Heart Disease Community

Just read through your concerns reagrding your then15 yr old. I have just started gong thru this with my 14 yr old. Wondering how it all ended up for your son?

My daughter had the exact same symptoms 10 years ago. We did all of the same tests, she even wore a heart monitor for 30 days. It progressively got worse to the point where she was convulsing. Her gums started bleeding, she had trouble breathing, her body ached, she was dizzy, passed out, had major headaches, could barely get out of bed. She would get tired just walking up our steps. She was in and out of the hospital. The doctors started not to believe me until she passed out and convulsed right in front of them. Not one doctor could ever give me a diagnosis. After many tests they tried to tell me it was all in her head and she needed counseling. One day a friend of mine was over and said "lets look up the symptoms" (this was before I was internet savvy). He put all of her symptoms in and "MOLD" was on the top of the list, I said "theres no way, we just redid this basement." We looked in her room and behind her furniture we found black spores of mold everywhere, we pulled back the carpet and again it was there." I immediately moved the family out, and called someone to clean it out. this took about 6-8 weeks. My daughter kept getting better and better, now ten years later she is fine, except she still has a large amount of long term memory loss and I also think it effected her breathing long term. All of this took place right before the big mold scare that was all over tv so I had no idea how damaging mold could be. I would advise you to look into that if you have exhausted all other possibilities.

I have a grandson who was having same simtoms, he would be walking across the room and just pass out and fall to the floor, it would only last a second but was very scary. No one could find anything wrong with him and they did not think it was his heart because he was only 16. Well they finally put a halter monator on him for 24 hrs and it showed something but not enough to tell anything. So they put one on him for three weeks, well they found out that his heart would beat so slow at times that he would pass out. It would drop down to 12 beets a minute, in his sleep. The had to put a pace-maker in and now he is doing ok and he has not passed out any more. I would ask the drs to do a heart monator for at least a week or two and see if they find any thinf.

I have syncope at times. Its wierd. I have a hot flash ( like menopause) Then if I don't fan myself I pass out. They found with the tilt table test, the hot flash is my bp dropping seconds before, the hot flash and when I fan myself my bp comes up. if I don't fan myself out I go.. just for a few seconds but out just the same. I am on two meds for it, and they do help. Midodrine hcl 2.5 mg three times a day and Fludrocotisone Acetate 0.1mg two pills daily. I split them one am and one pm. it doesn't say how to do them. Just two a day. They seem to work. it has cut it down to maybe one or two episodes annually that actually go fully to fainting. He has never said why or what causes it, I am just happy it has decreased so much. Good luck. This has to be awful for a otherwise healthy teenager.