Skip to content

    Announcements

    Exciting News for WebMD Members!

    We've been busy behind the scenes building new message boards for you. You'll have new and easier ways to find messages, connect with others, and share your stories.

    And, this will all be available on your smartphone or other mobile device!

    What Do You Need to Do?

    The message board you're used to will be closing in the coming weeks. While many of your boards will be making the move to our new home, your posts will not. Want to keep a discussion going? Save posts you want to continue (this includes your member profile story), so that you can re-post them in the new message boards.

    Keep an eye here and on your email inbox, we'll be back in touch soon to give you all the information you need!


    Yours in health,
    WebMD Message Boards Management

    Have you had a kidney transplant or are waiting for one? Then visit the Organ Transplant Community and the Diabetes and Kidney Community to share your experiences with other community members!

    Are you newly diagnosed? Use the WebMD search engine to read articles like Understanding Kidney Disease.
    primary MD appt on 4/29
    avatar
    Tikasiamese posted:
    Just came from my primary Dr appt on 4/29 (yesterday). Found out that my GF is 43. Creatine levels are just a few tenths of a point higher than it should be (I can't remember off hand what the norm is but if the normal was 1.5, I might be a 1.7, something like that). Should I be concerned about this # at this stage in the game. I was told that my PKD is at the earliest stages. I have to schedule a CT scan. Also, instead of referring me to a nephrologist, she referred me to a urologist. Is this ok? Maybe I should call the primary office and ask what the reason is, or should I just play dumb and call the urology office and ask whether or not they accept PKD patients. I just find it odd.
    Reply
     
    avatar
    John-SKPT responded:
    Estimated GFR can vary significantly without really being very significant. (I don't know what test method was used to arrive at the 43 you mention, so it might be more, or it might be less, accurate.)

    The main thing to watch with serum creatinine and eGFR is how much it changes over time. A snapshot taken from one single test really is hard to judge.

    As for the docs: the urologist would be the surgeon that would do something if it ever comes to that, a nephrologist would be the one to manage the biochemistry of the kidneys, electrolyte balance, fluid balance, blood pH, other blood chemistry.
     
    avatar
    Tikasiamese replied to John-SKPT's response:
    ok, John. I will make an appt with the urologist to see what he says. Sounds like they want me to see him for a consultation only. I'll make it when I get back from my vacation next week (5/9-5/15).

    Right now, I am asymptomatic and at this time, she wants to keep track of things. I have another blood test script the PA gave me to be done within 6 months (I see them again in November but will do the blood test in October). I also have to get a CT scan, it will be done after 5/15.

    The GFR only went down a point from 44 to a 43 in the past 6 months. I've had 3 normal readings of BP. they want me to monitor the BP.

    Thanks again for your help!

    Jen
     
    avatar
    John-SKPT replied to Tikasiamese's response:
    That sounds good; at least no one is in a real hurry to push ahead with any treatment. Watching is probably the best thing now.

    44 to 43 is really insignificant. I'd worry if it went from 40 to 30 in one year, but the really small changes just aren't worth worrying about.


    Spotlight: Member Stories

    I have PKD. I have a lemon size bulge by my right lower rib. It is a deep feeling pain. After a Ultrasound, CT scan and MRI, I am told I have blood se...More

    Helpful Tips

    QUESTION
    MY DAUGHTER WAS JUST DIAGONSED WITH KINDEY FAILURE LAST YEAR SHE IS ALMOST 5 YEARS OLD AND I WAS WONDERING SHE HAS A BACTERIAL INFECTION IS ... More
    Was this Helpful?
    1 of 2 found this helpful

    Report Problems With Your Medications to the FDA

    FDAYou are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.