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A literature search at the National Library of Medicine site covered mon's conditions such as: rare types of tumors and a lymphedema. Here is one citation on the later diagnosis:
Ann Plast Surg. 2012 Jan;68(1):101-4.
Massive localized lymphedema: review of an emerging problem and report of a complex case in the mons pubis.
Brewer MB, Singh DP.
Source
Division of Plastic Surgery, Department of Surgery, University of Maryland Medical Center, Baltimore, 21201, USA.
Abstract
Massive localized lymphedema (MLL) is an emerging complication of the obesity epidemic. Caused by the obstruction of lymphatics, MLL presents as a giant swelling, with characteristic skin changes, and often lymphatic weeping. MLL has also been called "pseudosarcoma" because of its morphologic and pathologic similarity to sarcoma. Left untreated, MLL can degenerate into angiosarcoma. We present a case of MLL of the mons pubis in a 40-year-old man with a body mass index of 69. The literature is reviewed and an additional 40 cases of MLL are described. We found a female predominance of 1.6 to 1, an average weight of 421 lbs, and a 58% majority of cases in the thigh.
Yours,
Jane
From what you have shared, your best bet is to try and be seen when the symptoms (especially the swelling) are most apparent (eg when the swelling is from the vulva down to the buttocks). Because I have not personally seen this condition, I can't add much to what I found on the medical literature search.
If you do get a definite diagnosis would you be so kind as to write us all back on this original post so I can find you. Amazingly, another woman with your exact symptoms will find your posts (via your clearly worded subject line) even several years hence. Your experience would be invaluable to her.
In Gratitude,
Jane
. They said that they had not heard anything but if I had a blood clot they probably would have heard something that day. The office closed at 3:00 pm on Friday. They said that they should have the report by Monday and will call me. Still have swelling and pain in my right leg and the vulva is still swollen. Since I was getting an ultrasound and taking time off work anyway I said that my swollen vulva is what started this whole thing and it was swollen for five weeks before my leg startd swelling and hurting so I asked if he thought I should have a pelvic ultrasound just to check. The nurse said that she would ask him and if so they would add it and if not I would just get the leg ultrasound. Meanwhile everything is the same, the swelling in my leg is not tremendous and it only affects my thigh area, nothing else. So I still don't know what is wrong and I guess I will wait to hear from the doctor on Monday. I will definitely post back when I found out exactly what is wrong. I just hope I don't have to go through massive amounts of testing to find out. I am wondering though, since my vulva (especially my mon pubis) has been swollen for about seven weeks now should I be concerned about skin breakdown or changes due to the extended period of time? Just wondering. Thanks again for all of your help.I wish I had a suggestion for you. I am just clueless at to what to do or say next for my own situation but I will post back if/when I find out what is wrong with me and maybe that will give you some insight on what to do next. I honestly don't know what is causing my issues. I do hope you find out what is wrong with you as well and I hope you can find someone to help you. Hang in there, sooner or later someone should be able to help you. At least that is what I keep telling myself.
Have a good weekend.
An
Shellcol2, if you are still a "boil" with extended borders you should find a general practice MD or clinic. Your condition may actually be a cellulitis, too.
Yours,
Jane
In your specific case your symptoms must have been very severe to merit two vulvectomies. It appears that antibiotics temporarily help--but then the yeast ensues. It also sounds like you have a problem which chronic/recurring yeast between infections.
There is a subgroup of women who have chronic and recurrent yeast infections. It is important to document that these infections are truly candida (yeast). Other infections such as lactobacilli vaginitis can masquerade as yeast, but yeast medications will NOT provide any lasting relief. Certain dermatologic conditions of the vulva can have symptoms which mimic yeast (eg lichen sclerosus).
If a woman has proven recurrent yeast, by either vaginal fungal culture or wet mount preparation, then some additional testing can be done to see if a predisposing medical condition (eg diabetes, HIV) is the culprit. In your case I would suspect this has already been done.
Women with chronic yeast may be treated with a variety of options. A change of prescriptive yeast treatment may be tried. Preventative treatments may be used around the time of menses every month--if that is when you have the flares. Use of other medications which can predispose women to candida (eg steroids, chronic oral antibiotics, or even birth control pills) may need to be re-examined. Some healthcare providers will use treatments like vaginal boric acid capsules for either treatment or prevention in the cases of resistant vaginal yeast.
" Lifestyle" changes may be initiated.Lifestyle methods, which have been advocated for "yeast infection prevention," include: a diet low in refined sugars and simple carbohydrates, avoidance of tight jeans, use of cotton underwear, and others. There are few, if any, good research studies which demonstrate that these methods are helpful, but some women swear by them. There is even the suggestion that being the recipient of oral sex may predispose a woman to recurrent yeast (Reed, 2000).
With the over the counter creams you might be a better candidate for the seven day regimens rather than the three or one day versions. No matter which regimen you use you will receive the same total amount of active anti-fungal. But in a seven day regimen the dose will be less (hopefully less irritating) than getting the whole dose in one day. Another thing to evaluate is the inert ingredients used in each product. One product may have more irritating effects in the vehicle which is used to make the cream or gel or ovule.
In Support,
Jane
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