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Hep C Support Group

Trying to make a difference in the lives of those with Hepattitis C. If we ... more

WHY ? does it have to be SO HARD to get information that is current & up to date ?

Dletmedown posted:

WHY ? does it have to be SO HARD to get information that is current & up to date ?
This article:
http://www.webmd.com/hepatitis/news/20100526/hepatitis-c-drug-telaprevir-ups-cure-rate?src=RSS_PUBLIC
was in May 2010 ? Only 5 months ago ? No mention of anything "NEW" coming in November 2010? It says like everything else I have read that it was applying for FDA approval in the second half of 2010 ? There are only 2 months left in 2010 ? The "NEW" article that just came out Oct 25th.
http://investors.vrtx.com/releasedetail.cfm?ReleaseID=522614
saying the new trials would begin in November 2010 ? November is 3 days AWAY ? & they have NO information about WHERE ? or HOW to apply & the maker Vertex just says to check the Gov.Trials website:
http://www.clinicaltrials.gov/
& there is NOTHING there about it. That is EXACTLY how HARD it has been for 9 years for me to find out ANYTHING

0 Replies |Watch This Discussion | Report This| Share this:WHY ? does it have to be SO HARD to get information that is current & up to date ?WHY ? does it have to be SO HARD to get information that is current & up to date ? This article: <a href="http://www.webmd.com/hepatitis/news/20100526/hepatitis-c-drug-telaprevir-ups-cure-rate?src=RSS_PUBLIC">http://www.webmd.com/hepatitis/news/20100526/hepatitis-c-drug-telaprevir-ups-cure-rate?src=RSS_PUBLIC </a> was in May 2010 ? Only 5 months ago ? No mention of anything "NEW" coming in November 2010? It says like everything else I have read that it was applying for FDA approval in the second half of 2010 ? There are only 2 months left in 2010 ? The "NEW" article that just came out Oct 25th. <a rel="nofollow" href="http://investors.vrtx.com/releasedetail.cfm?ReleaseID=522614">http://investors.vrtx.com/releasedetail.cfm?ReleaseID=522614</a> saying the new trials would begin in November 2010 ? November is 3 days AWAY ? & they have NO information about WHERE ? or HOW to apply & the maker Vertex just says to check the Gov.Trials website: <a rel="nofollow" href="http://www.clinicaltrials.gov/">http://www.clinicaltrials.gov/</a> & there is NOTHING there about it. That is EXACTLY how HARD it has been for 9 years for me to find out ANYTHING

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Dletmedown

I am a male born 6-20-1953, diagnosed 2002 geno type 1A. I have not treated to date. We all have burning questions about hepatitis "C". I ho...More

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Did You Know? May 26, '10 3:10 PM by Drsletmedown: for everyone Approximately 500 million people worldwide are infected with ... More

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