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Been in the Emergency Room all 3 times, first they thought it was thyroid, last 2 times thyroid is was normal.
Cardiac tests are normal, EKG, blood tests, x rays all normal. The doctors in the ER do not know what it is....Think they called it epclisolic hypertension, and said glands also needed to be tested and kidneys.
April cardialogist appointment passed, ultra sounds of neck, heart, stress test and was fine, blood pressure running 140/80 average.
This is scaring me silly, while a I try to stay calm and not panic. Especially with no answers. Anyone ever heard of such a mess? And I cannot get into see any specialists till October and Mid November.
Heartston
CRW1951
Check for sleep disorders, especially for sleep apnea and/or restless leg syndrome. This can take a while to get scheduled with both the sleep specialist and a sleep lab, so if it's a possibility, start trying to make an appointment or get a referral now. Some doctors may prescribe devices that can detect some sleep disorders at home now for cheaper, but a sleep lab can be more comprehensive in detecting problems.
Check your other prescription and non-prescription meds - some can raise blood pressure (bp). Try looking them up in www.rxlist.com or www.drugs.com .
For me after 2 trips to emergency room with bp spikes and palpitations, it turned out to be a combo of sleep apnea (which makes bp hard to control even with multiple meds) and a beta blocker I was on. I'm still on 2 other bp meds, but with cpap treatment for the apnea and discontinuing the beta blocker, my bp is getting pretty stable and much lower in just a month. For some people (like me), a beta blocker can make bp more variable, where a calcium channel blocker can make it less variable. I'm now on a low dose of an ace inhibitor and a calcium channel blocker. (My hubby does fine with a beta blocker for lowering his bp, however.) The cpap treatment made more of a difference than getting off the beta blocker, but both were factors for me.
Good luck, be persistent, don't give up, and don't forget gentle regular exercise.
The doctor wished to prescribe BP medication but I asked to do this first. I will continue with Dr Ornish as this seems to work for me.
I called and got into Mayo Clinic next week.
Now the doctors are talking about Kidney problems. And want to run me all over to all kinds of doctors. Forget that.
Most of you did not say anything much about thryroid which can totally mess up everything.
But I really think it is something with the medications, and reactions to them. They have never stablized my blood pressure in 4 years.
Thanks Heartston
I have recently seen a hypertension specialist who thinks the spikes are caused by emotional distress. I'm currently taking an ACE Inhibitor and Adrenergic Blocker daily. The spikes don't seem as high but I'm experiencing side effects.
Check out on the internet Pseudopheochromacytoma and particularly a paper written by Dr. Samuel J. Mann. I found it very informative.
Good Luck!
I have also done the sleep studies and wear a cpap at night, but my blood pressure still ues up! My doctors are scratching their heads while I'm going crazy with fear and anxiety.
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