think he's worried.
He told me that he is going to figure this out and get to the bottom of it. My mom was in the room with me the entire time. He told her that he did not want me staying home alone and asked if I could stay at my parents house. He looked really worried. .
Physicians from the Mayo Clinic (http://www.ncbi.nlm.nih.gov/pubmed/19104365 ) reviewed the outcomes of 816 women who had an Endometrial Ablation (EA). Factors which seemed to predict successful stopping of all bleeding ("amenorrhea") included: age 45 or older (menopause would be kicking in within 5 years or so), a thin uterine lining of less than 4 mm, normal size of uterine cavity (less than 9 cm), and use of NovaSure type rather than heated balloon. Patient characteristics linked to treatment failure were: age younger than 45 years, five or more pregnancies (leads to larger uterine size), prior tubal ligation, and history of bad menstrual cramps. Of note, 5% of their women had complaints of pelvic pain after their EA procedure. Among that 5% of women with persisting pain 40% had retained fluid within the uterus—referred to by the authors as "postablation syndrome."
EA and adenomyosis. As you know, one can have endometriosis which invades into the muscular walls of the uterus. This is called adenomyosis. It is very difficult to diagnose; most often it is identified after removal of the uterus. Adenomyosis is not well visualized on ultrasound; an MRI may be needed. Like endometriosis it can worsen menstrual cramps, create uterine pain, and even prompt bleeding problems. I began to wonder if there was a link between continued pain after EA and possible undetected adenomyosis.
I found a study of 190 women with known adenomyosis who had a rollerball EA. After an average of five years follow up, almost 87% reported reduced or no menstrual cramps. This leaves 13% who had continued monthly pain. In a smaller study of women receiving microwave ablation, 59 had known adenomyosis. After an average of five years of follow up, younger age and presence of adenomyosis, were found to be linked to unsatisfactory treatment outcomes.
The pain of endometriosis and adenomyosis can be referred from the uterus to the lower back, (e.g., like "back labor" during childbirth). Pain from the uterus may also be referred down the thigh. There can be many other causes of low back pain, including: disc problems, muscle strain, nerve entrapment. Thus it may be difficult to establish if back or pelvic pain after an EA was related to the EA, or a concurrent medical condition.
Hopefully your GYN can figure out the source of your pain and get it resolved soon.
In Sympathy,
Jane
I really appreciate your response to my post. Please let me know where to post my article. I would like to share it with other women
I am doing okay since the surgery. My stomach has become larger since my surgery and I am urinating more frequently. I still get pains in my hip and upper leg area. I still get a slight period. My last period tinny blood clots. I also get pains in my lower abdomen. Sometimes it's hard for me to have a bowel movement because of the pressure/pain in my upper legs, hips and lower abdomen.
I honestly thought that getting rid of the endometrium would have helped my endometriosis, but I guess not.
Thank you again for responding. I am sorry I have not responded back until now. I honestly forgot I had posted this.
Michele
I think your experience is very important, and may be helpful to other women. If you would be willing, we would appreciate do a" cut & paste" of the original and follow up message. You could then paste it on this link:
http://forums.webmd.com/3/gynecology-exchange/forum/12649
In Gratitude,
Jane
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