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Any Adults w/ a Mitrofanoff?
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Viewfromuphere posted:
I am a cancer survivor of 2+ years now, but unfortunately some of the "collateral damage" left me without a large portion of my urethra. I currently have an SP cath and am getting ready for a Mitrofanoff procedure, which will use my appendix as a conduit from my bladder to my abdomen. This will enable me to cath only when I have to void and get this pesky indwelling cath out of me once and for all.

I know this is seen more in peds, but haven't seen much related to adults with it. I am 32 years young and hoping this will dramatically improve my quality of life. Now, I'm pretty much in pain 24/7 with constant infections in my bladder.

Hoping someone out there has personal experience, either themselves or with a loved one, with a mitrofanoff and can chat with me.

Thanks for reading and be well.
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Louise_WebMD_Staff responded:
Welcome. Congratulations on your cancer survival. I hope the Mitrofanoff procedure will help you and that it goes well.

I don't have any personal experience but I did want to welcome you and wish you good luck.


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