Hep C Support Group

I have been waiting for telaprevir AKA VX-950 myself. I spoke with a Vertex rep about it & he said they were going to apply for approval this year. I was hoping you could get it as a stand alone drug but he said the results were not good unless taken with interferon & riba. I have a friend that did a trial at Baylor Dallas & was Hep C FREE 6 days after his first treatment & still is 3 years later. He did 24 weeks of telaprevir & interferon & riba. He is doing great. He was geno 1A. It's the only thing I would consider to date. That's just my take. I SUPPORT EVERYONE regardless of their treatment choice & wish a cure for everyone.

That's good to know, I caught mine early too. Good luck. You'll get through it, just be positive and try not to let the side effects get you.

was in a simalar situatuion found it 10 years ago biopsy was a 4 so figured id wait to but now i think i took too much tylenol and urine is brown

I've had it for 38 years. It is possible that I had fought it off the first time when I had surgery in 3rd grade, had a hip built from a birth defect. My mom said they gave me blood. I just remember being sick as a dog when I woke up, and in SO much pain. I just realized I could have gotten it again when I got a tattoo in 2002 when my ex traded me in for a newer model. I yhought I was being cute. What if I just killed myself. Hindsight is 20/20. I'm not a drinker, and haven't for years, though I did while going through divorce. Again, hindsight. Who was that idiot 10 years ago? Anyway, I guess the tatoo would be better as I have 3 childern eith Mr. X, and the tatoo scenario would have my children and grandchildren out of danger. I'll be fine if my kids are fine. So there ya go. Yes, I have Hep. C.

How does anyone know if caught early or not? I suppose if you are pretty sure when and how you caught it, you'd know, but I have no idea. I was a nurse for a long time and may have gotten while on the job, but then again, someone I dated? I just don't know, however I have only recently become 'symptomatic'"026 nothing I can't live with, but don't want to do nothing as perhaps liver may worsen as time goes by. I checked out a clinical study at NIH, but was told that it could be up to 3 years before Incivek will be available for their studies. I am genotype 1a and don't want to wait that long, my viral load is on the high side yet my liver is functioning without any problem. I could go ahead with just the ribaviron and interferon, but with my genotype and the fact that it responds the 'least best', my chances of needing to have treatment repeated with Incivek later on is increased. I would of course want to avoid having to go through treatment and all the yucky side effects twice for goodness sakes! I'm wondering if anyone know if there are clilnical trials that include incivek going on now. There must be since it has been approved by FDA. I don't know. My insurance stinks. If anyone has any information or personal experience they would care to share, I'd love to hear about it. I could pretty much move or go to where best clinical trial (meaning all 3 drugs and accepting new patients - no placebos) is located. I just joined this forum and can see many links that I've not investigated but wanted to put myself into forum first, cuz of course I'm freaked out and would like to find someone - perhaps even in my area to commiserate with and provide each other with mutual support. Thanks

I'll be starting next week triple treatment. I've done 3 other TXs alfa/interferon 3 x a week for 6 months 1992, pegleted interferon 1 x a week with ribavirin (pegasys) for 4 months taken off bad side effects hypermania (seratonin levels went too high) which I believe were from antidepressants (paxil) & last one, pegleted interferon 1 x a week w/ribavirin 45 weeks taken off blood counts too low. The last 2 TXs I responded to TX but not long term so I'm called a relapser. I also have geno type 1a the hardest to responde to TX. I was also told each TX you do the virus gets more resistant to responde to TX. I'm very excited to being trying one more time a TX with an 80% responde rate for my geno type, FINALLY. My orther option is wait for liver failure and a transplant which doesn't sound good at all. So good luck everyone who is about to start TX and keep in touch.

This is very encouraging Thank you for posting. I also have geno type 1a & starting triple TX next week.

I am on Incevek.Stay healthy during treatment.Watch your blood pressure.Do not let your system get weak and you'll have a better chance of success.