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Male 68 had HIV since 1994 have Pacemaker since 2007
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tmcclusk posted:
I AM ON 7 HIV MEDS ONE IS REFREGATED, I HAVE CHILLS AT NIGHT SOMETIMES AND PUT ON EXTRA CLOTHES OR TURN HEAT UP TO 78 MY VIRAL LOAD IS 0% ON MOST TEST HGB IS 14.5 RED BLOOD COUNT IS SOMEWHAT LOW, I HAVE ASK MY MD AND HIV SPECIALEST THEY HAVE NO IDEA WHY? ANYONE ELSE HAVE THIS PROBLEM? THANKS, C.J.
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David J Malebranche, MD, MPH responded:
HI CJ,

sorry for late response... tell me what medications specifically you are on and I may be able to explain some of this.

The only medication that used to be refrigerated was Norvir, but that comes in a form that doesn't need refrigeration anymore.

Regarding feeling cold, sometimes this could be hormones - have your doctor check your thyroid with a simple blood test called a TSH - if that's too low... people feel cold all the time...

Your HGB is absolutely NORMAL. that's where it should be. If it was low, it could explain your chills, but its not, so no worries there....

Write back when you get that information...

David
 
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An_240713 replied to David J Malebranche, MD, MPH's response:
Here we go: (1) RITONAVIR X 2 DAILY, (2) DARUNAVIR 1 600 MG. DAILY (3) 1 DAILY EMTRICITABINE 200 MG./TENOFOVAR 300 MG. (4) RALTEGRAVIR 400 MG, 1 X 2 DAILY HIV MEDS 1 X2 DAILY 150 MG. RADIDINE STOMACH ACID. 30/300 CODINE FOR KNEE PAIN 1 DAILY THANKS, DR. DAVID
 
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David J Malebranche, MD, MPH replied to An_240713's response:
Ok...

so none of these should specifically cause "chills," and the norvir comes in a tablet form now that DOES NOT need to be refrigerated. Plus, if you are on the Prezista 600mg dose, that should be taken 2x a day with the norvir and the raltegravir. The only medication in your regimen that should be once a day is the truvada (emtricitabine/tenofovir).

I would go back to your doctor and request that you get the tablet form of norvir so you don't have to refrigerate AND make sure your Darunavir (Prezista) is TWICE a day, not once a day. There is a once a day dosing of this medication, but it is 800 mg, and is taken with one dose of norvir a day.

Is your doc an HIV specialist? If not, you should get one, as if this regimen is correct you are telling me, it may need some slight tweeking to get it right.

here is a website of medical providers who are official HIV specialists if you need to get a second opinion on this:

http://aahivm.org/

This is your life and your body, so you do want to have an up to date medication regimen. Its like taking care of your car, you want a mechanic that is up to date on the latest technology - but this is your body and far more important. So be empowered with your care and ask questions!

David
 
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tmcclusk replied to David J Malebranche, MD, MPH's response:
Hi, Dr. David: I made a mistake its x 2 daily darunavir 600 mg. the only 1 daily is truvada. Thanks, C.J.
 
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tmcclusk replied to tmcclusk's response:
Thank you much, yes I now have a specialist Doctor it took 3 years we now have one. I have requested the TSH thyroid done. Thank you Dr. David
 
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David J Malebranche, MD, MPH replied to tmcclusk's response:
Good to hear CJ, keep up the good work!!!

David
 
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tmcclusk replied to David J Malebranche, MD, MPH's response:
Thanks, for your help. C.J.
 
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An_244561 responded:
My boyfriend is HIV . One of my concerns is long term effect of the disease. Because of him I have learned a lot, but I have not been able to connect with anyone who would comment on the long term effects/impact of HIV . Would you or anyone else in this forum mind sharing a few things that I should be mindful of ?
 
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Caprice_WebMD_Staff replied to An_244561's response:
Hi An_24461 and welcome to WebMD,

While you're waiting for responses here from the other members, if you have any specific questions, I hope you'll start a new discussion on the board. Others can then address your concerns more easily.

To do that, hold your cursor over the orange Post Now button and choose 'Discussion' from the drop down menu which appears. Fill in the subject line and body of the message (you can ignore the poll part if you want) and Submit.
We never touch people so lightly that we do not leave a trace. ~Peggy Tabor Millin
 
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tmcclusk replied to An_244561's response:
Hi, I think you need a Doctor or Nurse to answer any questions you may have. C.J.
 
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tmcclusk replied to Caprice_WebMD_Staff's response:
Check with the Doctor or Nurse.


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