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Hepatitis C
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BTD53 posted:
Hello, I'm a 56 yr. old male with Hep C. We think I got it in 1970 from a blood transfusion. I was diagnosed this past Nov. after giving blood for the first time. I got registered letter from the blood center and wondered "What's this?" So after numerous blood test,ultra sound and liver biopsy it was confirmed that I had Chronic Hep C .Stage 2. My liver enzymes were normal and still are, I into my 8th week of treatment with peginterferon and ribavirin. I also have Type 2 Diabetes. The treatment has caused my blood sugar to rise (260) and my white blood cell count to fall. My doctor has made ajustments to my meds to help get my numbers back in normal ranges. I thought I felt tired before I found out I had Hep.C, man I was wrong!! I stay exhausted now. I had to quit work, I have no energy. I have almost no appitite.
I can't remember anything(but my memory wasn't much before).Some nights I sleep great,some nights I don't. My skin itchs me to death!!!
My wife is doing everything I used to do around the house, on top of her full time job. I don't like that at all, it's not fair to her.
I don't know if I can take 40 more weeks of treatments. My viral load was over 1,400,000 before I started meds. They will check again at 12 week mark.
All I can say to anyone else is "hang in there" I know everyone's situation is different, but it can get worse! Since I've been diagnosed I've had 2 friends pass away- one heart attack and one cancer. At least we've got a chance to fight this disease!!
If you want to talk,I'll be happy to listen.
Reply
 
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AMN330 responded:
Hi,
My boyfriend was diagnosised almost 1 year ago and we have still not been able to start treatment, due to the great joys of insurance companys. So the fatigue is a big issue? He seems to be sleeping alot more lately and I know there could be a number of reason for this, some depression and the weather in Ohio is not the best right now. Any suggestions or just let him sleep? I just don't know what to do to help him out. Any suggestions?
Thanks so much-hope to hear from you.
 
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BTD53 replied to AMN330's response:
Hi, Fatigue is one of the main symptoms of Hep C.Before I found out I had Hep C, I had several blood test done to try to find out why I was so tired all the time,all the test came back negative. I can't think of anything that helped me. Letting him rest is probably the best. I felt a little better durning the summer months. Eat healthy, stop drinking (if he does).

You can fight the insurance co.Have your Dr. write a letter saying the treatment is necessary! Then request a hearing with them. Sometimes they change there mind! Good Luck !

Tell him he's not alone.It does get to be depressing feeling tired all the time, I know it's hard, buy try to keep a
positive attitude.

Hope this is some help to the both of you! God Bless
 
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linuxangel replied to AMN330's response:
I have HEP C and the fatigue. That is what led me to the doctor and the testing to begin with. I had fatigue badly and I felt the need to rest after any stress or any activity. Some days when I had to keep up I would even run a low grade fever. People all thought I was depressed and thats why I slept and had no energy but I am an enegetic and very happy person. I am not even close to depressed. It is just all that makes sense to most people so they think it and it frustrated me. I am ill, my body is fighting a virus, please let me rest. lol
Try to give him the rest he needs so his body can handle this awful virus. This is totally normal. Good luck to you both.
 
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BTD53 replied to linuxangel's response:
I know what your talking about. I have friends/people tell me all the time " you need to cheer up" or "you need to smile more". If they knew how "crappy" we felt they might understand why we look and act so crappy.
Good luck to you!!
 
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Dletmedown responded:
Hang Tough & Keep Us Informed On How Your Treatment Is Going. Tell Us The Good, The Bad & The Ugly. It Helps Us "ALL" The More We Know The Better Decisions We Ca Make. If We DON'T Share What We Know WORKS Who Will ?
 
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BTD53 replied to Dletmedown's response:
I'm in week 20 of treatment, 28 to go. My 12 week check-up was great! My viral load went from 1,400,000 to 47 !!! All other liver test are good!! My white blood cell count is low 1.2. I've been taking Neupogen for 5 wks.It helped at first, but now it's not working. GI will decide at next appt. what's next, if they can't get white blood cell count up, I will have to discontinue treatment. I don't want to,but I sure as hell won't miss it!!
I 've had been fatigued the whole time, seems to be a little worse now, then when I started.I don't sleep very long or very peaceful now. I quit taking naps during the day hoping I would sleep better at night, doesn't work! I'm losing my hair on my head,plus it's growing slow. My beard is still the same, have to shave everyday.
The Itching has almost stopped, just a couple places on my back. The Eucerin lotion is a life saver!!
My appetite is still lousy,I have to make myself eat most days. I have also added Ensure to my diet
.Thank God Tylenol helps with the headaches.
Don't expect any sympathy from most people, they don't know anything about it, and don't have it, so there for they can't relate.
Hope this helps,I know this site has helped me. I don't have anyone to talk to about this problem, that understands.
 
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Dletmedown replied to BTD53's response:
I'm glad things are better & that your viral load has dropped & hope your white cell count gets better. Stay strong & KNOW there ARE people that UNDERSTAND & CARE! I'm 57 & have not treated to date. I have a good friend that has been Hep C FREE for two years now after treatment.


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