Skip to content
My WebMD Sign In, Sign Up

Announcements

Newly diagnosed? See our Hepatitis Health Center to learn more about it.


Recently diagnosed with HEPATITIS C, Now what ??????
avatar
Arge1966 posted:
2 years ago I was told I had Crohns, 9 months later my GI specialist said it wasn't Crohns and he believed it was Angio Edema from my lisinopril for hypertension. In Feb this year I was admitted in respiratory distress and with congestive heart failure. I was on a vent for 5 days due to o2 sats 54-72. Now all of my physicians feel they have came to an accurate diagnosis being Hepatitis C. In Feb I also had very bad pneumonia in both lungs. I just received yesterday in the mail notice from my counties health department of the need to get Hep A and B vaccines asap due to me having Hep C. Apparently the upper left quadrant pain (severe) was indeed my liver being inflammed. I go back to my family doctor the 7th of this month and to a liver/GI specialist the 20th of this month. Starting interferron has already been discussed. I'm scared to death. I have never used IV drugs or any street drugs. In 1981 and 1985 I received several blood transfusions. I'm weak and basically have no energy, nauseated often and have all over general aches and pains. No yellowing of the skin/eyes. Please readers I would appreciate any info regardless of how lame you may think it is. I'm confused also as to what internet sources are reliable information. Thanks so much !!!
Reply
 
avatar
billm57 responded:
sorry to hear about your circumstances - yes get tested for prior hep a and hep b exposure - if you dont have the antibodies you will need the vaccines as coinfection with hep c can be extremely hard on the liver - upper left quadrant pain is not usually indicative of liver inflammation - that would most likely be upper right quadrant pain - the upper left could be the spleen or tail of the pancreas or the left edge of the liver - hep c can cause spleen and pancreas damage --- the gastro dr will test to find which genotype of hep c you have and determine your viral load - also a biopsy to determine liver damage may be recommended--- if you are found to have genotype 1 i would suggest asking him/her to have your IL28B genotype determined also - if you are a CC you wouldnt have to do the new triple therapy - but you could if you choose - triple therapy is harder to endure but treatment time could be reduced - if you are a CT or TT it would be best to do triple therapy --- hep c genotypes 2 3 and 4 require only combo therapy - genotype 1 combo therapy lasts a year while triple therapy could be only half a year - genotype 2 3 and 4 only require 6 months combo therapy
 
avatar
Bonnysue responded:
HepC stinks. I also have RA and I tried the triple therapy. I could only endure it for 7 weeks. I became so anemic I needed 3 blood transfusions. It is BRUTAL. I have know idea how anyone gets thru it for as long as its prescribed. Gastro Dr. said it was too much for me. I now am loosing my hair 2 months later. I am going to see a Dr. at UCLA and get his opinion on a drug called Cyclosporine. It won't cure either Hepc or RA but there is a chance it can slow both down. Has anyone heard of it? I hope you can find the answers you need. You are your own advocate.
 
avatar
billm57 replied to billm57's response:
sorry - genotype 4 could require a year combo tx along with genotype 1
 
avatar
billm57 replied to Bonnysue's response:
sorry to hear that bonny - cyclosporine and tacrolimus are immunosuppressant ( anti calcinurin ) drugs best administered by a rheumatologist - as with all immunosuppressants - they can be potentially dangerous - they offer basically a short term relief of symptoms with some possible major side effects - the pros and cons need be carefully considered
 
avatar
hepsister responded:
Arge 1966,

sounds like you have been through so much already. I understand your fear I wanted to trust my doctors but having been missed diagnosed since 1994 that was really hard to do. Hep C symptoms look like so many different things and all. I found out through a pre-employment screening. In my search for answers I found the Book "Living with Hepatitis C for Dummies. It has been extremly helpful. As for internet resources : cdc.gov - you will find under federal programs a link for department of veterans affairs a national hepatitus C program. lots of information there. Med scape is another good page. I have found there are many natural ways to cope with the symptoms but not cure.
 
avatar
gretasmydog responded:
I am so sorry that you are very sick, A good dr is a god send ,make sure you have one. I do but its a lonely sickness.


Health Insurance in Your State

Learn about plans, benefits, and costs in your state's Marketplace.

From WebMD

Helpful Tips

New treatments for hepatitis CExpert
I'll be appearing on Sirius Radio, channel 114 (on XM, channel 119) on Monday April 14, from 9-9:30 A.M. discussing the new protease ... More
Was this Helpful?
4 of 8 found this helpful

Related Drug Reviews

  • Drug Name User Reviews

Report Problems to the
Food and Drug Administration

FDAYou are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.