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Always TIRED
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PSJ1970 posted:
Is it normal to be SO exhausted? I'm wiped out and my body hurts so bad. I was diagnosed with fibromyalgia years ago but am wondering if it's the hep c doing this to me.

I have been to see a gastro but they said I need to lose 20 lbs before I can even think about doing one of their trials-and when I asked about the cost of treatment with my insurance (BCBS TX, although I live in MO), they said it would be very expensive...something like a grand a week just for one of the meds. Should I go to another gastro or does that sound about right for the costs associated with treating it...I have geno 1a and my one and only test (a year ago) was 1,033,040.

I feel like I'm swimming in circles!
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RRichard2005 responded:
I guess it depends how long you've had Hep C and how advanced the disease it. Maybe! I have mild aches and tiredness sometimes but that could be attributed to other things besides Hep C.

I would go see another G.I. If possible try to see a Hepatologist. I know the cost of the treatment is expensive but I would not imagine it being that high with insurance; I guess it depends on how good your insurance is.

Did you ever have a liver biopsy done to see how much damage (if any) has been done to your liver?
 
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Melissa Palmer, MD responded:
Fatigue is the number side effect associated with HCV. There are assistance programs available to cover the costs of the drugs if you qualify
 
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PSJ1970 replied to RRichard2005's response:
No one has even suggested that I get one except the GI and only if I did their study (that I'm too overweight for).

I think I've had hep c for about 13 yrs or so.
 
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RRichard2005 replied to PSJ1970's response:
You should definitely get one to see how much liver damage you have (if any)!
 
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PSJ1970 replied to Melissa Palmer, MD's response:
The fatigue is frustrating. I feel bad because I could get so much more done but I do one thing, then sit down.

Would you recommend I tell my GI that I want to get another blood test and a liver biopsy or do they know what's best? The nurse told me "we already know you have it, so we don't need to do any more tests.
 
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PSJ1970 replied to RRichard2005's response:
That's what I thought...plus I will admit I haven't led the most "healthy" lifestyle. I had my times where I drank too much but as of my diagnosis, I haven't touched a drop (not that I was an alcoholic-just liked to have a few beers).

I've been meaning to call and schedule one, guess it's better late than never.
 
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PSJ1970 replied to RRichard2005's response:
I didn't realize the GI I went to see is also a hepatologist...he's supposed to be one of the "best" in my area. I haven't even seen the doc himself yet, but they had me meet with a nurse, who is the one who suggested I do trials.

What really irks me about the nurse suggesting I do trials, she looked at me and could see that I'm overweight...why did she even bother to offer them to me if I'm too fat? Kinda stupid if you ask me.
 
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billm57 responded:
a grand a week is outrageous - the last time i treated - 2009 - 2010 - my out of pocket expense was around $90 / month for combo treatment - triple therapy is going to be more - there are patient assistance programs available - a biopsy is the best method to assess liver damage but there are non invasive methods which are fairly accurate - but damage assessment is recommended prior to treatment - if they told me i was overweight id go elsewhere


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