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smjpain posted:
Hi Jane so it's been alongtime since I have been on hear alot has happened I am still on antibiotics for a kidney/bladder infection and now the start of a yeast infection. I have been on three antibiotics my immunologyst has done blood work and found that my fighter cells are not working she said all of my counts are very high or very low which she is concerned with but wants to repeat the labs that I just had done that take two weeks and she said if they come back all abnormal she is going to have to more indepth testing like bone marrow and other not fun things. Then there is something else I had a short problem with urine retention had to have a cath in for one night and also my GYN who is treating the bladder/kidney infection took me off my pain medicine to see were my real pain is and on the 1st of feb my pain maingment doctor will be taking over the pain meds stuff she is going to be switching me to morphine pills because they both believe this will help my chronic pain better and right now my Awesome vaginal/abdominal PT women still continues to help me once a week and starting on the 30th every other week she has me keeping a pain diary and we have found me doing my therapy on my own isn't helping as much when she does my vaginal/abdominal therapy because I can't do the things she can do. This week I finally am going to Iowa city to see my Urogyncologyst ARNP before seeing the Urogyncologyst Doctor which I am wondering why I can't just see the doctor my Regular GYN found out that I will probably need surgery and he is also wondering the same thing since I have to drive so far away I mean Jane when I had Urdynamics done my GYN couldn't repeat the symptoms but found out on another exam during Colposcopy which was fine it was just scar tissue I had to sneeze and I peed a little on him. It has gotten so bad every time I stand up I go a little walk up stairs and laugh or cough or walk in the cold. It is so not fun My body just cant take anymore my Immunologyst is thinking some form of Luakemia but not sure yet I am so scared but finally glad my Docs in Mason City and Iowa City are actually doing something.Thanks for your Reply!
Jane Harrison Hohner, RN, RNP responded:
Dear smjpain: We appreciate hearing back from you! I still think you should have you own "GYN Journey" blog because you have had such an amazing saga to share. Hasn't it been also two years (pre-hysterectomy for sure) since you have been writing us? That maybe some sort of record for this Board.

I am personally very happy that a pain management specialist is taking over your pain medications and treatments. These specialists have the most expertise with both narcotic, and complementary, pain control strategies.

In terms of why you might have to see the Uro-GYN NP before the MD, my best GUESS is as follows. Some physicians want their own versions of urodynamic testing done; many have lengthy intake questionnaires and procedures. This does have the advantage of providing a more complete picture of the incontinence issues. As you likely know, some types can be treated with medications while others are treated with surgery. Some types are amenable to pelvic floor PT treatments. And sometimes there will be cases where there are mixed types of incontinence. So a correct diagnosis is extremely important.

It's good news that the colposcopy found only scar tissue at the back of the vagina--no abnormal cells. It's ironic that your GYN was unable to elicit the incontinence until during the colposcopy procedure.

Yes, the immunology work up sounds daunting. We hope that your next blood work does not lead down the road to bone marrow testing. Your immune system must surely be reeling form the multiple infections (ranging from MRSA to severe vaginal candida). You will have to ask your immunologist if they have an opinion as to why your resistance is so exhausted.

Thank you for keeping us "in the loop" as your story continues to unfold.


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