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An_252768 posted:
My Honey is 41 years old. He has fistulas in his heart. The way it was explained to me was: He has "finger-like" valves between the intake and outtake valves in his heart. These "finger-like" valves steal some of the oxygenated blood.I can not recall the exact diagnosis. The only word I can remember is "fistulas".

From the research I have done, he should be tiny and weak. Let me assure you, he is anything but. He is tall and muscular.

He does have high blood pressure. However, it goes untreated. All of the blood pressure medicines he's been on makes him feel worse.

My question is: Has anyone heard of/dealt with this?
cardiostarusa1 responded:

"He has 'finger-like' valves between the intake and outtake valves in his heart."

Hmmmmm, very interesting.

"Has anyone heard of"

I've heard of coronary artery fistula (CAF), which, as reported, is a rare anomaly that may/can cause various symptoms by way of shunting (diverting) blood flow away from the myocardial capillary network (MCN).

CAF is defined as an anomalous connection between a coronary artery and a major vessel or a heart chamber (atria or ventricle) It is an uncommon form of congenital (born with it) heart disease/congenital heart defect.

"He does have high blood pressure. However, it goes untreated. All of the blood pressure medicines he's been on makes him feel worse."

**As applicable to the patient**

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billh99 responded:
A fistula is just an unusual passage between 2 parts of the body that don't normally exist. They can be congenital, the results of an illness/injury, or even done by a surgeon for drainage.

How big and the location determines how much of a "defect" it is.

Remember that you (your husband in this case) is their own best doctor. Anytime that you don't understand the details get a copy of the report so that you can go over it and then ask specific questions.

Likewise you said that he could not tolerate the BP meds that he has been given.

Keep a list of each med that has been tried and what the side effect was from that one.

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