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Partially Duplicated Ureter with abnormally small bladder.
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An_253174 posted:
Hi all.
I have battled urine tract infections and kidney infections as far back as I can remember. I have been to numerous urologists, nephrologist, ER's, hospitals, dr offices, ect. I have taken every test under the sun to determine my issues and nothing seems to be the issue. I have been diagnosed with a kidney disorder known as a Partially Duplicated Ureter(or collecting system). Having said that I also have had a surgery done to find out that I have an abnormally small sized bladder. The capacity of my bladder is smaller than an infants. With having this my right kidney(with the duplicated ureter) is continuously swollen and in constant pain. The ureter itself is also severely inflamed but there is no sign of any blockage. Just a very minimal amount of reflux. I have become immune to a lot of the antibiotics they prescribe me because I have been taking them so often for so many years. The last few years have been the worst as far as infections go though. I do not know what its really like to not have an infection anymore. My urethra is so irritated that I am in constant burning, stinging, pain. And my kidney is in constant cramping, or just stabbing pain.

I recently talked to a urologist in my town and he said my only real options would require being permanently catheterized due to surgical procedures he would have to do to fix my bladder.

I'm only reaching out to people via this discussion page because I'm a twenty year old female that can not hold down a job due to the recurring UTI's/Kidney infections and the constant pain I am in. I have reached out to so many doctors, nurses, specialists and no one has an answer for me other than the pain is in my head. I have started mental health treatment to see if that would change anything and it hasn't.

Does anyone else have these issues or know anything about it?
Any replies are helpful!

Thanks!
Reply


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