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Going off coumadin
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dskip23 posted:
After six months on a daily (4-5 mg) dose of coumadin, my primary care physician has recommended I go off the daily coumadin dose.

I was originally prescribed coumadin after a two day hospital stay. This came after a doctor's visit where I complained of labored breathing in my chest. This doctor was concerned I had a silent heart attack and admitted me that evening. After an EKG, a cat scan, X-Ray and MRI, the doctor said instead I had six blood clots: two in my left knee, four in my lungs.

In the six months on coumadin, I have never felt better. I am running 5K races once again (restarted in late July). I feel very normal.

I am very worried that if I am not on coumadin, blood clotting will return. My doctor is more worried about what would happen if I was in an accident and that I would have severe bleeding problems. He says I go back on coumadin for three to six months should my clotting problem return

He has scheduled me for a blood test (determine if my blood clots) in two weeks and a follow up appointment in four weeks.

I am a white male, 45 years old next month.

Please either reassure me that going off coumadin will be fine or if I should resume a coumadin dose.
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James_Beckerman_MD responded:
I unfortunately am not in a position to make a recommendation for your individual situation.

But - I can tell you that 6 months of coumadin therapy is generally the standard of care for pulmonary emboli, to my knowledge, unless the person has a blood clotting abnormality (which is likely the reason for your tests).

I hope that's helpful!
 
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DMarieH responded:
I unfourtunately am VERY familiar with the DVT's,PE's,Coumadin,Lovenox etc. I have been fighting the blood clotting issues for 3 years now. It does sound like you would be safe to be off of the medication. The Coumadin has to be out of your system in order to get accurate results from the blood tests to determine if you have a genetic abnormality for clotting. If it makes you more comfortable, request that the doctor does a follow-up ultrasound of your legs, and CT of your lungs to make sure the clots indeed have desolved.(Mine didn't after 1 year of blood thinners ) Consider asking your doctor about the benefit of having an IVC filter placed, so if you do have more clots, they will be trapped in the filter and won't reach your lungs. And be more aware of your body. Once you have had clots, you are more likely to have a repeat occurance.


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