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    Born with HCV + dating
    avatar
    An_245526 posted:
    I'm 28; just found out last year, after my mom was diagnosed in 2010. The theory is that she contracted it in the 70s and it was transmitted to me due to complications during my delivery, but who knows, really? I do experience quite a few symptoms, so it has likely been here for a while.

    I've had an incredibly difficult time accepting this as a part of who I am, and it only seems to be getting harder for me. I guess my question is just, besides dealing with the everyday symptoms, how on earth are you supposed to tell people about it?

    I have been trying to date, and now on top of being tasked with telling people that I'm a 28 year old who's never even been in a long-term relationship, let alone sexually active with anyone, I have to somehow tell them that I also carry this disease that they solidly, mistakenly believe is only carried by people who've in some way "been around". There are so many misconceptions, and it's incredibly scary to think about how people might react. For a time I even considered telling nobody ever (and just using protection at all times etc.), but I don't think I could live with that level of deception for long. Agh, it's just so hard.

    And now I feel so hopeless sometimes, like if I ever had anything to offer a relationship... I really don't anymore. My doctor keeps saying stuff like "when someone falls in love with you, it won't matter"... but I just can't believe that enough to tell even my closest friends, never mind the guys I've been dating recently. I feel so trapped, and alone Any wisdom/advice would be much appreciated.
    Reply
     
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    oldtiff47 responded:
    FIRST LET ME ASK HAVE YOU DONE TREATMENT(TX ) YOU DID NOT MENTION THAT AT ALL???

    I HAVE BEEN MARRIED TO THE SAME WONDERFUL MAN FOR 45 YEARS HE DOES NOT HAVE HCV.....NOR DO OUR ADULT DAUGHTERS....I GOT MY HCV FROM BLOOD PRODUCT ............BUT IT MAKES NO DIFFERENCE HOW WE GOT IT WE HAVE IT.....I TX'D 12 YEARS AGO AND HAVE BEEN CLEAR SINCE...MY STAGE 4 LIVER IS HAPPY I DID TX...

    TIFF
    DON'T TAKE YOUR ORGANS TO HEAVEN...HEAVEN KNOWS WE NEED THEM HERE !!
     
    avatar
    An_245526 replied to oldtiff47's response:
    Hi, Tiff. No, I haven't done treatment... they aren't sure I would be a candidate for it, yet. I'm currently waiting to get in to see the infectious disease specialist again so we can discuss it some more.

    Were you born with HCV as well? I'm very curious about how the efficacy of treatment might differ between those born with HCV and those who picked it up later in life. Unfortunately, I can't seem to find much info.
     
    avatar
    oldtiff47 replied to An_245526's response:
    NO NOT THAT I KNOW OF I WAS NOT BORN WITH IT....GOT IT WITH BLOOD PRODUCT....

    I DO NOT UNDERSTAND WHY WAITING FOR TX?

    WHEN I DID TX IN 1999-2000 I ONLY HAD A 30 PERCENT CHANCE OF CLEARING BUT I DID !!!

    TIFF
    DON'T TAKE YOUR ORGANS TO HEAVEN...HEAVEN KNOWS WE NEED THEM HERE !!


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