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Renal Oncocytoma
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ccrosthwaite54 posted:
A 4.5 centimeter mass was discovered on my left kidney along with a 1.7 centimeter stone in the same kidney. The stone issue was taken care of after it caused a blockage last year. My urologist ordered a biopsy to determine if the mass was cancerous. After two long agonizing weeks, the results came back that the mass was benign. The urologist had two separate labs run tests on the tissue samples. At this point he has chosen to closely monitor the mass, thus I have had CT scans done every few months. I'm just wondering how others have dealt with this type of issue. I've also found out that these types of masses or tumors are relatively rare and even more so in women. I was 58 when I it was found. Not sure how long the doctor will wait before it is removed, but he explained that he will probably send me to a larger hospital with specialists that can remove the mass and keep the kidney because I'm also a diabetic. For a long time my A1Cs were anywhere from 7-8, but just days after the diagnoses, my A1C was 10. It is now down to 6.5-6.7. Would love to hear from others that have dealt with this type of mass.
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john-skpt responded:
I have not had this type of growth, but in most cases they are considered benign, self-limiting, and seldom recur after excision.

I think that your urologist is wise to try to save the kidney via frequent monitoring to watch for any unusual changes.

I'd hope that soon doctors will quit "averaging" all diabetic patients into one big--and very inaccurate--group: all patients do not get the same complications at the same age, at the same rate, or at the same time. My retinas were getting bad by the time I was 18, and my kidneys failed at 39; I have no neuropathy at all. But I have a close friend of my age who has had terrible peripheral neuropathy for a more than decade, has had hips replaced due to avascular necrosis, but his eyes and kidneys are fine. No two people are the same.

So the only safe way to go about treating diabetic complications is to hope for the best outcome, but at the same time, plan for the worst. You really don't want to give up any functioning kidney tissue "just in case" something unexpected shows up later.

Watch and wait would be my advice.

(BTW: Something that I learned the hard way. Don't rely too much on the A1C by itself. If you have very high and very low blood glucose that fluctuates all over the place, then the A1C is not accurate. If your hemoglobin is at all suppressed, then the A1C will be falsely reduced. I spent years with a doc looking ONLY at A1C, without paying any attention to the concurrent level of HgB. The A1C measures glycosylated hemoglobin--glucose that bonds to hemoglobin--so if the HgB is low, then the A1C levels need closer scrutiny.)
 
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ccrosthwaite54 replied to john-skpt's response:
Thank you so much for your reply.
There's a lot of stuff out there, but it seems that a lot of doctors would rather take the kidney and then do the testing. I'm glad mine isn't one of them. He explained that these types of tumors can mask other issues including cancer, so close monitoring should be done.
I was just wondering if anyone else has ever had to deal with them and what their doctors did.
Just repeated the CT scan today, so will be waiting to see if there has been any change.
Again, thank!


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