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Just diagnosed
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renalupie1 posted:
I have officially been diagnosed with IBS. I am hoping for some advice from others. It seems my biggest issue is uncontrollable cramping and pain. The feeling of being bloated is aweful. I am taking Bentyl 3 times a day. I know when I skip a dose too! The doctor that did my scope mentioned taking SSRI meds? Prozac? does anyone take that? Does anyone take a GasX or Beano for the gas? Does it help at all?

I have people pushing me to go gluten free and dairy free. I never had issues with either one. Why would I suddenly have a problem with them?

Thanks for any help.

Rena
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DIYSTER responded:
Hi Rena! I'm going to answer your last question first. Why would you suddenly have a problem with gluten and/or dairy? I don't know but it does happen. It happened to me. I used to be able to eat a half a large pizza and then go play tennis. No problems. Maybe I always had a sensitivity but over time (I'm in my early 50's), it grew to an outright allergy. Either way, it happened.

I often think IBS is what the docs label it when they can't (or won't) figure it out. There must be some underlying cause for your bowels to be irritable, right? It's just not normal. So, you might try going gluten free for several days and see how you feel (clear soups, salads-no croutons, fish, for example). If you notice an improvement, you can discuss with your docs. Just beware that if you are going to be tested for gluten sensitivity, you need to have it in your system. So you may want to ask for the blood test before changing your diet. Let me know what you decide. Good luck Rena!
 
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renalupie1 replied to DIYSTER's response:
I see my family doc on Thursday, so will discuss with him doing a gluten test. I dont' really notice having more issues with gluten. I currently am going without dairy for a few days to see if that makes a difference.

I cannot eat salad. I have terrible diarrea with that, always have. I tend to have issues with raw veggies on a whole. Right now my biggest issue is pain. If I could get rid of the pain, I would be a happy camper.

Is there a test for the lactose issues as well?
 
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amjean responded:
Believe it or not I have been "diagnosed" with IBS for over a year now and nothing the Drs have done has helped. I am on cramping meds, antidepressants, and anti-anxiety meds. They keep telling me if i calm my mind down then my digestive system will follow in suite. Well I have quit my job and hardly leave the house and still nothing is better. If you want answers you have to be aggressive and demand what you want out of your drs. They just experiment to see if certain meds will help but everyone reacts diff so dont be afraid to speak up n say this med sucks
Amber
 
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DIYSTER replied to renalupie1's response:
Hi Rena,
I hope you are able to get some answers at your appt Thursday. Sorry to hear veggies give you a problem. Maybe if you give your doc all of the little details it will help with a diagnosis. There is something wrong and everything has a cause and effect. You shouldn't have to live this way, so, without being rude of course, it is time to start demanding answers - real answers - from your health care providers!

Let us know how it goes Thursday - good luck!

P.S. My husband had issues similar to yours many, many years ago. What his doctor was telling him to do and take was making it worse. I told him to see someone else because this guy was slowly killing him. He went to a new doc and the results were great. AND, part of the treatment was counterintuitive - increase fiber (via bran)...but it worked. My husband still has lactose sensitivities but NOTHING like before. Lesson - may want to try another doctor.
 
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DIYSTER replied to amjean's response:
Amber, I couldn't agree with you more. You raise a very key point - we have to be our own advocates!

No one should have to live with these types of medical conditions. We must educate ourselves and demand the care we need and deserve.
 
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barbarafromtucson responded:
Hi Rena,

I used to eat cheesecake, pizza, icecream, mac-n-cheese, milkshakes, etc with no problem. Then I started to notice that I would get indigestion when having a lot of dairy and then I noticed that my bouts of diarrhea were happening more and more frequently...it got to the point where I was sick all the time, losing 10lbs/month. When I eliminated dairy from my diet, I got a *lot* better. So yes, even if dairy never bothered you before, it could be bothering you now.

You will need to go about 3-4 weeks of no dairy to really notice a difference (or not).

I would also recommend starting up a journal. Write down what/when you eat and then details about the 'results'...including consistancy. This is gross, I know, but I've been asked by my doctor about the consistancy/shape/etc. of the 'results'. With a journal, over time, you/your doctor can see patterns that might determine what foods/vegetables/etc. trigger it.

Also I would keep track of your moods--when you're happy, sad, angry, depressed, anxious, etc. Sometimes emotions will have an effect on your system, like they do mine.

I've been to many doctors. My current doctor upfront told me that most doctors find 'diarrhea' as 'boring'--they will run the 'standard' tests, and if they all come out negative, than they will diagnose you with IBS and send you on your merry way.

I would strongly advise you to find a different doctor. Ask around. And also try to get referred to a GI specialist.

Good luck to you and please keep us updated!
 
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lez33417 responded:
I take 1/2 of a 10 mg. Celexa pill in the morning. I can actually feel the anxiety and knot leaving me. The celexa has serotonin in it which helps move the intestines too. Gluten free diet doesn't hurt anyone but I don't eat high fat in anything, especially dairy. I think the body has a hard time of breaking down fat when you have IBS..........I also take 2 Beano before breakfast, lunch, and dinner. Doesn't matter what I eat, I just do it. Then I take Gas X Ultra after dinner to help with the bloating. IBS comes with what I call "the accompanying pain". It may just come on or be there when you wake up. Try a heating pad to help. Fortunately, I have a hot tub I can get into any time of the day or nite to help me. Talk to your doctor regarding DOMPERIDONE that you can get from Canada. Taking that 4 times a day and that appears to help too. When things get really bad, I use Polyethelene glycolax mixed with whatever once a day or twice a day to help evacuate me. Whatever works for you, do it. There is no right or wrong with this disease. Try low fat foods too. I hoped I have helped. LEZ


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