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median acurate ligamate syndrome
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chm1370 posted:
I was recently told that my celiac artery is narrow and kinked Since I'm only 39yrs old the surgeon had told me theres no point in fixing it .I stay in constant pain when I eat and it last for hours the pain is like my middle of stomach is ripping and it swells up bad.So what should I do live on pain pills the rest of my life.
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CardiostarUSA1 responded:
Hi:

"So what should I do"

Get a second opinion promptly.

ALWAYS be proactive in your health care and treatment. Sometimes this requires being assertive. Best of luck down the road of life. Live long and prosper.

Take care,

CardioStar☆

WebMD community member (8/99)

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☑Be well-informed

Median Arcuate Ligament Syndrome (MALS)

A medical condition that may result in significant abdominal pain (angina-like). This pain is attributed to the compression of the celiac artery by the median arcuate ligament which can compromise blood flow and cause symptoms, such as abdominal pain shortly after eating meals, weight loss, or an abdominal bruit (pronounced "brew-ee", a rushing sound), which may be heard by a doctor upon clinical examination.

_ . _

VascularWeb

March 01, 2006

Median Arcuate Ligament Syndrome: A 20-year Experience of Surgical Treatment

Daniel A Cusati, Audra A Noel, Peter Gloviczki, Kenneth J Cherry, Jr., Manju Kalra, Mayo Clinic, Rochester, MN

Objective: Compression of the celiac artery (CA) by the median arcuate ligament (MAL) has been implicated in causing chronic pain or chronic mesenteric ischemia (CMI) symptoms. To delineate optimal management, we reviewed our 20-year experience......

www.vascularweb.org/Annual_Meeting/Abstracts/2006/Cusati_Median_Arcuate_Ligament_Syndrome.html

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James_Beckerman_MD responded:
I am unfortunately not an expert in this area.

There may be other possibilities such as having the blood vessel dilated or stented. It may be worth your while to get another opinion and perspective.
 
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livewell4040 responded:
Hi, I just had surgery for this on Jan 7, 2010. I took me 4 years and 12 doctors to finally fix me. I am now 44 and feel the best I have ever felt in my life. I had the swelling in my stomach, legs hurt could hardly walk on some day. I felt like every organ in my body was on fire. I got to the point where I was turning gray, had black rings around my eyes, I was always tired.

There is hope out there don't give up find a vascular doctor. I live near Chicago so I went to the university of chicago medical center. Where they have a team. that deals with MALS. I had to repeat a lot of test that I had already done. Was well worth it. I have no pain when I eat . my stomach has no more swelling and I lost a inch around my legs. I walked 8 blocks and felt great. The gray color and dark rings are gone. People tell me that my face has life again. And that before I looked like I was on deaths door..

So don't give up it is fixable.
 
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James_Beckerman_MD responded:
I'm unsure why your surgeon said that there's no point in fixing it - does he/she not feel that it will improve your symptoms? Is it too risky of a procedure?
 
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chm1370 replied to James_Beckerman_MD's response:
I found a doctor and they fix the problem they cut my stomach diaphram band and ligaments which where causing the restriction of celiac artery I have no more pain in my stomach.Now I'm dealing with DVT right leg multiple blood clots went from stomach pain to now leg pain
 
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Featherme responded:
I had a CT scan show MALS but the vascular surgeon made fun of it. I waited a year and had another. This time the doc who read it recommended an interventional radiologist. I had an arteriogram done. It showed the celiac artery was being severely crushed when I breathed out. I went to another vascular surgeon. He said to go back to a GI specialist and see him in six months. I asked him how many such surgeries has he done. He told me six in 25 years. Not good enough for me!

I went to a bigger city. I had an ultrasound done that showed The results confirmed MALS. Before knowing the results, the doctor tried talking me out of the surgery by giving me statistics I know are not correct. He basically was a jerk. He told me of a surgeon but this surgeon doesn't accept insurance. Forget that! I'm hunting for a good surgeon that is not hundreds of miles away.

My legs have been giving me a lot of pain. I do have other issues but the pain is relatively recent - it's when I'm sitting with my feet up in my recliner or when I go to bed. Interesting to read about that in a reply.

I have not lost weight even though I am not eating much or often. I've been told it's because my body thinks it's being starved so it's storing fat. I'm trying to at least eat three meals a day - hopefully it will fake my stomach out and I will lose some of the fat!

Doctors are human and come with prejudice - many have them toward women, especially when they can't fix them with a pill or surgery. IALYH - It's All In Your Head is a familiar response. By the time I've seen some of these people, my head is definitely involved! I am learning how to tell myself the truth about me and not listen to lies. God helps.

Featherme
blogtalkradio.com/healthmatters
 
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tdelb replied to livewell4040's response:
My daughter recently had the surgery and now the insurance company is denying the claim saying the procedure was not medically necessary and that the procedure is currently under study and not generally accepted by the medical community...
Great.
So the battle begins. Did you have problems with your insurance?
On the upside - she is now eating without pain. Exercise is still causing some pain. 7 weeks post-op and we are supposed to be going for follow ups and I am not sure what to do...
 
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dee9971 replied to livewell4040's response:
Hi livewell4040, I know this post is old but I am hoping you are still on here and will see this. I was told I have MALS and met with the surgeon at u of c hospital. I was wondering if you can tell me how you are doing and if you know if they also removed the celiac nerve bundle when you had your surgery? The surgeon told me he has to remove the nerves but I am afraid of what the impact is when they are removed?? I hope you are still doing great! Dee
 
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slw1959 replied to dee9971's response:
hey dee9971,

Just been dx with this after months and months of ER visits. T Tthey would throw me a Xanax and say nothing is wrong with you. Pleaded for a CT scan and low and behold there it was.

Have found three hospitals, Hopkins, Brody at GW in DC and Chicago. Two surgeons here in TN told me straight out, they would not do it.

Did they take out your nerve bundle? I am convinced the ligament is binding that up as well as my adrenals. I feel sometimes I have punched internally and my insides just vibrate. I have read where the ligament can hit the adrenals and hence, that's where the adrenaline is surging from and not to mention if it is hitting the nerve bundle where the autonomic nervous system is sets your body in shock mode. Fight or flight is off the wall.

I have been going thru this for years and my cardio was going to send me to the autonomic center at Vanderbilt. After finding this dx and reading how it effects the body and what it could do I am convinced there is nothing wrong with my autonomic system. I will definitely be open to surgery. This has now become a quality of life issue. To much weight lost and the more you lose, the more the syndrome acts up, its a catch 22.

I have sat in chairs for hours not being able to move because my stomach feels like it is in my heart and just pounding. its the ligament that has bounced.....if you study how and where this ligament is and how it works, it makes perfect sense.

Let us know how you are doing!


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