I was recently diagnosed with ARVD in my early 60s. Doc said that is unusually late to get that diagnosis. I have two questions:
1) How long have I had ARVD -- since birth??
2) Cardiologist just said to come back to see him in six months as my tests all came out really well. (Tests were: Holter for 24 hrs, SAECG [signal averaging>, Treadmill test, and Echocardiogram). So, I now I have this ARVD (fat infiltration into the heart muscle) but just "come back in six months". Does this mean I have nothing to worry about now and that I am not in danger since the tests came out well? I would almost rather not know I have it than to be left like this except for the fact that I can help my family knowing that it is genetic and that they can be checked for it, too.
Thanks for any info you can provide.
Thanks for your Reply!
b "How long have I had ARVD -- since birth??"
Can't determine for sure here.
b "Does this mean I have nothing to worry about now and that I am not in danger since the tests came out well?"
One would like to think so, though unfortunately, anything [medical> may/can change in a split-second.
Most important, communicate/interact well with your doctors. Best of luck down the road of life.
WebMD community member (8/99)
b ☑Be well-informed
b Arrhythmogenic Right Ventricular Dysplasia (ARVD)
The cause of ARVD is unknown. It occurs in about 1 in 5,000 people. ARVD can occur with no family history, although often it runs in families. A family history of ARVD is present in at least 30 to 50 percent of cases. Therefore,.....
☞ARVD may also be related to non-genetic causes such as congenital abnormalities (affecting the right ventricle), viral or inflammatory myocarditis.
Johns Hopkins Medicine
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Thanks for your Reply!
Unfortunately, we can't know how long you have had it. But the good news is that all testing appears to place you in a lower risk group. Low risk doesn't mean "no risk," but your test results appear very encouraging.
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