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Finding a Diagnosis for Wife's HBP (220/130) - NEED HELP!
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apbaron posted:
My wife (Age 28) was sent to the ER (on 05/09) after a regular OB visit. There, the routine BP screen showed her at 220/130. Still in the hospital today, doctor's cannot determine a diagnosis and have been unable to get her Systolic steadily under 170 with meds. It's been in the range of 175-185 today. Her Diastolic has ranged from 70-100 today.

Knowns based on what Dr's have told us:
  • There is kidney damage, Dr's advised the kidney is functioning at 1/3 of what it should be ("creatinine rating of 3")
  • leakage in valve to heart
  • "flattened" vessel in brain
  • Consistently HBP
  • Dr's are thinking maybe it's IGA or Glomerulonephritis



Symptoms pre-hospital admission:
  • bad headaches during last 3 months, especially the week before her period.
  • Increased PMS symptoms (moodiness, etc), dizziness, tiredness, decreased appetite
  • Lost 30 lbs in last 6 months w/o trying/dieting/etc
  • Was diagnosed with HSP (Henoch Sconlein Purpura) in 2005 and fully recovered
  • Gave birth in 2007 and 2010. Both times, she was induced into labor after being diagnosed with preeclampsia. Both children born healthy.

Would greatly appreciate any feedback.
Reply
 
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billh99 responded:
Sorry to hear about your wife.

But no medical professional normally responds in this forum.
 
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apbaron replied to billh99's response:
Thank you. Any ideas on where I can post to get feedback...feeling pretty desperate. The Dr's seem to be leaving us in the dark while "they run more tests." My hope is that maybe someone else out there had HSP like my wife did and experienced some similar complications later on. Apparently, it's not very well understood from what I've read so far. One theory I have personally is IGAN (Immunoglobulin A Nephropathy).
 
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billh99 replied to apbaron's response:
I know that kidney problems are a cause for high BP. And from my very quick google of HSP and the reduced kidney function I would not be surprised that there is a relationship.

However, I know nothing of the details of kidney disease or IGAN.

You might try here.

http://exchanges.webmd.com/kidney-disorders-exchange

It seems to be an active forum.

And this is a list of hypertensive specialist and many of them are Nephrologist.

http://www.ash-us.org/HTN-Specialist/HTN-Specialists-Directory.aspx

You can also try googling -Immunoglobulin A Nephropathy emedicine- and Immunoglobulin A Nephropathy forums.

And repeat those two with searchs -Henoch Sconlein Purpura ...--

And if you have a medical school or teaching hospital in the area you might contact them and ask for the nephrogy department and ask for a consult.
 
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billh99 replied to billh99's response:
Also a google on - Henoch Sconlein Purpura Immunoglobulin A Nephropathy - seem to have some information that might be helpful.


I wish I could have some more specific information for you.
 
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apbaron replied to billh99's response:
Thanks BillH99, all helpful info. I appreciate it.
 
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bpchronicle responded:
Hi apbaron,
I am not a doctor, but I am a cancer survivor. I would like to suggest a full pet scan to rule out any cancerous cells. let me know if this has already been done
Best wishes.
 
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bpchronicle replied to bpchronicle's response:
I forgot to mention in my last post. Your wife's high blood pressure is referred to as secondary high blood pressure. Which means it is the result of some underlying condition. As opposed to most of us that just suffer in addiction to the western diet. When they find the underlying cause of the high blood pressure it should return to acceptable.


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