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Did you have any "menopausal" symptoms after the original surgery (hysterectomy) or did you start HRT shortly after? Women your age and even older typically feel the effects of ovary removal fairly quickly after surgery as ovarian hormones have many essential functions even after menopause. I didn't have hot flashes right away but sleep issues kicked in almost immediately.
Did you have the same pain before your appendectomy? What workups were done to indicate your appendix was the culprit? Many appendectomies are done without appropriate workups and the appendix wasn't the problem at all. Adhesions (scar tissue) develop after any type of surgery and these can cause pain so it's possible those are the source of your pain. Were your ovaries and tubes removed with the last surgery under the premise that removing them would resolve the pain?
It would be a good idea to get all your medical records and pay particular attention to your imaging (MRI) and surgical reports. In my opinion, I'd be looking for new doctors (ones affiliated with a different hospital) although doctors can be hesitant to "clean up" others' messes.
Yes, there is something called ovarian remnant syndrome. Here is a citation about this from the National Library of Medicine site:
Gynecol Obstet Fertil. 2009 Jun;37(6):488-94. doi: 10.1016/j.gyobfe.2009.03.027. Epub 2009 May 19.
[Ovarian remnant syndrome: diagnostic difficulties and management>.
[Article in French>
Fat BC, Terzibachian JJ, Bertrand V, Leung F, de Lapparent T, Grisey A, Maillet R, Riethmuller D.
Source
Service de gyn?cologie-obst?trique, centre hospitalier de Belfort-Montb?liard, site de Belfort, 14, 90016 Belfort, France. bchungfat@yahoo.fr
Abstract
OBJECTIVES:
The ovarian remnant syndrome is a rare condition after unilateral or bilateral oophorectomy, with or without a hysterectomy. This syndrome occurs when a fragment of ovarian tissue is left behind and becomes functional and cystic. The purpose of this study is to report the cases of patients treated surgically for an ovarian remnant syndrome during the last 10 years and to recall the diagnostic and therapeutic difficulties.
PATIENTS AND METHODS:
A retrospective, observational study was carried out between 1997 and 2006. Seven patients were treated surgically for an ovarian remnant syndrome. Perioperative data analysis (history, surgical techniques, and postoperative follow-up) was carried out.
RESULTS:
The mean age of the patients was 46 years (36-55). The number of previous abdominal surgical procedures ranged from 2 to 5. The syndrome appeared after a mean period of 4 years and 4 months (range 5 months-12 years) after oophorectomy. Among the 7 patients, 3 had had a previous hysterectomy. Pelvic pain was found in all cases. Gonadotropin-releasing hormones agonists were used in 1 patient without success. Aspiration was performed in 2 cases before surgical treatment. Two patients underwent a laparotomy in the first place. Laparoscopy was performed in 5 cases and laparoconversion was necessary in 1 case. Intraoperative difficulties and anatomic variations were found in all cases. Ureteral catheters were placed in 2 cases. Radiotherapy was performed in 1 patient who had a recurrent ovarian remnant.
DISCUSSION AND CONCLUSION:
The ovarian remnant syndrome is a rare complication. Surgery, either by laparoscopy or by laparotomy, is the recommended treatment. These operations are often difficult and associated with a high risk of complications. Histologically, remnant ovarian tissue associated with hemorragic corpus luteum cysts is the most common finding. The prevention of the ovarian remnant syndrome is based on rigorous surgical treatment during the oophorectomy so as not to leave behind ovarian tissue.
As you can note hbutterfly, neither ovaries nor tubes actually regenerate. But a tiny fragment of residual ovary, under the influence of the stimulating hormones from the pituitary, can grow cysts (some of them full of blood--"hemorrhagic cysts"). Some risk factors include: scar tissue from prior surgeries or infections, and endometriosis.
In terms of the continued pain, it is hard to know if the left sided mass is the sole culprit. There can be many reasons for left sided pain including entrapment of a nerve. I concur with Anon_6061's suggestion that you may want to seek a second opinion. Be sure they can get copies of your surgical reports and all imagining studies.
We are grieved that you are having to go through all of this at such a young age. I sincerely hope that you can regain your quality of life.
In Support,
Jane
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