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An Interesting Case
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Kivva posted:
I am almost 30. In April, I had a laproscopic myomectomy to remove a10cmx6cm pedunculated fibroid from the outside of my uterus. During surgery, endomitriosis was discovered and all identifiable tissue was removed.

The surgery was performed because I have always suffered from terrible cramps that were severe enough in pain intensity to prevent me from walking and caused me to faint for 2 days per period. Within the past year, that paid had only been increasing and my periods were lengthening to 10-12 days.

post-op I was placed on norethindrone to suppress my period; however I continued to have my long periods. 10-12 days.

I was taken off it because it induced SEVERE depression in me.

I was switched to a form of low estrogen birth control, which stopped my period for two days. I have been bleeding since June 13th.

Also during surgery my doctor (who happens to be my gyno) discovered I have a "tiny" uterus; "the smallest I've ever seen". I also have a submucousal fibriod that is "pea-sized" but inoperable because it would "destroy the integrity of the uterus".

I'm wondering if the small fibroid is the reason for my persisent bleeding, and I am slowly coming to terms with the fact that I may never have a child as a result.

I guess I'm looking for some kind of support, or guidence.

I have no health insurance and the initial surgery has landed me $25,000 in debt.

I have been considering flat out endometrial eblation to just end the bleeding. But that does nothing to the endometriosis...

I'm trying to decide if I should just give up entirely on my fertility so that I can enjoy life without feeling constantly disgusting and bleeding through all of my clothes.

It's reaching a point where I resent my body so much I'm losing hope on ever being traditionally happy.
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Anon_6061 responded:
I guess no one responded? On the main page, it shows "1 Reply" but when I selected your discussion, it says "0 Replies." Odd.

Small fibroids typically don't cause problems but it probably depends on where it is. It wouldn't seem to affect fertility either but endometriosis does.

I don't know how many different contraceptives you've tried. They don't work the same in each individual woman which can make for a lot of trial and error. And of course aren't what you want if you're trying to conceive!

Have you tried any non-hormonal meds to reduce the bleeding? I assume you've tried OTC and Rx NSAID's such as Aleve and Motrin. And taking at the first sign of your period or right before you start and then keeping on the dosing schedule can make a big difference.

There's also a non-hormonal prescription med called tranexamic acid (Lysteda) that's usually effective in reducing flow. It's listed in this link of treatments for heavy bleeding - http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0015970/table/ch8.t1/?report=objectonly. I also came across this link that has user ratings - http://www.webmd.com/drugs/drugreview-154120-Lysteda Oral.aspx?drugid=154120&drugname=Lysteda Oral

Research ablation before going down that path. Pregnancy after ablation is risky to mother and baby so it's suggested that birth control be used afterwards. Ablation can also cause long-term problems. The younger a woman is at the time of the procedure, the more likely it will cause problems, one being chronic pelvic pain. It can take a year or two for this pain to manifest. There's a lengthy discussion here on women's post ablation experiences, a mixture of short and long-term - http://forums.webmd.com/3/gynecology-exchange/forum/12649.

This study of "Probability of hysterectomy after ablation" is also helpful -
http://journals.lww.com/greenjournal/Fulltext/2008/12000/Previous_Tubal_Ligation_Is_a_Risk_Factor_for.6.aspx
"Cox regression analysis found that compared with women aged older than 45 years, women aged 45 years or younger were 2.1 times more likely to have hysterectomy (95% confidence interval 1.8—2.4). Hysterectomy risk increased with each decreasing stratum of age and exceeded 40% in women aged 40 years or younger. Overall, type of endometrial ablation procedure, setting of endometrial ablation procedure, and presence of leiomyomas were not predictors of hysterectomy."

I know endometriosis can be difficult with the pain and oftentimes heavy and prolonged bleeding. And it can be extremely difficult to remove all endo since microscopic lesions or implants can be found throughout the pelvis including in the bowels. Is your gyn an endo specialist? And did he use excision versus laser? Excision is supposed to be more effective but it can still be difficult to get it all.

I assume you know about the few endometriosis organizations. There's a bit of info on their websites.

If you find something that helps (I sure hope you do), please let us know. It may help someone else here.
 
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fcl replied to RobertJason's response:
Your post is completely off topic and has no place in this thread. Start your own thread if you wish to discuss your subject.


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