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neurocardiogenic vasovagal syncope
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rjallen posted:
My daughter, now 15, was diagnosed almost 4 yrs ago with neurocardiogenic vasovagal syncope. The dr stated that she would "outgrow" this. Her syncope is different than what I could find online. She does not faint (the dr said she would start) but she is dizzy the ENTIRE TIME she is standing up. Because of this she has to use a wheelchair so that she may go to school. She has low blood pressure due to being an athlete but the doctor wasn't concerned. She has had a heart monitor, ekgs, xrays, echocardiogram, cat scan and some "dizzy tests" that I can't remember. It took us 4 hospitals and about 7 (pediatrician, ent dr, neurologisst and an inner ear specialist) doctors in a year to get this diagnosis. I want to know if there is any kind of treatment available.
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CardiostarUSA1 responded:
Hi:

"Her syncope is different than what I could find online. She does not faint.


That would be termed pre-syncope (or near-syncope).

"And some "dizzy tests" that I can't remember"

The common test is a Tilt-Table-Test.

"I want to know if there is any kind of treatment available."

General info/patient resources

Vasovagal Syncope

http://www.mayoclinic.com/health/vasovagal-syncope/DS00806

Neurocardiogenic Syncope Treatment

http://www.ehow.com/about_5035303_neurocardiogenic-syncope-treatment.html


Neurocardiogenic Syncope

http://www.dinet.org/NCS/ncs.htm


"She has low blood pressure due to being an athlete"

Additionally, there is a condition specically referred to as orthostatic hypotension (OH), in which the blood pressure (BP) drops substantially upon standing up, causing lightheadness, dizziness, and pre-syncope/syncope.

As applicable, it's bad enough if one has normal resting BP, but if one normally has low resting BP (hypotension, defined as being under 90/60, as seen in some athletes and highly-trained/well-conditioned individuals), then this problem may/can be worse, a "double-whammy" so-to-speak.

Most important
, communicate well with her doctors at ALL times. Best of luck to your daughter down the road of life. May she live long and prosper.

Take care,

CardioStar*

WebMD member (since 8/99)





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