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Face swells when bending over
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pkmac posted:
In a nut shell: My husband, 50, has had a pacemaker for 15 yrs. Never a problem until the Dr's remove the ventricle lead, husband passed out while driving, Dr's went to replace the lead, collapsed the left bracialsolflic (which we did not learn until recently) had to transplant everything to the right side. Three years later he has since been having a swelling in his head only when he bends over. Oct 08 he went in for a Cardio CT and it was determined that he did have a collapsed Bracielsofolic as well ask his superior vinacava was closed 75% due to the pacer surgeries (scar tissue) Within the last three week the symptoms have been get more frequently. He has gone to the Cardio. Dr. and after stress test and Chest CT was referred to another Cardio. Not wanting to wait we decided to return to the Nuro. Surgeon that has diag. the SVS. He called for Head and Neck CT with contrast. He called with the results, blood clots in both jugular s. We were then referred to a hematologist for a blood work up. No results yet, however, he referred us to a Vascular Endro. After meeting with this Dr. for 2 hr, reviewed files and reports he concurred and my husband was admitted the next day for an in depth CT Angio with possible medication therapy to remedy these blood clots. Hip Hip Hurray! After the 3 hr CT the Dr. stated, There are no signs of blood clots, everything is open and the blood flow was good." There was some narrowing of the supiour Vinacava so he did Angio again. So, so happy there were no blood clots. HOWEVER, he is now worse. Even to bend down to tie his shoes, he has swelling and now acute swelling at his temples. The swelling goes away quickly when he stands up, it's just not knowing the cause or the danger. We just want to know what is going on and if you may have any suggestions. He is on Plavix and 81 mg aspirin. Very health otherwise. 6'4" 230 lbs. Please let us know if you have any information that might be helpful. Meeting with the Vasc. Sur. in the morning to review his procedure done last Thurs. Pkmac's Mrs.
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CardiostarUSA1 responded:
Hi:

"Has since been having a swelling in his head only when he bends over."

"Superior vinacava was closed 75%"

Noteworthy, as reported, the first symptom of a superior vena cava obstruction, or superior vena cava syndrome, is often a sensation of fullness in the face when bending over. Other possible common symptoms include shortness of breath (dyspnea), due to swelling around the trachea (windpipe), dizziness, headaches, which worsen upon leaning forward or bending over, facial swelling with a dark red look to the complexion, swollen neck, swollen arms and hands, and visible swollen blue veins on the chest.

I hope that everything works out as well as humanly possible for him. Best of luck to your husband and you down the road of life.

Take care,

CardioStar☆

WebMD community member (8/99)

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MedicineNet - We Bring Doctors' Knowledge to You

Superior Vena Cava Syndrome

The superior vena cava is a large vein located in the upper chest, which collects blood from the head and arms and delivers it back to the right atrium of the heart. If this vein is compressed by outside structures, or if a thrombus or clot develops within it, then return blood flow to the heart is impeded. When blood flow to the heart is restricted, the increased pressure in the veins of the face and......

What causes superior vena cava syndrome?

☞As more invasive medical procedures are being performed on patients, this cause of superior vena cava syndrome is being seen more frequently. Blood clot (thrombus) formation that causes superior vena cava syndrome is a complication of pacemaker wires, dialysis, and other intravenous catheters that are threaded into......

www.medicinenet.com/superior_vena_cava_syndrome/article.htm

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paulgupta responded:
Hello Pkmac's Mrs:
I am 60 years old & have pacemaker for 5 years now. Ironically I have exactly the same symptoms for 6 months now. I had CT of the Neck w w/o contrast, CT of the Chest, CT Angiogram, CT of the Head, Ultrasound of the Upper Exptremeties, ECHO of the Heart. I have seen 2 very experienced Cardiologists & two ENT specialists. They all are shaking their heads & no diagonosis so far. The next suggestion is for a Venogram to check for SVS. At this point, it is all guessing game.
Any suggestion in this regards will be helpful.
paulgupta


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