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Acute HEP C
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sandyhill posted:
I sustained a needlestick injury at work 6 months ago. The patient was HEP C positive and after 8 weeks, I was testing positive as well. The treatment plan for an acute exposure is much more time sensitive than a chronic case. This was so frustrating for me because the doctor (a liver specialist) was being kindof laid back and in no hurry to move things along. I was reading as much about Hep C as I could find, but there isn't too much on Acute HEP C. The doc finally read up on it and discussed with his peers a treatment plan that needed to be started ASAP. The best outcome would have been to start treatment at 12 weeks but I was already at 20 weeks, so I was worried. Because I was acute, I could do Peginterferon monotherapy and not the Ribiviron therapy. I worried that the Peginterferon alone would not be enough because we waited too long. I was doing everything I was told and then some. I adapted a strict liver friendly diet. I quit drinking. I was in good shape physically and so it wasn't hard to maintain this although I was tired a lot and the muscle and joint aches and pains made working out a little more difficult. I followed the blood testing to the letter. At week 4 of therapy my viral levels are undetectable. This is typical at 4-8 weeks from what I've read. I am expected to keep up with the Peginterferon for at least 12 weeks and preferably for 24 weeks. My problem is that it's getting hard to maintain this super hero regime. I'm ready to be done and that's not really an option for me, of course. I am frequently fighting the blues. My friends can only help so much. This can be a very lonely road to travel. I would like to be part of a support group where we share the same issues and can talk each other through it. I am a 53 year old married female. Anybody like me out there?
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oldtiff47 responded:
HERE IS A SITE I FOUND IN 1999 WHEN I STARTED TX....I FOUND IT SO VERY HELPFUL..
http://www.hepcsurvivalguide.org/comboguide.htm

YES YOU ARE LUCKY TO KNOW YOU JUST GOT IT...YOUR ODDS ARE OUTSTANDING.....I FEEL YOU NEED ANTI-D'S....INTERFERON PLAYS WITH THE BRAIN AND THAT IS TOO....SLEEP AID IS HELPFUL ALSO(THAT IS ALL I NEEDED)....LITTLE TRAZADONE 50 MG TO TURN OFF THE BRAIN AT BEDTIME..

NO BOOZE IS SO VERY VERY IMPORTANT KIDDO..
I DID 48 WEEKS OF COMBO TX AND MY STAGE 4 LIVER IS SO HAPPY I DID IT AND DID IT WELL...NO VL TO COUNT SINCE WEEK 12 OF MY TX..

TIFF
DON'T TAKE YOUR ORGANS TO HEAVEN...HEAVEN KNOWS WE NEED THEM HERE !!
 
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oldtiff47 replied to oldtiff47's response:
PS...I FEEL YOU ARE SO VERY LUCKY TO KNOW SO EARLY YOU HAVE HCV.....IT WAS DECADES FOR ME FROM A BLOOD PRODUCT....I NEVER EVER SAID WHY ME.....ALWAYS SAID WHY NOT ME.....ALWAYS CALLED IT "" MY LITTLE CHALLENGE ""

ALSO PS...........I AM NEVER EVER YELLING I HAVE DONE CAPS FOREVER....HAS BECOME KINDA MY HANDLE....SORRY IF IT OFFENDS YOU..

TIFF
DON'T TAKE YOUR ORGANS TO HEAVEN...HEAVEN KNOWS WE NEED THEM HERE !!
 
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sandyhill replied to oldtiff47's response:
Hey, thanks. No, your all CAPS is not offensive. I am now finishing my 8th week of therapy. Today I go in for another blood work-up, the HEP C RNA, the metabolic panel and CBC with differential. My last Dr. appointment they informed me that the blood workup will be less frequent now that things are looking good and progressing as they expected, but I was upset at this. Those blood reports are like my report cards for all of my efforts and good behaviour. I don't like to get poked any more than the next person, but I put a lot of importance on those results. So the PA ordered an extra blood draw for my benefit. I plan on going to the site that you advised, after I write this reply. I hope to learn as much as I can. I am considering asking to be put on Cymbalta. (SP) I'm not sure if I want that or not though. Part of me wants to "tough it out", and I'm not really sure why. My coping mechanisms have worked for me thus far and I'm proud of that. IDK, maybe taking an anti-D is like giving up on my inner strength capabilities, and I don't want to risk that. I know that I will get through this. I feel like I know the lessons that I am meant to learn from this all. I will walk away a stronger person. That is my focus for now. That, and it's summertime and I'm determined not to let HCV ruin it for me or my family.
 
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oldtiff47 replied to sandyhill's response:
SO GREAT TO HEAR FROM YOU KIDDO.....I KNOW MD'S WHO WILL NOT TX WITHOUT ANTID'S...WE ALL MUST DO WHAT NEEDS TO BE DONE TO DO TX AND DO IT WELL...

THIS IS A LIFE LESSON FOR YOU....FOR WHAT REASON WE KNOW NOT BUT YOU WILL LEARN FROM IT OF THAT I AM SURE...

PLEASE KEEP US POSTED

TIFF
DON'T TAKE YOUR ORGANS TO HEAVEN...HEAVEN KNOWS WE NEED THEM HERE !!
 
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sandyhill replied to oldtiff47's response:
So, finished up my first 6 months, not of therapy but for my stay healthy life plan. I'm in my 10 out of 24 weeks of therapy, which is the Peginterferon injections only. I'm feeling pretty fortunate that I don't have to take Ribivirin. I think that is the big culprit for fatigue, depression and muscle aches. I have these symptoms but they are moderate to mild. I have to push myself to be active and it isn't always easy, but it is always beneficial. Both physically and mentally. My routine got a little boring so I've have to shake it up. I auditioned for a local theatre play and got cast as Hot Lips Houlihan in M*A*S*H. I'm really excited about this as theater is a passion and it definitely will keep me active, physically and mentally. I need to get back on track with my diet because that makes a big difference in my overall well being. My labs are looking ok. WBC is usually in the 2's. my glucose is a little high but everything else is normal. My RNA is still negative. Anyway, I'm still a Hepper, but I'm not letting it stop me from being me. I'm staying fairly positive and learning s lot about myself. Just Checking in!
 
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oldtiff47 replied to sandyhill's response:
MAY I SAY YOU SOUND GREAT....KEEP UP THE GOOD WORK ON "" YOUR LITTLE CHALLENGE ""

TIFF
DON'T TAKE YOUR ORGANS TO HEAVEN...HEAVEN KNOWS WE NEED THEM HERE !!
 
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sandyhill replied to oldtiff47's response:
Today I ran a 5k. I run a lot of races but its been tiring. The weather was rainy/misting, and my legs were stiff from kayaking yesterday, but I did it. My time was 26:15. Which is good for me! I'm so glad I signed up for this in advance and therefore was committed to it. It does wonders to lift the spirits. I have a great dinner in the oven and play rehearsal later, so, all is well in week 11!
 
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oldtiff47 replied to sandyhill's response:
YOU ROCK STAR KIDDO.....I AM SO IMPRESSED !!!


TIFF
DON'T TAKE YOUR ORGANS TO HEAVEN...HEAVEN KNOWS WE NEED THEM HERE !!
 
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sandyhill replied to oldtiff47's response:
So the Labor Day weekend is behind us, summer is officially over. I am in my 16th week of injections, 8 more to go. I ran a 5K race in August, and my running times are slowing down. I am feeling a bit more tired, a bit more sore, and a tad more moody than what I experienced in the first half of this rigamarole. I've slacked off on my impressive albeit time consuming diet management, which on one hand lightens my load, but I wonder if that also contributes to my increased symptoms. Which came first, the chicken or egg? Running is still my go-to and I have been able to keep that up. I have a 5K and an modified triathlon (kayak, bike, swim) planned for September, as well as the play that I'm in is ready to come to stage, with 8 performances from 9-12 through 9-22. Keeping busy is my coping mechanisms. Being lazy and not doing anything is my enemy really. I guess I worry about falling in a hole and not being able to get out, so I stay afloat every way I can. Does that make sense? I have a cheering section now. People who know what I'm going through are "amazed" on how I'm handling all of this, but really, I don't know how else to do it. I don't want to be brought down by "it", so I won't. But that doesn't make me a hero. I do get mad and sad and all of that but it doesn't do any good to dwell on it when my energy can be best spent trying to stay positive. Ok, well, I have to go now. I wanted to check in. Things are still good and I'm still hanging in there. Hope everybody else is doing ok too.
 
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oldtiff47 replied to sandyhill's response:
I USE TO SAY THE SAME THING. DON'T WAIST YOUR ENERGY ON THAT TIFF.....LOL.....

YOU ARE DOING SO VERY WELL.

TIFF
DON'T TAKE YOUR ORGANS TO HEAVEN...HEAVEN KNOWS WE NEED THEM HERE !!
 
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sandyhill replied to oldtiff47's response:
Well, well, well, I'm back again. I have finished my 24 weeks of Peginterferon. What a journey this is. The play M*A*S*H, that I was in was a godsend. It kept me actively involved in something that I enjoyed and kept the blues away. I have continued with my running and swimming, but I had to drop bike riding as my hands and arms have been aching. It's odd how at the beginning of therapy my aches and pains were in my feet, legs, and hips, sometimes in my low back. Then it moved to my hands, arms, and shoulders. Stiffness is a common occurrence but easily remedied with exercise. Fatigue started getting worse towards the end of therapy and I found that I couldn't resist taking a nap when I got out of work. That wasn't really the best solution as napping just made me more tired and I felt bad for being "lazy". I also got a bit grouchier. That doesn't go over very well either. But here's the thing. My personal style isn't to dwell on the negative. Nobody wants to hear it all the time and I don't want to live like that. But, by being this positive, energetic person, people then believe that everything is fine. And it's not always. And if I found myself in a meltdown, when I needed the support and comfort the most, I was alone. "Mom's going crazy again" was the comments that pushed me back to the reality that I needed to tough it up. Back and forth my emotions would go. I wonder how long it's going to take to feel normal again now that I'm finished with the therapy. I gave it a week. Now it's been 2. I really want to close the book on this, but that is not the case. I just want my energy back. Even I feel like I'm milking the sympathy wagon a little ya know, and that doesn't set very well. Obviously I'm not a very patient person. I am working on the new improved me version. I have 3 months before my next blood test to see if I have a SVR. I feel that I will have it. I can't imagine it any other way. I do have a sliver of worry that it's not over, but I keep that tucked away, afraid that it will taint my outcome somehow. ARG. But, I will carry on. I will make the choice to see the positive and minimize the negative. I will become whole again. I promise.
 
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oldtiff47 replied to sandyhill's response:
IT WILL TAKE TIME TO FEEL BETTER. WE HEPPERS ALL WANT EVERYTHING DONE YESTERDAY. THAT I HAVE FOUND FOR SURE OVER THE YEARS ON LINE. I HAVE ALSO LEARNED WE CAN NOT CHANGE WHAT IS SO TRY NOT TO STRESS.

BUT MY HEART KNOWS YOU WILL BE CLEAR. YOU DID YOUR TX SO WELL KIDDO. WHEN I CLEARED IN 2000 I HAD ONLY A 30% CHANCE OF CLEARING AND I DID IT. EVERYONE WAS SHOCKED.

EVERY DAY OFF TX YOU WILL FIND MORE AND MORE "" SIMPLE PLEASURES ""....

KEEP US POSTED MY FRIEND

TIFF
DON'T TAKE YOUR ORGANS TO HEAVEN...HEAVEN KNOWS WE NEED THEM HERE !!


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