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New here- My 23 Week Unborn Baby Diagnosed with Dual Collecting System- A few questions!
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shtetlfabulous posted:
Hi, folks! Boy, am I happy to find this group. I've been lurking for a day or two, trying to familiarize myself as much as possible with the lingo and getting lots of information, but I'm still feeling pretty overwhelmed.
I'm 23 weeks pregnant with my second child (first is eleven years old and has never had a single health issue, knock on wood) and our OB gave us a call last week to let us know that when he'd looked at the results of our anatomy scan (from a month ago), that our baby girl's right kidney looked "a little swollen." He made us an appointment to get another scan and to see a perinatologist yesterday, which we did.
I'm not certain as to just how to feel about the results of the ultrasound yesterday. While baby's right kidney looked to be measuring about a 5-6 mm a month ago, it is now at 11 and looks to be dual- with most of the cystic area on top, and a normal functioning area at the bottom. The left kidney is functioning normally and amniotic fluid levels are normal as well.
The doctor seemed sort of laid-back about all of this and scheduled us for another scan in six weeks. She also suggested that we see a pediatric nephrologist (we are in Pittsburgh, thank God, an absolutely fantastic hospital town) for a consult at some point before delivery to get an idea of what might come next.
The thing that has me absolutely terrified is the rapid growth of the right kidney. It seems to be getting fluid-filled at an extremely fast rate, and I read on this board that 10mm is some kind of "danger zone." Can any of you elaborate on this? I did ask the doctor if rupture was a possibility and she said "No, but we'll keep an eye on it" which to me meant more like "Maybe" and honestly, if that's the case, I don't like the idea of waiting six weeks AT ALL.
So, if any of you have experience with one dual collecting kidney, or with fluid collection that happened this extensively and rapidly, I would love to hear about your experiences, and also any advice you may have. Thank you all so much in advance for reading this, and also just for being here.
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john-skpt responded:
I'm better at adult conditions that conditions of neonates/infants, but a few general things:

In most cases of duplicate collecting systems, one turns out--after a degree of development--to the the 'major' system, and the second is sort of an ancillary structure. In adults it is often removed or sutured off so that the low urine flow through the secondary system does not trap bacteria and lead to recurrent infections. I can't guess what age is the best to do this.

"Cysts" are rather common, at least in adults, and most are just left alone unless they cause pain or pose a potential threat. Watch and wait is the key thing to do for now.

Depending on the source of the fluid, one option might be to aspirate it, but that gets a bit difficult in utero. In a lot of cases, fluid imbalances sort out some time after delivery. Some need intervention.


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